Looking for others with Pituitary Adenoma

Posted by dmedina71 @dmedina71, May 3, 2016

I like to now if their is anyone who has been diagnosed with Pituitary Adenoma

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Profile picture for ksmyrfam @ksmyrfam

3rd pit tumor here…. 😁

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Thats growling it your way. I'd be asking questions about how to remedy this. Life is to short for staying in hospitals,,,,less you're helping those who need a friend or just someone to talk to. Everybody needs someone they can confide or cry laugh, make faces and in that moment be comfortable with whoever they took to be their friend. Growl

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @dmedina71, welcome to Connect.
I'm tagging several Connect members who have talked about their experience with pituitary tumors (adenomas) in the past @neffjsn @osbonkim @shawnpaul @carolina2501 @donperryman @cathy14 @markvic @mybeau12. While it's been awhile since they've posted here, I hope some will return to join this discussion.

@dmedina, you mention in another discussion thread that it is your husband who has been diagnosed with a pituitary adenoma. How is he doing? How are you doing? We look forward to getting to know a bit more about you.

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3rd pit tumor here…. 😁

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Well I am thankful that you survived also. Im doing that every day and still enjoy my life. I can only hope you are also.
Have a wonderful day today

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5 years ago, I had a craniophariginoma removed from atop my pituitary.
The later radiation therapy killed off the pituitary.
Still thankful to have survived.

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Profile picture for ksavage48 @ksavage48

Surgery completed 06 February, stayed 2 nights in hospital. First 3 days on headache and movement of head causing pain. Day 3, the worst. Only taking Tylenol, Amoxicillin, and Enoxaparin sodium injections. Dr. Maria Peris Selda, neurosurgeon Mayo Clinic and Jacob Eide, otolaryngologist was excellent.
Up and about, listening to my body and following instructions.
Cannot wait to get the packing out of my nostrils!

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@ksavage48 That's fantastic news about the successful surgery! I'm sorry to hear you're dealing with headaches, though. I know how debilitating they can be. My brother experienced them for a week after his surgery, and they were pretty severe. Hopefully, yours will pass quickly. Sending you strength and continued healing!

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Surgery completed 06 February, stayed 2 nights in hospital. First 3 days on headache and movement of head causing pain. Day 3, the worst. Only taking Tylenol, Amoxicillin, and Enoxaparin sodium injections. Dr. Maria Peris Selda, neurosurgeon Mayo Clinic and Jacob Eide, otolaryngologist was excellent.
Up and about, listening to my body and following instructions.
Cannot wait to get the packing out of my nostrils!

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Profile picture for ksavage48 @ksavage48

You were in good hands. I’m having surgery 06 February. My spiritual beliefs and trusting in God have been what’s saved me, knowing He is with me.
Are your hormones at acceptable levels? Are you fatigues?
I have found the Mayo Clinic helpful since you can communicate with others who have had adenoma surgery. Wishing you the best.

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@ksavage48 thinking of you as you recover from surgery. I look forward to an update when you’re able.

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Fantastic news for you and your brother. Continued healing and good health.

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Profile picture for blynn8482 @blynn8482

I was just diagnosed with a 3mm pituitary adenoma. Did blood work and waiting to see a neurologist. Pretty scared

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Hello, and welcome to this incredible community! I'm so grateful to be a part of it and thrilled to share my family's story with you. My brother was recently diagnosed with pituitary adenoma, and on December 31st, he underwent surgery. I'm thrilled to report that the surgery was a huge success, and he's already experiencing a significant improvement in his overall health. Although the initial recovery period was challenging, with some extreme headaches, he's now back on his feet and getting stronger every day. In fact, he's even started walking every day, which is a huge milestone for him. This group has been an incredible source of support and guidance for me, and I'm so thankful to have found it.
I'm looking forward to connecting with all of you and sharing more about our journey.

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You were in good hands. I’m having surgery 06 February. My spiritual beliefs and trusting in God have been what’s saved me, knowing He is with me.
Are your hormones at acceptable levels? Are you fatigues?
I have found the Mayo Clinic helpful since you can communicate with others who have had adenoma surgery. Wishing you the best.

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