I was 43 at the time. Psychologically, it took a couple of months to a year to relax about the whole thing. I'm 72 now, been taking HGH, Testosterone, and Synthroid, pretty much steadily since the surgery (the HGH came into the picture shortly after Genentech came out with the recombinant version). I still choose to work (self employed) financial services. I play tennis regularly, easily run 3-4 miles at a time maybe 3 times a week, swim half a mile a couple of times a week, workout with weights/machines a couple of times a week, and basically have no chronic injuries such as knee, hip, shoulder, back, or whatever. I've done these things regularly my whole life (run in total around 50,000 miles). I'm grateful and know I'm lucky but actually feel kind of creepy sometimes listening to the other people my age complain about their aches and pains since I don't really have any to speak of with them. I'm slower running and swimming than I used to be. I'm saying all of this because maybe the hormone supplements have actually kept my levels at more optimum levels than others my age, allowing me to so far escape some of those age related maladies. So maybe, strangely, the surgery had a plus side.
@colleenyoung
I did have my appointment, thank you for asking . It was very anticlimactic in my opinion though. Me and my fiance drove almost 2 hours in one direction to go to UNC chapel hill to go see a fancy specialist that we were referred to. They were very dismissive and then they prescribed me a medication that my pharmancy wouldn't give to me bc it would have interacted with my other meds. Honestly I'd like to see a different doctor bc this one doesn't seem to care that this is affecting everything in my life so much and has been for years. The only news that they were excited about was that it wasn't cancerous. Which is great, but it doesn't stop it from ruining my life right now.
Thank you for the free program info!!
Year ago, I had a first CT scan for my sinus issues, and it accidentally discovered 2 meningiomas. The confirmatory MRI confirmed CT findings and I have been officially diagnosed with 2 meningiomas. This MRI also showed pituitary microadenoma which was not mentioned in my report. 6 months later, I have repeated my MRI. This time the report confirms the same sizes of my meningiomas and the “ same size of pituitary gland micro adenoma”, as well . On both follow up with neurosurgeon office, his PA nonshalantly stated there is nothing to worry about I suggested NRI in 2 years. I insisted annually to have MRI and asked her if I need to see endocrinologist or do hormone testing. According to her I don't have any symptoms but if I insist, I could do cortisol test. I asked for the next appointment to see the neurosurgeon. I’m still thinking to contact the endocrinologist because my mood is fluctuating too often….
Hi, I was officcially diagnosed with a pituitary adenoma on August 4th of this year. Although, I have felt the symptoms since I was 29 and did not understand what was going on. I am now 35 and I finally get to see an endocrinologist in a few days. I have been trying to wait patiently for 6 months for this appointment. I will be trying to get hormone replacement therapy. But currently I am experiencing a lot of symptoms that are negatively affecting my life. I don't feel like myself anymore. I feel like a different person, that is probably the worst symptom. It's a horrible experience to have. Does anyone have any advice on how to stay positive during this? Religion does not comfort me. I joined this group because everyone seemed so open and I don't have a lot of people I can talk to about this. Thank you in advance!
So sorry to hear that you are going through this. I am not a doctor but rather a person like yourself that was dealt this card. I had a 10mm Pituitary Macroadenoma. You are way a head of the process in my opinion. At least you recognized the issue with your Pituitary Gland by I am assuming your mood-personality change. I did not and others I have heard about did not either. It does affect your moods and vision. So glad that you are seeing an Endochronologist and I assume a Neurosurgeon. Get the ball rolling. The smaller the tumor the less invasive the corrective procedure. I had mine removed 3 years ago and 10mm was the number that determined what procedure would be utilized to remove the tumor. Sooner the better. Some have serve vision issues. In my case I just was recently informed that I have optic nerve damage because of the tumor. My understanding that the vision issues are not correctable. Fact check this. Stay on this site as it is great and reach out to loved ones and those you are close to. All journeys are unique. Good luck to you. This is more common that you presently believe. You are not alone.
Of course you do not feel well. The adenoma is messing up your hormones. This is a way your body is telling you something is wrong. Your endocrinologist will be taking lots of different blood tests and an MRI. Depending on the pituitary adenema and its location, there are different treatments i.e surgery, medication, etc. My husband had a pituitary adenoma and it was affecting his vision. He had surgery and it was successful. Initially he needed four hormones replaced and eventually ended up with three hormones replaced (the pituitary must have healed somewhat). He feels and looks better than most people his age and does not even have a weight problem. So out of the ashes of despair came something good (good health). Just make sure your endocrinologist is VERY experienced with pituitary problems. My husband sees an endocrinologist and neurologist at the same time at the Pituitary Clinic at Strong Hospital, Rochester, NY.
Hi, I was officcially diagnosed with a pituitary adenoma on August 4th of this year. Although, I have felt the symptoms since I was 29 and did not understand what was going on. I am now 35 and I finally get to see an endocrinologist in a few days. I have been trying to wait patiently for 6 months for this appointment. I will be trying to get hormone replacement therapy. But currently I am experiencing a lot of symptoms that are negatively affecting my life. I don't feel like myself anymore. I feel like a different person, that is probably the worst symptom. It's a horrible experience to have. Does anyone have any advice on how to stay positive during this? Religion does not comfort me. I joined this group because everyone seemed so open and I don't have a lot of people I can talk to about this. Thank you in advance!
Thats growling it your way. I'd be asking questions about how to remedy this. Life is to short for staying in hospitals,,,,less you're helping those who need a friend or just someone to talk to. Everybody needs someone they can confide or cry laugh, make faces and in that moment be comfortable with whoever they took to be their friend. Growl
@dmedina, you mention in another discussion thread that it is your husband who has been diagnosed with a pituitary adenoma. How is he doing? How are you doing? We look forward to getting to know a bit more about you.
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@neffjsn so did you got it removed?
My 32 years old son is suffering.
@conniemk my 32 years old son recently diagnosed with it. Did you got it removed or just did wait and watch approach.
@colleenyoung
I did have my appointment, thank you for asking . It was very anticlimactic in my opinion though. Me and my fiance drove almost 2 hours in one direction to go to UNC chapel hill to go see a fancy specialist that we were referred to. They were very dismissive and then they prescribed me a medication that my pharmancy wouldn't give to me bc it would have interacted with my other meds. Honestly I'd like to see a different doctor bc this one doesn't seem to care that this is affecting everything in my life so much and has been for years. The only news that they were excited about was that it wasn't cancerous. Which is great, but it doesn't stop it from ruining my life right now.
Thank you for the free program info!!
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Hug
2 ReactionsYear ago, I had a first CT scan for my sinus issues, and it accidentally discovered 2 meningiomas. The confirmatory MRI confirmed CT findings and I have been officially diagnosed with 2 meningiomas. This MRI also showed pituitary microadenoma which was not mentioned in my report. 6 months later, I have repeated my MRI. This time the report confirms the same sizes of my meningiomas and the “ same size of pituitary gland micro adenoma”, as well . On both follow up with neurosurgeon office, his PA nonshalantly stated there is nothing to worry about I suggested NRI in 2 years. I insisted annually to have MRI and asked her if I need to see endocrinologist or do hormone testing. According to her I don't have any symptoms but if I insist, I could do cortisol test. I asked for the next appointment to see the neurosurgeon. I’m still thinking to contact the endocrinologist because my mood is fluctuating too often….
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1 Reaction@krabbykitkat, I hope you saw the replies from @susanmaria and @guidanceplease. Staying positive when you are feeling so unwell is hard. Mayo Clinic has this (free) online self-guided program that you might find helpful:
- - Stress Management for Cancer https://mccmscontent.mayo.edu/LSC/CEC/stress-management-for-cancer/index.html
Did you have the appointment with the endocrinologist? What did you find out?
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1 ReactionSo sorry to hear that you are going through this. I am not a doctor but rather a person like yourself that was dealt this card. I had a 10mm Pituitary Macroadenoma. You are way a head of the process in my opinion. At least you recognized the issue with your Pituitary Gland by I am assuming your mood-personality change. I did not and others I have heard about did not either. It does affect your moods and vision. So glad that you are seeing an Endochronologist and I assume a Neurosurgeon. Get the ball rolling. The smaller the tumor the less invasive the corrective procedure. I had mine removed 3 years ago and 10mm was the number that determined what procedure would be utilized to remove the tumor. Sooner the better. Some have serve vision issues. In my case I just was recently informed that I have optic nerve damage because of the tumor. My understanding that the vision issues are not correctable. Fact check this. Stay on this site as it is great and reach out to loved ones and those you are close to. All journeys are unique. Good luck to you. This is more common that you presently believe. You are not alone.
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Like -
Helpful -
Hug
3 ReactionsOf course you do not feel well. The adenoma is messing up your hormones. This is a way your body is telling you something is wrong. Your endocrinologist will be taking lots of different blood tests and an MRI. Depending on the pituitary adenema and its location, there are different treatments i.e surgery, medication, etc. My husband had a pituitary adenoma and it was affecting his vision. He had surgery and it was successful. Initially he needed four hormones replaced and eventually ended up with three hormones replaced (the pituitary must have healed somewhat). He feels and looks better than most people his age and does not even have a weight problem. So out of the ashes of despair came something good (good health). Just make sure your endocrinologist is VERY experienced with pituitary problems. My husband sees an endocrinologist and neurologist at the same time at the Pituitary Clinic at Strong Hospital, Rochester, NY.
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Like -
Helpful -
Hug
2 ReactionsHi, I was officcially diagnosed with a pituitary adenoma on August 4th of this year. Although, I have felt the symptoms since I was 29 and did not understand what was going on. I am now 35 and I finally get to see an endocrinologist in a few days. I have been trying to wait patiently for 6 months for this appointment. I will be trying to get hormone replacement therapy. But currently I am experiencing a lot of symptoms that are negatively affecting my life. I don't feel like myself anymore. I feel like a different person, that is probably the worst symptom. It's a horrible experience to have. Does anyone have any advice on how to stay positive during this? Religion does not comfort me. I joined this group because everyone seemed so open and I don't have a lot of people I can talk to about this. Thank you in advance!
-
Like -
Helpful -
Hug
1 ReactionThats growling it your way. I'd be asking questions about how to remedy this. Life is to short for staying in hospitals,,,,less you're helping those who need a friend or just someone to talk to. Everybody needs someone they can confide or cry laugh, make faces and in that moment be comfortable with whoever they took to be their friend. Growl
3rd pit tumor here…. 😁