Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@nanahatton65

I am post op 3months, had a bilateral mastectomy with stage 1 breast cancer, positive with brca gene. My oncologist recommended I take anastrozole every other day to see how I tolerate it for 3 months. It’s been a journey for sure. Seeing my oncologist in a week and the plan is going on it everyday. We will see, ugh 😩. I’m going to ask my oncologist for either a pet scan or ct scan, with the brca gene I’m very concerned on reoccurring cancer some where else. Be a squeaky wheel I suppose

Jump to this post

Have you tried different manufacturers or brand name? Or would you consider switching to letrozole?

REPLY
@beestrong

I have been on it for about 5 months and I'm having hot flashes all of the time, trouble sleeping, joint pains and racing heart rate at any given time...(anxiety?🤔).does anyone else.?I'm trying to manage and taking it one day at a time
To everyone on this journey with me....stay strong and continue to fight .. 💪

Jump to this post

I am post op 3months, had a bilateral mastectomy with stage 1 breast cancer, positive with brca gene. My oncologist recommended I take anastrozole every other day to see how I tolerate it for 3 months. It’s been a journey for sure. Seeing my oncologist in a week and the plan is going on it everyday. We will see, ugh 😩. I’m going to ask my oncologist for either a pet scan or ct scan, with the brca gene I’m very concerned on reoccurring cancer some where else. Be a squeaky wheel I suppose

REPLY

Hi- I've been on Letrozole for 3 months (lumpectomy for 2 cm Lobular, followed by radiation in January) and really starting to have the joint pain you all have referenced. The areas I have some arthritis (wrist, and neck) are most painful and I try heat upon waking. Once I get moving pain improves a bit. Have any of you tried glucosamine chondroitin supplements? I'm honestly so overwhelmed in regards to supplements - I will also add tumeric. I take 2000 D3 along with vitamin K as have osteopenia and try to get calcium diet as I've read that calcium just isn't all the bioavailable. However I have read Algae Calcium may be better absorbed?? Thanks for sharing and does take a village.

My oncologist at Dana Farber never mentioned any supplements other than the D3 and calcium as have osteopenia at 57 yrs.

Could any of you weigh in follow up scans. My onco feels that any scans before one year post surgery are not helpful so I only have a diagnostic mamo scheduled in October ( a year post surgery). I have dense breasts but mammo last year did pick up lobular but I do fear it had been there a while as the radiation onco said it was hiding behind a fairly large benign lump (had aspirations on that in the past a few times).

Do I beg for an MRI? Anxiety creeping up!

REPLY

To all those taking anastrozole blockers...
I was taking a cheap brand of Tumeric 500 mg twice a day. I bought Qunol extra strength Tumeric 1000mg. I take one in the morning and the cheap stuff at night. I feel like the Qunol extra strength works better on my bone pain. Also, walk as much as possible. I hope this information is helpful.

REPLY
@beestrong

I have been on it for about 5 months and I'm having hot flashes all of the time, trouble sleeping, joint pains and racing heart rate at any given time...(anxiety?🤔).does anyone else.?I'm trying to manage and taking it one day at a time
To everyone on this journey with me....stay strong and continue to fight .. 💪

Jump to this post

Stopped taking it in Dec. Started Tamoxifen and feel much better. Still have hot flashes but all the joint pain and arthritic pain is gone. Never. Again. Good luck

REPLY

These Estrogen Blockers have lots of symptoms - not everyone will have them all. But basically, if you remember how you felt during your menopause, you may be going through similar symptoms again, because menopause is when most of your Estrogen goes out of your system. After that you have some Estrogen left in your body and the Estrogen Blocker is now blocking what's left. Or almost all. Hence, all the hot flashes etc. I would check with your doctor to see if one of the other two Estrogen Blockers would work better for you. Also, ask your doctor if you can take a two week break from the pills - some people did this to give their body a break! I think you might need a break to relax and raise your spirits. And remember, nothing lasts forever. Things will get better.

REPLY
@mpirruccel

My main side effects have been blurred vision, insomnia, joint pain. Taking 1000 mg turmeric for joint pain and it seems to help. Going to eye doctor for checkup. Taking Lyrica at night for nerve pain due to failed total knee replacement ☹️. Also need to get cholesterol checked as this medication can raise cholesterol by 50-100 points. But if it keeps cancer from recurring I guess it’s worth it.

Jump to this post

Keep us posted on how you are doing and how your cholesterol tests turn out.
If higher, let us know what your doctor’s plans for it.

REPLY
@wabbit9

Anastrozol - I have lots of hot flashes accompanied with sob and weakness. Anybody else share these symptoms? Dorothy

Jump to this post

I have been on it for about 5 months and I'm having hot flashes all of the time, trouble sleeping, joint pains and racing heart rate at any given time...(anxiety?🤔).does anyone else.?I'm trying to manage and taking it one day at a time
To everyone on this journey with me....stay strong and continue to fight .. 💪

REPLY

Anastrozol - I have lots of hot flashes accompanied with sob and weakness. Anybody else share these symptoms? Dorothy

REPLY

I’m glad to hear you have finished your treatments. I have been taking anastrozole for about one year now. I have not had hair loss-I hate to admit that worried me so much. I do take biotin supplements daily. Don’t know if it has helped but it helps me feel better-maybe that I’m doing something! I have had joint pain and some fatigue. There was a lot of nausea at first but that has subsided a lot. We all so different, you may sail along with no side effects at all. I hope so. I do feel more reassured taking it-like I’m getting some protection and doing what I can to help myself. Prayers for your continued recovery🙏

REPLY
Please sign in or register to post a reply.