IBS, gastroparesis, endometriosis, type 2 diabetes; what to do?

Posted by kmr756 @kmr756, Sep 23 7:54am

Hi guys, I hope you are well!

I have been diagnosed with gastroparesis, IBS-Mixed, endometriosis, and type 2 diabetes. I have been on this road for about 3 years now trying to discover the best solution to my problem. My IBS and gastroparesis have gotten worse over the years and last Thursday they did another endoscopy with Botox for the first time.

I would really love some advice on how to navigate life with these illnesses and what to do next as I still am constantly nauseas, having abdominal pain and vomiting after almost every meal. I am considering the G-POEM surgery to help with my gastroparesis but what should I do about my IBS. I still have very irregular bowl movements and it switching for diarrhea to constipation like every week now.

Thanks in advice! Have a great day!

Interested in more discussions like this? Go to the Digestive Health Support Group.

I am sorry for your health problems. I had surgery, 2 years ago, to remove my large intestine due to congenital malrotation. I have my small intestine connected to my rectum. I have diarrhea daily. Its a relief from the constant constipation I had before. In addition to diarrhea I have nausea also. I take zofran for both these issues. I take 2 citrucil tablets AM and PM. these were suggestions from my GI. Also through trial and error I realized that I can't eat much vegetable salads or fatty foods. Living for me is day by day; sometimes I have a good day and sometimes not so good. I also had a hysterectomy 30 years earlier. My therapist emphasizes gratitude.

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@kmr756
Are you working with a nutritionist/dietitian for your type 2 diabetes and gastrointestinal issues to review diet and supplements? Do you take any medications that are making your symptoms worse?

Have you had allergy testing/seen an immunologist? Have you had autoimmune testing?

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Profile picture for dlydailyhope @dlydailyhope

@kmr756
Are you working with a nutritionist/dietitian for your type 2 diabetes and gastrointestinal issues to review diet and supplements? Do you take any medications that are making your symptoms worse?

Have you had allergy testing/seen an immunologist? Have you had autoimmune testing?

Jump to this post

I am currently working with a dietitian for gastroparesis. I take medications like motergrity, famotidine, pantoprozole, meclizine, and metocloprimide but I don’t see a difference with these medications. Meclizine and metocloprimide work but the others don’t help. I do work with an allergist for my allergies and have been allergy tested but I have not seen an immunologist and have not been autoimmune tested. Would you recommend I do that?

REPLY
Profile picture for kmr756 @kmr756

I am currently working with a dietitian for gastroparesis. I take medications like motergrity, famotidine, pantoprozole, meclizine, and metocloprimide but I don’t see a difference with these medications. Meclizine and metocloprimide work but the others don’t help. I do work with an allergist for my allergies and have been allergy tested but I have not seen an immunologist and have not been autoimmune tested. Would you recommend I do that?

Jump to this post

@kmr756

If I were you, I would want to know if I had inflammation in my body due to autoimmune issues.

Here is what AI lists as autoimmune bloodwork panel tests:

Common Tests Included

Antinuclear Antibody (ANA) Test: This test checks for antinuclear antibodies that can indicate autoimmune disorders like lupus or rheumatoid arthritis.

Rheumatoid Factor (RF): Measures the presence of rheumatoid factor, which is often elevated in rheumatoid arthritis.

Anti-Citrullinated Protein Antibody (ACPA): This test is more specific for rheumatoid arthritis and can help in its diagnosis.

Anti-DNA Antibodies: These are often associated with systemic lupus erythematosus (SLE).

Anti-Smith Antibodies: Specific to lupus, these antibodies are highly indicative of the disease.

Complement Levels (C3 and C4): These proteins help assess the activity of the immune system and can be low in certain autoimmune diseases.

Thyroid Antibodies: Tests for antibodies like anti-thyroid peroxidase (TPO) and anti-thyroglobulin can indicate autoimmune thyroid diseases such as Hashimoto's thyroiditis or Graves' disease.

REPLY
Profile picture for kmr756 @kmr756

I am currently working with a dietitian for gastroparesis. I take medications like motergrity, famotidine, pantoprozole, meclizine, and metocloprimide but I don’t see a difference with these medications. Meclizine and metocloprimide work but the others don’t help. I do work with an allergist for my allergies and have been allergy tested but I have not seen an immunologist and have not been autoimmune tested. Would you recommend I do that?

Jump to this post

@kmr756

You may want to see a rheumatologist/immunologist to evaluate potential autoimmune issues causing some of your symptoms.

What type of doctor diagnosed your allergies and what allergies do you have?

Did you ever review your medications with your pharmacist to get their input on drug interactions that may be causing some of your symptoms?

Here is what AI says an immunologist does:

Diagnosis of Immune Disorders: Immunologists diagnose conditions such as allergies, autoimmune diseases, immunodeficiencies, and certain cancers. They use various tests, including blood tests and skin tests, to assess immune function.
Treatment Plans: They develop treatment plans tailored to individual patients, which may include medications, immunotherapy, or lifestyle changes to manage symptoms and improve immune function.
Research: Many immunologists engage in research to better understand the immune system and develop new therapies. This can involve studying diseases, vaccine development, and exploring new treatment modalities.
Patient Education: Immunologists educate patients about their conditions, treatment options, and preventive measures to enhance their immune health.
Collaboration: They often work with other healthcare professionals, such as allergists, rheumatologists, and oncologists, to provide comprehensive care for patients with complex immune-related issues.

REPLY
Profile picture for kmr756 @kmr756

I am currently working with a dietitian for gastroparesis. I take medications like motergrity, famotidine, pantoprozole, meclizine, and metocloprimide but I don’t see a difference with these medications. Meclizine and metocloprimide work but the others don’t help. I do work with an allergist for my allergies and have been allergy tested but I have not seen an immunologist and have not been autoimmune tested. Would you recommend I do that?

Jump to this post

@kmr756

You may want to talk to your doctor to consider adjusting/stopping certain medications that may not be helping or of causing any issues/side effects.

You may want to ask your pharmacist about the combination of meclizine and meteoroids combination. My understanding is this combination is generally avoided due to potential antagonistic effects.

REPLY
Profile picture for dlydailyhope @dlydailyhope

@kmr756

You may want to talk to your doctor to consider adjusting/stopping certain medications that may not be helping or of causing any issues/side effects.

You may want to ask your pharmacist about the combination of meclizine and meteoroids combination. My understanding is this combination is generally avoided due to potential antagonistic effects.

Jump to this post

@kmr756
Correction: Meclizine and metocloprimide are the combinations you want to further investigate.

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