Colleen Young, Connect Director | @colleenyoung | 3 days ago
@roxmonk, I can imagine you're worried about what is going to happen next. You might be interested in this discussion that @ricosoriano started a while back talking about their successful surgery and next steps.
They are taking a wait and see approach. I have an MRI yearly and it is growing slowly but getting more painful. They said surgery to remove it was the best option. They said this has a high rate of recurrence so they don’t want to operate until they can remove as much as possible and operate as few times as possible.
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@roxmonk, I can imagine you're worried about what is going to happen next. You might be interested in this discussion that @ricosoriano started a while back talking about their successful surgery and next steps.
Malignant Peripheral Nerve Sheath Tumor
https://connect.mayoclinic.org/discussion/malignant-peripheral-nerve-sheath-tumor/
@sanzbozo @godsgraceandmercy01 @kai2022 @stellacammarano @kelseympnst may also be able to share their experiences with you.
Roxmonk, what treatment plan has your cancer team suggested for you?
They are taking a wait and see approach. I have an MRI yearly and it is growing slowly but getting more painful. They said surgery to remove it was the best option. They said this has a high rate of recurrence so they don’t want to operate until they can remove as much as possible and operate as few times as possible.
I have noticed the leg that has the sarcoma is getting weaker as well as being painful.