I have been diagnosed with high PTH, Hypocalciuria, and hypercalcemia

Posted by dkj @dkj, 1 day ago

I have been seeing an Endocrinologist regarding high PTH (203-178), Hypocalciuria and Hypercalcemia. I have several of the symptoms of hyperparathyroidism, such as elevated anxiety, panic attacks, poor sleep, fatigue, depression, brain fog, forgetfulness, loosing more hair than usual, brain on fire, Osteopenia, to name a few.

I am going through genetic counseling now to consider the possibility of FHH, but I have symptoms and am afraid my Endocrinologist will not be aggressive in helping me. He seems way too laid back.

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matt2024 | @matt2024 | 20 hours ago

Hi there - from what you describe, I would check into hyperparathyroidism. I have had it three times due to a MEN1 gene mutation. This site is very helpful in understanding the condition and what you seem to be experiencing - https://www.parathyroid.com/parathyroid-symptoms.htm
- Matt

riflemanz64 | @riflemanz64 | 19 hours ago

If no one in your family history has FHH you don’t have it. Just more money for the health care provider. They wanted $5k to test my wife and then we read the Norman parathyroid center web site. We then had surgery for my wife there and it’s a 5 star operation! Best surgeons in the world. Very tiny incision and then it’s back to the hotel room, none of this staying overnight in the hospital. Flew Home the next day. Great experience and it’s the best surgery my wife has had.