IBS challenges

Posted by Barb @amberpep, Aug 8, 2017

Hi .... I don't think there's a group for this, so I thought I'd try you all. I have been prone to IBS with constipation since my divorce 12 years ago - we were married for 40 years and I felt as though I'd been thrown away. My gastro-intestinal doctor suggested Metamucil, which seemed to work. Between then and now I've had 3 moves, one about 4 hours from where I'd lived for 30 years, a TKR and also a revision, am on several psychotropic medications for cyclothymia, and just feel awful. Well, I'm 73 and have had my teeth removed in order to get dentures .... there's been quite a harang with this and it's been over a year since I've been eating soft and pureed foods .... cream of wheat, soups (pureed), pureed spaghetti, if I do eat a piece of fruit it has to be pureed, but I try not to. It's been a long haul. Well, now I'm packing to move to a low-income apartment closer to my girls, and the IBS has become the diahrrhea form ..... OMG, it's awful. I'm afraid to go out. I don't know what to do anymore. I'm new down here and only have an Internist, but with moving that will have to change. I need the name of a good gastro-enterologist at the hospital I will be using. In the meantime, does anyone have any suggestions for me? I'm forced to use pads right now "just in case" ..... I know this is anxiety and tension, but it's got to stop.
Thanks much,
abby

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Profile picture for mikayla68 @mikayla68

When I was a child, I was constipated. It was hard to pass a poo, the poos were the small hard pebbly kind. As an adult (I'm in my late 60s) my poops tend to form too wide. It's either the first poop of the day, or the first part of the first poop. My drs have always labeled this as constipation - but I go poop every single day so it seems like the wrong diagnosis. I'd poop even if I didn't use Citrucel or Colace, which I do. And you won't be surprised to learn that I've had hemorrhoids and 2 surgeries for fissures.

To make this more complicated, I had the bad luck to get CDiff a few years ago which morphed into IBS Mixed - I've found that drs pretty much leave it up to patients to determine what kind of IBS, but I think I'm mixed, but maybe it's actually D? Anyway, I now eat low FODMAP which is very effective, but means I can't have certain things like prunes or Metamucil. Oh, and most GIs I've seen are glad I'm eating low FODMAP and just don't care if I call my condition IBS-D or IBS-M or even IBS-C. Oh and I had a rare bad reaction to Miralax, so I can't use that.

So I'm just wondering if anybody would recommend I try anything to help with this poo-size issue. I'm thinking about getting ground flax seed, I think that might be my next experiment. If I overdo the stool softeners or counting my fiber intake or Citrucel, then I poo and poo and poo - it almost never becomes watery, but it causes many bad mornings and sometimes can't leave the house until noon. I'm so sick of myself! I'm in my golden years and I just want to enjoy them!

Thanks.

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Use the powder in juice, then you can keep adding 1/2 teas. until you go without diarrhea.

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I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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...no but I have similar problem and do get "rabbit pellet" poops after Imodium !!! then it goes back to fecal incontinence never formed.... and it goes back and forth and has done for years.... be interesting to read further comments... J.

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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It may be good to keep a record of what you eat and in what amounts--also any supplements and medications and when you take them-- and how your body reacts, to share with your physician(s), and also to find any patterns you may be able to see yourself.

Personally, I've had bad reactions before to things that I thought would help me. One example is that I tried to use magnesium citrate to prevent migraines and finally found out that citric acid can actually be a trigger for a small percentage of people with migraines. including me, apparently. So in my opinion it sometimes helps to keep as comprehensive a diary as you can, even though it is rather tedious.

And yes I think you should see someone about it. They would probably also want to know if you are experiencing any pain with your other symptoms.

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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Pepto Bismol can cause a very dark stool. If this is what your dark stool is from, and you aren't taking anymore Pepto, it should lighten up.

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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Pepto Bismol can temporarily cause a very dark blackish brown stool. Once you quit the Pepto Bismol, it should clear up and the stool should no longer have a dark color.

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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Thanks - I never knew that!

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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Pepto can cause black stool... Coffee ground usually indicates blood but it probably is from the Pepto

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Profile picture for Twocoastsm @marlenec

I am hopefully just getting over an IBS flare up. I took two doses of Imodium and a few pepto bismol tablets a few days ago, had no BM for two days, followed a low FODMAP protocol and now have had two “coffee-ground” BMs. I’m not sure if I need to call my GP - don’t have a GI yet since I’m new to this area. Has anyone else experienced this?

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More research needs to be done; Polyethylene Glycol Toxicity Symptoms Miralax, LaxaClear and more names
While it’s well-known among the medical community that PEG can trigger an allergy, cause digestive upset, or lead to electrolyte imbalances, there have been more and more reports of neurological symptoms associated with polyethylene glycol. Because of this reported increase in neuropsychiatric side effects, parents and pediatric practitioners are becoming increasingly wary of administering polyethylene glycol to adolescents.

A recent study found that a large percentage of parents, caregivers, and practitioners described an explosion of neurological side effects seemingly correlated to polyethylene glycol administration. Those side effects include:10 Abnormal behavior, Anger, Anxiety, Mood swings. Seizures, Sensory disturbances.
Exactly how and why polyethylene glycol is triggering these neurological symptoms is still not entirely clear. And whether or not these side effects also extend to adults and geriatric patients will require further studies as well.

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Profile picture for nancykeenan @nancykeenan

I was diagnosed with mesentric panniculitis from a CAT scan. My doctor and my gastro guy do not think it is. They think it is IBS. The only symptom I have is I wake up every morning anytime between 1:00 am and 5:00 am with a mild pain or cramp in the very bottom, right side of my pelvis. I get up and walk around as it feels better. If I have even a little bit of gas pain goes away... within a short time I have a bowel movement and the pain is gone and does not come back until the next morning. Doesn’t appear that anything I eat irritates this. I have had this for over a year and before that something similar but it was sporadic before that. Does anybody else have this! Need some feedback please....

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Can anyone be of help guiding me through so I can have a semi normal life without living in constant fear of when the next attack will happen

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