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I have 3 nueroendocrine tumors in my left lung
After all the radiation, my oncologists recommend 30 radiations and numerous related ct scans. I wonder if these tumors having been there, one the size of an avacado, maybe 50 yrs and staying in my lung, do I, at 75, want to endure something I may not feel physically able to handle.
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Margaret10:
Yes, I have had neuropathy (beginning in feet, graduated up legs and also now beginning in fingers) for 20 years drs say because I have Type2 Diabetes. My NET was diagnosed 10/2022 and I began Somatuline Depot 11/2022 and injected every 28 days; changed to Lanreotide 11/2023 until present. I don’t know NET and Neuropathy are connected. I have not had genetic testing. I hope that your NET treatment has stabilized your tumors and that your Neuropathy is not causing you pain. Best to you.
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2 ReactionsDo you have neuropathy in addition to neuroendocrine tumors? Did you have the neuropathy before starting Lanreotide? If so, there could be a genetic connection, specifically a mutated SDHB gene. I have mutant SDHB, neuropathy and had a neuroendocrine tumor as a child.
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2 ReactionsI have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is a shot of 120mg Lanreotide every 28 days in my Oncoligists office. Few side effects resulting in stable tumor growth. I am open to help answer your concerns.
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