incontinence increase two weeks after cath removel

Posted by topf @topf, 1 day ago

I am now two weeks post-catheter removal (which was in fir two weeks) and started keeping a log of my liquid intake and leakage. After leaking about 250ml in a 24 hoyr period, the last couple of days it has increased to over 300. Also, night leakage is back up to 60-80ml after I had been only 20ml. ll this without mayor changes in fluid intake (2,500-2,700ml/day) nor exercise (2-3 miles of walking each day).

These increases rwalky worry me. Did you have similar experiences but gained full control in the end?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Did your other activity increase recently ? If you are doing much more around the house or garden or similar it can effect leakage. Even too many kegel exercise repetitions can tire still very sensitive pelvic floor and increase leaking. I read a lot about incontinence lately since my husband is having a surgery next month and that was one of the things that was mentioned often. Try resting little bit more and see if there is any change - if yes, than you need to take it easy. You are basically still "fresh off the table" < 3. Also, body needs time to heal after surgery and recovery "line" is rarely strait up, usually it has some bumps and curves 😉 and sometimes even U-turns. I am sure that in couple of weeks you will see big improvement and many say that 3 mos for some reason is often a turning point .

REPLY

It is something that is not uncommon and over time will probably get better.

You could ask your doctor for something like Myrbetriq. Now seven years past radiation my incontinence has been a problem. Myrbetriq Has reduced urgency and incontinence. How to take two pills a day in order for it to be real effective. Not perfect, but it helps a lot. Gemtesa is supposed to work similarly.

REPLY
@surftohealth88

Did your other activity increase recently ? If you are doing much more around the house or garden or similar it can effect leakage. Even too many kegel exercise repetitions can tire still very sensitive pelvic floor and increase leaking. I read a lot about incontinence lately since my husband is having a surgery next month and that was one of the things that was mentioned often. Try resting little bit more and see if there is any change - if yes, than you need to take it easy. You are basically still "fresh off the table" < 3. Also, body needs time to heal after surgery and recovery "line" is rarely strait up, usually it has some bumps and curves 😉 and sometimes even U-turns. I am sure that in couple of weeks you will see big improvement and many say that 3 mos for some reason is often a turning point .

Jump to this post

Thanks! I hope you are right. Prepare your husband for the possibility, it does hit hard.

REPLY
@jeffmarc

It is something that is not uncommon and over time will probably get better.

You could ask your doctor for something like Myrbetriq. Now seven years past radiation my incontinence has been a problem. Myrbetriq Has reduced urgency and incontinence. How to take two pills a day in order for it to be real effective. Not perfect, but it helps a lot. Gemtesa is supposed to work similarly.

Jump to this post

Thanks, Jeff. I will bring it up on my next appointment.

REPLY
@topf

Thanks! I hope you are right. Prepare your husband for the possibility, it does hit hard.

Jump to this post


There are some good advice here also - watch from about 10:50 to 13:30 minute.

I completely understand you - it must be an unnerving feeling and it is hard not to think about it when it is actually happening but try also to keep in mind that most men will experience leaking in the first couple of months and than will get better and better till about 95% (give or take) get a complete control by year one. Then the rest of men will do some extra exercises and have an improvement and small % will need some additional help. It is really so early to make any assessment. It would be unfair to yourself to compare to minority that is dry at day one < 3 Most men need time BUT they get continence back most of the time. Do not concentrate to 5% that need extra time and even smaller number that might opt for surgery at the end.

REPLY
@surftohealth88


There are some good advice here also - watch from about 10:50 to 13:30 minute.

I completely understand you - it must be an unnerving feeling and it is hard not to think about it when it is actually happening but try also to keep in mind that most men will experience leaking in the first couple of months and than will get better and better till about 95% (give or take) get a complete control by year one. Then the rest of men will do some extra exercises and have an improvement and small % will need some additional help. It is really so early to make any assessment. It would be unfair to yourself to compare to minority that is dry at day one < 3 Most men need time BUT they get continence back most of the time. Do not concentrate to 5% that need extra time and even smaller number that might opt for surgery at the end.

Jump to this post

Thanks gor the link. He is talking about 2-3 liters/day as a lot. My physical therapist adviced me to drink around 2.5 (she said half one’s weight measured in pounds is the amount of ounces one should drink per day).

I inow the statidtics are favorable and I knew I would likely have some incontinence. But once it hits it feels different…

REPLY
@topf

Thanks gor the link. He is talking about 2-3 liters/day as a lot. My physical therapist adviced me to drink around 2.5 (she said half one’s weight measured in pounds is the amount of ounces one should drink per day).

I inow the statidtics are favorable and I knew I would likely have some incontinence. But once it hits it feels different…

Jump to this post

Awweeee, I am so sorry to hear that you are now little bit down due to incontinence worry :((. It will get better, you will see. I know it is hard but you have to make sure to find a way to relax and give your body time and energy to heal. You are really so early in your recovery path.

Regarding PT and this doctor's advice - if it was me, I would try both ways and see what works for ME, no matter what anybody says. ; ). We are all different and we know our body the best. It is especially hard concept for men to grasp since man do not pay attention so much to bodily functions and are actually culturally trained not to pay attention. If you had a better result with less water before you started PT than 2.5 might be too much too soon. What if your bladder was naturally smaller than average and is now even smaller after surgery ? Making extra pressure on the sphincter that needs time to get strong can not be good. Talk to your PT and explain that you had better control before you started PT and perhaps share this video. Just take it easy and be kind to yourself, you are expecting too much too soon < 3. IF you ever come to 12 mos and you have a problem than there is a solution for that too.

REPLY

I found this on Mount Sinai website :

"To hasten the recovery of urinary control, we teach you pelvic floor exercises to strengthen the urinary sphincter. These exercises are known as Kegel exercises. Basically, they consist of tightening the urine control muscle (the sphincter muscles) 10 to 20 times every hour to strengthen the muscle that controls urine flow. We may recommend other behavioral strategies as well, including timed voiding, double voiding, and reduced fluid intake, which can significantly help facilitate urinary control and can be started shortly after surgery."

As you can see, they mention "reduced fluid intake" also. It made me thinking - is your PT working with RP patients or is just helping people with regular incontinence ?

REPLY
Please sign in or register to post a reply.