Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

I was on AI for ten or more years total, some on tamoxifen and some on anastrazole. The problem with tamoxifen was that I could not take my normal antidepressant while on it. No one who has to be around me wanted me off of that. 😂😂 my brother calls them my nice pills. I did have joint and muscle stiffness and soreness, and I still do a couple of years later. I blame it on the accelerated aging from a lack of estrogen, but I never had tingling in my hands. When your hands tingle are you sitting quietly or sleeping, or are you were active? Did you take chemotherapy?

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The hand tingling was mostly when I sleep, so initially I thought it was the way I had my arm. But then it happened when soaking, laying back in my tub. My head/chin downward i.e. messing with my phone. Hardly ever when active. Sometimes sitting in my recliner reading. I wear progressive glasses so my head is adjusting where o can see.
The PT gal said my neck muscles were very tight, pulling up my rib in that area. Since I’ve been doing my exercises, the tingling has alleviated some.
The different achiness I have, I kept telling myself it was age. Maybe, but I’m not will to just sit around and let that happen- whether from med or aging - I choose JUST KEEP MOVING.

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Profile picture for sequoia @sequoia

@Chis. How long did you take Anastrozole? The full 5 years. I’m coming up on 2 years. I was having hip/groin pain & my hands would go to sleep, but I could make it quit if I moved my head/neck snd stretch the muscles. I’m the type of person to let my body tell me what’s going on, I listen! I stopped my Anastrozole for 28 days. I started physical therapy for my neck. With PT exercise are helping. There us quite a difference. I started taking my Anastrozole again Day 2 … do we will see. Weight gain was not an issue for me as I was consistently the same weight. Up 1 lb down 1 pound. Sometimes up 2 lbs 🤷‍♀️ Down 1 lb. 😊
I’m just trying to figure out what this medicine is doing to my body. MY BODY The doctors prescribe this medicine as a 1 size fits all. I personally do not believe it should be, but that is the way doctors treat us. But that is a whole different discussion. Bottom line is . . I’m working on me.

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I was on AI for ten or more years total, some on tamoxifen and some on anastrazole. The problem with tamoxifen was that I could not take my normal antidepressant while on it. No one who has to be around me wanted me off of that. 😂😂 my brother calls them my nice pills. I did have joint and muscle stiffness and soreness, and I still do a couple of years later. I blame it on the accelerated aging from a lack of estrogen, but I never had tingling in my hands. When your hands tingle are you sitting quietly or sleeping, or are you were active? Did you take chemotherapy?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

I am glad you are doing well with anastrazole, I did fine on it as well.
Please keep me posted on your progress. Learning our new normal can be challenging, I am glad you are here.

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@Chis. How long did you take Anastrozole? The full 5 years. I’m coming up on 2 years. I was having hip/groin pain & my hands would go to sleep, but I could make it quit if I moved my head/neck snd stretch the muscles. I’m the type of person to let my body tell me what’s going on, I listen! I stopped my Anastrozole for 28 days. I started physical therapy for my neck. With PT exercise are helping. There us quite a difference. I started taking my Anastrozole again Day 2 … do we will see. Weight gain was not an issue for me as I was consistently the same weight. Up 1 lb down 1 pound. Sometimes up 2 lbs 🤷‍♀️ Down 1 lb. 😊
I’m just trying to figure out what this medicine is doing to my body. MY BODY The doctors prescribe this medicine as a 1 size fits all. I personally do not believe it should be, but that is the way doctors treat us. But that is a whole different discussion. Bottom line is . . I’m working on me.

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Profile picture for omega20 @omega20

Yes anastrozole is my first treatment and I am doing well. I exercise every and hydrate often.cc

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I am glad you are doing well with anastrazole, I did fine on it as well.
Please keep me posted on your progress. Learning our new normal can be challenging, I am glad you are here.

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Profile picture for Chris, Volunteer Mentor @auntieoakley

I am not sure that 15 minutes or 30 minutes will really make a difference if you pre hydrate for a day. For me they always use these tiny little saline bags and the medicine is actually syringe push during that little bag. The difference between 15 and 30 in our infusion room is how fast they run the saline. Realistically with all the new space restrictions, I think it boils down to how many people are waiting to get chemo. I really do drink a few extra big glasses of water the day before and the day of, and have had zero side effects from this.
Is anastrazole your first hormone treatment? Have you had any side effects from it?

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Yes anastrozole is my first treatment and I am doing well. I exercise every and hydrate often.cc

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Profile picture for shelia71 @shelia71

Hi I’m right here with you. I don’t want to take it either due to the side effects and my age. I’m 71. Can I ask how old you are?

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Welcome! I am not sure who you were directing this comment to, or what you didn’t want to take. Can you please elaborate a bit. Pull up a chair and join the conversation.

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Profile picture for jkh @jkh

I live near King Orchards. Going next week to pick up their tart cherry juice and start my own experiment on me. I’ll keep you posted!

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Great - I ordered mine from King Orchards. I'm on day 5 today.
Good luck:)

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Profile picture for char81 @char81

Hello everyone
I’m new here. Dx with Stage 2A Grade 1 - surgery was 6 months ago, partial mastectomy, reduction and lift. No node involvement, oncotype 12 and pathology suggests non agressive cancer. I’m now on AI for 5 years- and started with Letrozole. After 3 months on it, significant symptoms of aching fingers and feet, numbness in hands and right foot. Some hair thinning, mild hot flashes… I had to stop at my oncologist’s suggestion to take a break and try another AI. I’m now on week 3 of exemestane - and still have achy tingling hands.
I’m exercising daily, yoga twice a week … fighting weight gain.
I’ve started taking tart cherry concentrate - there is a study I can post here that showed statistically significant improvement in some common AI sx using tart cherry.
Best wishes to everyone on this journey!

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I take the same and I was diagnosed the same as you. I have problems with joint pain in thumbs, shoulders and hips. I sure will try this. Keep us updated

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I live near King Orchards. Going next week to pick up their tart cherry juice and start my own experiment on me. I’ll keep you posted!

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@char81: Thank you as well for the tart cherry study. Had lumpectomy 6 weeks ago, no need for radiation or chemo based on the Onco score and other indicators. Started Letrozole 3 weeks ago. So far lucky, no major side effects, although most mornings I feel as if I had done some major yard work, even on the days that I didn’t do it. Joint/muscle pain mostly in hips. Goes away gradually during the course of the day. Unfortunately, because of hot/humid weather I do my daily (or almost daily, about 325 days/year) 2 mile morning walk between 7 and 8 AM, when the pain is still quite pronounced. I don’t want to start with OTC pain killers on a daily basis for this - yet. Hoping come fall I can do my walk after the soreness eases up. In addition to the brisk walks I also do some stretching exercises for my back, some bridges, squats, and planks, and 3 to 4 days a week 1 to 3 hours of yard work. Still - looking at Zometa in a few month’s time. For now I’m just crossing my fingers that the AI side effects stay manageable.

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