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I wish I knew?

Posted by ric82 @ric82, Jan 19 3:25pm

I am a Cancer survivor. I was 4 and a half years old . Because of all the radical treatments I received ( radiation therapy, chemotherapy , facial reconstruction, dental implants). I lost my eye sight in my left eye because the radiation hit my optic nerve. All my teeth fell out when I was 12. When I was 16 I had facial reconstruction and dental implants which was a mistake because the bone in my face was had radiation damage from all the radiation therapy I had. I have moyamoya disease from scar tissue that is severely blocking the two of the main arteries to my head. I have had no surgery to help me with my Neurology issues . I don't know if there's hope for me because now my entire facial bone is disintegrating from trauma and getting hit in the head. I've seen oral surgeon, I've been to ENT I've been to different neurologist,and cardiologist and hematologist ,I never had any help except for being on baby aspirin regiment . I'm open to hear from anyone with the same or similar experience or issue and most of all success stories.i don't feel to good these days . Is this it ??

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celia16 | @celia16 | Jan 19 6:54pm

Your story of survival is very inspiring. I hope you can find proper professionals to help you. Best wishes on feeling better.

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gloaming | @gloaming | Jan 20 12:08pm

Wow, I can't imagine what you're going through...especially all the uncertainty and the apparent continual decline that is going on.

I have no ideas, but I wonder if you're getting the right nutrition for your various conditions. Could you be in a deficit of some kind of vitamin, mineral,...? For example, have you had your Vitamin D3 levels checked out? Do you get any full-skin sun exposure fairly regularly? If not, you should be taking something like 2000-5000 IU of D3 pretty much daily. I'm NOT advising you to do this, nor suggesting that a deficit of D3 is probably what is going on. I'm must trying to give you ideas, maybe some hope, and avenues to explore if they are pertinent to your case.

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1 reply
ric82 | @ric82 | Jan 20 1:55pm
In reply to @gloaming "Wow, I can't imagine what you're going through...especially all the uncertainty and the apparent continual decline..." + (show)
@gloaming

Wow, I can't imagine what you're going through...especially all the uncertainty and the apparent continual decline that is going on.

I have no ideas, but I wonder if you're getting the right nutrition for your various conditions. Could you be in a deficit of some kind of vitamin, mineral,...? For example, have you had your Vitamin D3 levels checked out? Do you get any full-skin sun exposure fairly regularly? If not, you should be taking something like 2000-5000 IU of D3 pretty much daily. I'm NOT advising you to do this, nor suggesting that a deficit of D3 is probably what is going on. I'm must trying to give you ideas, maybe some hope, and avenues to explore if they are pertinent to your case.

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@gloaming think you , Yes I am taking D3 I'm also taking Metoprolol Succ and statin.
I live in California I believe I get enough sun . I mean I'm a healthy person. I work out , I don't do much cardio though. I'm afraid I'll pass out. But I'm healthy . It is hard for me to eat I have no teeth and the bone that has disappeared. I have a lot of trauma to my head , mouth, and face. On top of moyamoya .

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