Concerned about the side effects of anastrozole

"My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%.:"

I've seen the results of seversl OncotypeDX tests and I've never seen a result where the risk of recurrence is higher than the Recurrence Score. Are you sure that you're not conflating the Recurrence Score (which is a number) with the Risk of Recurrence, which is followed by the % sign on the report (and assumes one takes anti-hormone therapy)? If you are noting the correct numbers, could this be because two different tumors were tested?

As an example my Recurrence Score was 9 but "risk of loco-regionsl recurrence....9 years" was 3%.

Buy they really should use less similar names for the two results as the majority of customers' calls are about the confusing terminology.

Thank you. My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%. My tumors were grade 2 and 3. I don’t know if they will do the Breast Cancer Index test to see if AI will continue or to try to determine risk of late occurrence.
My guess is I won’t continue because my oncologist said I only had a few more months to stick it out. But knowing there is a five year test is new to me. But baby steps! First step, MRI with breast surgeon. That has to be clear first, after which I will reconfirm what all my numbers meant when I see my oncologist and will also ask about this Breast Cancer Index test. I would like to have it done even if his plan is to discontinue the AI.

My doc didn't know about the BCI three years ago but it is now NCCN approved. I had to bring it to my doc and tell them about it 🙂

Thank you. My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%. My tumors were grade 2 and 3. I don’t know if they will do the Breast Cancer Index test to see if AI will continue or to try to determine risk of late occurrence.
My guess is I won’t continue because my oncologist said I only had a few more months to stick it out. But knowing there is a five year test is new to me. But baby steps! First step, MRI with breast surgeon. That has to be clear first, after which I will reconfirm what all my numbers meant when I see my oncologist and will also ask about this Breast Cancer Index test. I would like to have it done even if his plan is to discontinue the AI.

I had a score of 8 and risk of 10 year recurrence was 6% with tamoxifen only. I assume my risk was close to 12% without meds. (At the 5 year point, the Breast Cancer Index test indicated no further benefit from my AI. Risk of late recurrence 5.7%).
ps I was either grade 2 or 3 and not sure how that affects risk score. I thought everyone with a score of 8 would have the same risk but @callalloo has the same score but lower risk at 3%.

I will be going for my 5 year evaluation (since surgery and beginning treatment) and I understand that when we have our discussions here, it’s anecdotal information with helpful links. But it’s also been very helpful in that I am starting to prepare my questions for my evaluation and I am not quite confident about what my oncologist will advise and we are assuming that my exams and MRI will all be clear.

What did strike me in our discussions here, was all the info about the OncotypeDX. It prompted me to look at my score because for me, emphasis was placed on one score that determined that I would not benefit from chemo at my early stage. However, I looked at my other score/percentage for recurrence and it was much higher than others here who had my same number and talked about it here. (For example, if someone also had an 8, their recurrence was 3-4%.)
So some of my questions, if they aren’t addressed already by the oncologist, will have to do with that number, my tumor grade, and the bilateral cancer.
I appreciate that we can share, hopefully make us think, ask questions, and advocate, but not necessarily panic.
Will keep you posted! 🤞🏻

I will be going for my 5 year evaluation (since surgery and beginning treatment) and I understand that when we have our discussions here, it’s anecdotal information with helpful links. But it’s also been very helpful in that I am starting to prepare my questions for my evaluation and I am not quite confident about what my oncologist will advise and we are assuming that my exams and MRI will all be clear.

What did strike me in our discussions here, was all the info about the OncotypeDX. It prompted me to look at my score because for me, emphasis was placed on one score that determined that I would not benefit from chemo at my early stage. However, I looked at my other score/percentage for recurrence and it was much higher than others here who had my same number and talked about it here. (For example, if someone also had an 8, their recurrence was 3-4%.)
So some of my questions, if they aren’t addressed already by the oncologist, will have to do with that number, my tumor grade, and the bilateral cancer.
I appreciate that we can share, hopefully make us think, ask questions, and advocate, but not necessarily panic.
Will keep you posted! 🤞🏻

I have been on Anestrozole since February 2020. Had a problem at first with joints and now doing fine. However, my osteopenia went to osteoporosis. I had my first Prolia shot in January and I am on Osteo-K for bones.