Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@colleenyoung

If you're online right now, please hop over to see this live presentation by Dr. Dawn Mussallem, a diagnostic breast specialist, on achieving optimal well-being through diet, exercise, and stress management, followed by a Q&A session for which Dr. Mussallem will be joined by these specialists:

– Kristin Lothman, MSW, LCSW, Mind-Body Counselor
– Dr. Raul Rosario Concepcion, Physical Medicine and Cancer Prehabilitation
– Debra Silverman, MS, RDN, LD/N, Integrative Cancer Nutritionist

Click this link to watch live or to see the archive any time: https://connect.mayoclinic.org/webinar/video-qa-about-breast-cancer-survivorship-care-planning/

Jump to this post

The presentation was excellent. Evidence based information about how diet, exercise, and other strategies like meditation yoga can help with side effects of cancer treatment and lower the chances of recurrence.

REPLY
@kathyomaha55

I will start on Exemestane tomorrow - let me know how long it takes for the joint pain to ease. I'll be counting the days too! I want to take for the full 5 years too - but side effects really affect my quality of life. Hoping this new drug works better for me.

Jump to this post

Fingers crossed, Kathy! Keep us posted.

REPLY
@sparklegram

bressie, i was on Arimidex for almost 2 years. I quit a week ago because I simply can't take the side effects. My doctor has prescribed Exemestane. I'm hoping I can tolerate it better than the other. Like you, I'm in my 70's (I just turned 75) and quality of life is important! I will continue taking the meds for the 5 years. i don't want a recurrence, so...fingers crossed!

Jump to this post

I will start on Exemestane tomorrow - let me know how long it takes for the joint pain to ease. I'll be counting the days too! I want to take for the full 5 years too - but side effects really affect my quality of life. Hoping this new drug works better for me.

REPLY
@kathyomaha55

Next year in August. I'm 64 now. The ACA was the only insurance I could get - Medica in Nebraska. Glad it exists though otherwise none at all. It said the retail price of the drug was: 687.99 I hope when I get to January, I do not have to pay that amount.

Jump to this post

@kathyomaha55 That is just crazy - I wonder what your state's attorney general or state insurance commissioner think of that...sure seems like price gouging.

REPLY
@sparklegram

Kathy, that's horrible! It shouldn't be this way. Does anyone know of a way to avoid these kinds of prices? (besides joining Kaiser!) Kathy, do you have Medicare?

Jump to this post

Next year in August. I'm 64 now. The ACA was the only insurance I could get - Medica in Nebraska. Glad it exists though otherwise none at all. It said the retail price of the drug was: 687.99 I hope when I get to January, I do not have to pay that amount.

REPLY
@kathyomaha55

Exemestane was $101.00 for 30 days (after I had met my deductible) for me.

Jump to this post

Kathy, that's horrible! It shouldn't be this way. Does anyone know of a way to avoid these kinds of prices? (besides joining Kaiser!) Kathy, do you have Medicare?

REPLY
@sparklegram

Bressie, I'm happy to stay in touch. I started the exemestane on Monday October 28th, 2019 so it's too soon to tell about side effects. With my Kaiser insurance I always pay $5.00 per RX of any pills. Yes! It helps to chat with other "old gals"!

Jump to this post

Exemestane was $101.00 for 30 days (after I had met my deductible) for me.

REPLY
@dmgweiss

I was talking recently with two women friends who have also gone through breast cancer. They have both decided to not take the recommended AI. They told me there was a recent study about using AI that showed a 30% chance of recurrence. I don’t mean to alarm anyone, but would love to read any current studies. Does anyone have a link?

Jump to this post

I was told - that whatever my chance for recurrence was - the AI inhibitor cuts that in Half. Otherwise I would not be doing this. If it returns, metastasized Breast cancer is essentially incurable. It only has a 22% 5 year survival rate. 🙁

REPLY
@trixie1313

@kathyomaha55 My daughter-in-law has seen the improvement since my switching to exemestane as with the other two AIs, the heel pain made it difficult to get up from a seated position to stand and walk as well as hand, leg, and elbow pain. Sure do hope it goes better for you as it has with me.

Jump to this post

I had hands & shoulders & toes! The shoulders & toes are so much better - I was on anastrozole for 11 months. I sure hope switching helps. Watching the Mayo clinic Video right now. They mention exercise - which I do. And acupuncture for joint pain - interesting!!

REPLY
@gwinter

@trixie are you taking anything for your hot flashes?
Anybody ideas??

Jump to this post

Listening to Q & A and if go to 9 min 30 sec point in this video, she talks about side effects hormone therapy and discusses hot flashes.
https://www.facebook.com/MayoClinic/videos/410105226608669/

REPLY
Please sign in or register to post a reply.