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CRPS (Complex Regional Pain Syndrome) after breaking wrist
Last year i fell and broke my wrist. i opted not to have surgery, although now i know i should have.
When i started therapy i was diagnosed with CRPS on first visit. my dr denies it, but i have all symptoms when i researched it.
CRPS is now mostly, but not totally gone after one year. my main annoyance with it is that it gets twice as cold as the other hand. when will this go away? Often my other hand will be room temperature and the one with CRPS will feel like it is 20 degrees. Does this mean circulaton is poor? it also gets very pale when cold and reddish when it is warm.
I have also read that it is autoimmune, but not sure how that can be when the break started it (due to immobilization)
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Hello @airey2, I moved you discussion to the Chronic Pain support group where there have been some other members discussing CRPS. I'd like to invite @leigh123, @izzy2023, and @rsnowflake who have all discussed having CRPS and issues with their hands as well to see if they can share some insight on how they are doing and how they manage their CRPS symptoms.
@airey2, I'd also like to share the discussion titled: "CRPS - anyone suffering with complex regional pain syndrome" - https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/ with you as well. Members in that discussion talk extensively about the different ways CRPS has effected them.
@airey2, you mentioned you were diagnosed in therapy as having CRPS but your doctor denies it. If you are comfortable sharing, did a provider officially diagnose you and your main provider is not acknowledging that diagnosis? Have you discussed your hot/cold sensation issues with the provider who did diagnose you?
my therapist (not sure if he is considered a true provider) was the one to diagnose me. When i went to the dr for a followup, i told him, and he said "i don't think you have it. all it means is pain after trauma, and everyone has pain after trauma." My therapist knew when i first started, and he could see the other symptoms, but since therapy is over now, i have not told him.
At this point, you probably need to consult with a specialized hand surgeon for help in diagnosing the exact problem and finding a solution. Do you have access to a hand surgeon (not a usual orthopedic surgeon)?
Sue