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Idiopathic Polyneuropathy
Seems like we are all similarly suffering from this condition (Neuropathy) but all in so many different ways. Most seem to have pain and then those of us who have only balance, gait (mobility) issues. While the spoken of Rebuilder (stimulation) and Anodyne (infra red) products returned sensation to my feet in my case within six months, and continued use, my mobility has not improved. One of my feet, with noticeable worsening, actually improved with the use of the Walkasin device and at the same time allowing my comfort and confidence to increase to the point of an increased activity level. Within the last year an acute sensation of pain began in my neck, shoulder and arm so starting about two months ago I sought out help from an acupuncturist and am still in that early stage of treatment. The acupuncture does help with the pain (too soon to report on the mobility) and combined with one session of "cupping" the pain in the arm and shoulder is almost gone. Since balance can be affected by inner ear problems, I am now scheduled for inner ear balance testing.
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Hello @yette, I thought you might like to scan through the other discussions on Polyneuropathy and see what other members have shared. Here's a link that lists the different discussions and comments from members on Polyneuropathy - https://connect.mayoclinic.org/search/discussions/?search=Polyneuropathy.
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3 ReactionsTy 🙂
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1 ReactionI was recently diagnosed with bilateral peripheral polyneuropathy. A physiatrist(MD) suggested a purchase a red light device to diminish my symptoms. I am not receptive to taking higher doses of gabapentin. Any thoughts please?
Hello @gardenlover71, Welcome to Mayo Connect. I don't have pain with my neuropathy and I tried a infrared light therapy device early on but it do anything for my numbness so I stopped it. There are a few discussions on the topic where others have share their experience:
-- Anyone try LLLT red light therapy for helping with PN?
https://connect.mayoclinic.org/discussion/anyone-try-lllt-red-light-therapy-for-helping-with-pn/
-- Anyone tried using red light therapy?
https://connect.mayoclinic.org/discussion/anyone-tried-using-red-light-therapy/
-- Medical grade red light therapy
https://connect.mayoclinic.org/discussion/medical-grade-red-light-therapy/
If you haven't looked at other complementary or alternative therapies, you might want to look at the list on the Foundation for Peripheral Neuropathy site here - https://www.foundationforpn.org/therapies/.
What type symptoms do you have with your neuropathy?
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2 ReactionsTy so much, I will look at those websites ! Have you heard about the COVID virus having a relationship with idiopathic polyneuropathy ? My physiatrist mentioned it
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1 ReactionGlad to help! Actually there are quite a few discussions here on Connect about COVID and neuropathy where members are discussing the connections. Here's a search link that shows the different discussions and member comments - https://connect.mayoclinic.org/search/discussions/?search=covid%20and%20neuropathy.
Again, ty so much ! I'm relatively new to this disease
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