Incontinence increase two weeks after catheter removal. Worried

Posted by topf @topf, Jul 15 3:08pm

I am now two weeks post-catheter removal (which was in fir two weeks) and started keeping a log of my liquid intake and leakage. After leaking about 250ml in a 24 hoyr period, the last couple of days it has increased to over 300. Also, night leakage is back up to 60-80ml after I had been only 20ml. ll this without mayor changes in fluid intake (2,500-2,700ml/day) nor exercise (2-3 miles of walking each day).

These increases rwalky worry me. Did you have similar experiences but gained full control in the end?

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Did your other activity increase recently ? If you are doing much more around the house or garden or similar it can effect leakage. Even too many kegel exercise repetitions can tire still very sensitive pelvic floor and increase leaking. I read a lot about incontinence lately since my husband is having a surgery next month and that was one of the things that was mentioned often. Try resting little bit more and see if there is any change - if yes, than you need to take it easy. You are basically still "fresh off the table" < 3. Also, body needs time to heal after surgery and recovery "line" is rarely strait up, usually it has some bumps and curves 😉 and sometimes even U-turns. I am sure that in couple of weeks you will see big improvement and many say that 3 mos for some reason is often a turning point .

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It is something that is not uncommon and over time will probably get better.

You could ask your doctor for something like Myrbetriq. Now seven years past radiation my incontinence has been a problem. Myrbetriq Has reduced urgency and incontinence. How to take two pills a day in order for it to be real effective. Not perfect, but it helps a lot. Gemtesa is supposed to work similarly.

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Profile picture for surftohealth88 @surftohealth88

Did your other activity increase recently ? If you are doing much more around the house or garden or similar it can effect leakage. Even too many kegel exercise repetitions can tire still very sensitive pelvic floor and increase leaking. I read a lot about incontinence lately since my husband is having a surgery next month and that was one of the things that was mentioned often. Try resting little bit more and see if there is any change - if yes, than you need to take it easy. You are basically still "fresh off the table" < 3. Also, body needs time to heal after surgery and recovery "line" is rarely strait up, usually it has some bumps and curves 😉 and sometimes even U-turns. I am sure that in couple of weeks you will see big improvement and many say that 3 mos for some reason is often a turning point .

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Thanks! I hope you are right. Prepare your husband for the possibility, it does hit hard.

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Profile picture for jeff Marchi @jeffmarc

It is something that is not uncommon and over time will probably get better.

You could ask your doctor for something like Myrbetriq. Now seven years past radiation my incontinence has been a problem. Myrbetriq Has reduced urgency and incontinence. How to take two pills a day in order for it to be real effective. Not perfect, but it helps a lot. Gemtesa is supposed to work similarly.

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Thanks, Jeff. I will bring it up on my next appointment.

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Profile picture for topf @topf

Thanks! I hope you are right. Prepare your husband for the possibility, it does hit hard.

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There are some good advice here also - watch from about 10:50 to 13:30 minute.

I completely understand you - it must be an unnerving feeling and it is hard not to think about it when it is actually happening but try also to keep in mind that most men will experience leaking in the first couple of months and than will get better and better till about 95% (give or take) get a complete control by year one. Then the rest of men will do some extra exercises and have an improvement and small % will need some additional help. It is really so early to make any assessment. It would be unfair to yourself to compare to minority that is dry at day one < 3 Most men need time BUT they get continence back most of the time. Do not concentrate to 5% that need extra time and even smaller number that might opt for surgery at the end.

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Profile picture for surftohealth88 @surftohealth88


There are some good advice here also - watch from about 10:50 to 13:30 minute.

I completely understand you - it must be an unnerving feeling and it is hard not to think about it when it is actually happening but try also to keep in mind that most men will experience leaking in the first couple of months and than will get better and better till about 95% (give or take) get a complete control by year one. Then the rest of men will do some extra exercises and have an improvement and small % will need some additional help. It is really so early to make any assessment. It would be unfair to yourself to compare to minority that is dry at day one < 3 Most men need time BUT they get continence back most of the time. Do not concentrate to 5% that need extra time and even smaller number that might opt for surgery at the end.

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Thanks gor the link. He is talking about 2-3 liters/day as a lot. My physical therapist adviced me to drink around 2.5 (she said half one’s weight measured in pounds is the amount of ounces one should drink per day).

I inow the statidtics are favorable and I knew I would likely have some incontinence. But once it hits it feels different…

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Profile picture for topf @topf

Thanks gor the link. He is talking about 2-3 liters/day as a lot. My physical therapist adviced me to drink around 2.5 (she said half one’s weight measured in pounds is the amount of ounces one should drink per day).

I inow the statidtics are favorable and I knew I would likely have some incontinence. But once it hits it feels different…

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Awweeee, I am so sorry to hear that you are now little bit down due to incontinence worry :((. It will get better, you will see. I know it is hard but you have to make sure to find a way to relax and give your body time and energy to heal. You are really so early in your recovery path.

Regarding PT and this doctor's advice - if it was me, I would try both ways and see what works for ME, no matter what anybody says. ; ). We are all different and we know our body the best. It is especially hard concept for men to grasp since man do not pay attention so much to bodily functions and are actually culturally trained not to pay attention. If you had a better result with less water before you started PT than 2.5 might be too much too soon. What if your bladder was naturally smaller than average and is now even smaller after surgery ? Making extra pressure on the sphincter that needs time to get strong can not be good. Talk to your PT and explain that you had better control before you started PT and perhaps share this video. Just take it easy and be kind to yourself, you are expecting too much too soon < 3. IF you ever come to 12 mos and you have a problem than there is a solution for that too.

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I found this on Mount Sinai website :

"To hasten the recovery of urinary control, we teach you pelvic floor exercises to strengthen the urinary sphincter. These exercises are known as Kegel exercises. Basically, they consist of tightening the urine control muscle (the sphincter muscles) 10 to 20 times every hour to strengthen the muscle that controls urine flow. We may recommend other behavioral strategies as well, including timed voiding, double voiding, and reduced fluid intake, which can significantly help facilitate urinary control and can be started shortly after surgery."

As you can see, they mention "reduced fluid intake" also. It made me thinking - is your PT working with RP patients or is just helping people with regular incontinence ?

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Profile picture for surftohealth88 @surftohealth88

I found this on Mount Sinai website :

"To hasten the recovery of urinary control, we teach you pelvic floor exercises to strengthen the urinary sphincter. These exercises are known as Kegel exercises. Basically, they consist of tightening the urine control muscle (the sphincter muscles) 10 to 20 times every hour to strengthen the muscle that controls urine flow. We may recommend other behavioral strategies as well, including timed voiding, double voiding, and reduced fluid intake, which can significantly help facilitate urinary control and can be started shortly after surgery."

As you can see, they mention "reduced fluid intake" also. It made me thinking - is your PT working with RP patients or is just helping people with regular incontinence ?

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Thank you, Surftohealth! I am doing my Kegels and still need to wait for another two weeks before I can start with other exercises in Physiotherapy. I hope it all works out.

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I found the incontinence to be very discouraging. I read many accounts of guys regaining their continence within a couple of months. I was still using 5 pads per day after 2 months. I ran across a comment from a guy who swore that his Concept II rower fixed his incontinence. Since I have the same equipment, I thought I would give it a try. I saw almost immediate improvement, especially at night. It still took months, but the improvement was steady. At my six month checkup my surgeon was surprised that I was wearing one pad a day, mostly precautionary. She told me that she had expected it to take a year for me to be recovered. Within a couple of weeks of that visit, I stopped using pads altogether.

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