Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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I did not have hair loss but I did not tolerate Anastrozole well. Poor sleep, more intense hot flashes, dry skin and tendon problems. Took a month off of medication advised by my new oncologist and then started letrozole and taking it at night. 2 months in and I think psychologically (knowing this oncologist will work with me) maybe all that’s different as letrozole and Anastrozole are basically the same drug. But hot flashes are better ( the weather has changed so I don’t get to my
flash point as quickly. I’m taking a magnesium supplement for sleep issues. Dr also suggested acupuncture specifically for ‘women’s health’ to reduce the menopausal symptoms and yoga. Living in a rural area, it is quite difficult to find a women’s health acupuncturist but I am on the search. I guess my take away is if you don’t trust your dr- switch and look for alternatives in conjunction with your medication

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@nanna1948

I had some hair loss no change in bone density after five years on anastrazole accord manufacturer. Very low in side effects worth the results.

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You were one of the lucky ones. After 18 months on Anastrozole I opted to quit. I have posted before all that occured while on the medication, it became a quality of life issue. We all have to weigh our options and hope and pray we made the right decision. Bone loss medications are dangerous and I will not take them. Do your research, listen to your body and go from there.

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@anjalima

I had mild hair “ thinning” as in much more on comb/brush especially after washing… returned to usual after a while then again after replacement surgery. I have “ decided” that it was an effect from physical ( and emotional) stress from the anesthesia.

Check out TELOGEN EFFLUVIUM. It describes the natural cycle of hair growth, rest and shedding… and what may interrupt that . It’s quite interesting.

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I also use Anastrozole manufactured by ACCORD and when my pharmacy switched manufacturers I had dramatically increased side effects ( not in hair thinning) . Switched back to ACCORD and settled down again.

So much self advocacy needed on this journey!

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@nanna1948

I had some hair loss no change in bone density after five years on anastrazole accord manufacturer. Very low in side effects worth the results.

Jump to this post

I had mild hair “ thinning” as in much more on comb/brush especially after washing… returned to usual after a while then again after replacement surgery. I have “ decided” that it was an effect from physical ( and emotional) stress from the anesthesia.

Check out TELOGEN EFFLUVIUM. It describes the natural cycle of hair growth, rest and shedding… and what may interrupt that . It’s quite interesting.

REPLY
@bjohnson511

Yes, I have heard the difficulty losing weight about anastrozole. Also, I have thin hair to begin with and I am 72 years old and have heard about the thinning hair but my bigger issue is osteoporosis. since I already have osteopenia.

Jump to this post

I had some hair loss no change in bone density after five years on anastrazole accord manufacturer. Very low in side effects worth the results.

REPLY
@bjohnson511

Yes, I have heard the difficulty losing weight about anastrozole. Also, I have thin hair to begin with and I am 72 years old and have heard about the thinning hair but my bigger issue is osteoporosis. since I already have osteopenia.

Jump to this post

I was able to lose some weight on Anastrozole ( using WW) and at one year my DEXA remained stable … endocrinologist has prescribed a DEXA at year two as well and if I am still stable will go to 2 years.

Every BODY is different and responds differently. Ii wish we had more predictable possible outcomes. It would make our decisions so much easier. 🌸

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@bjohnson511

Thank you, very helpful! I am looking at the odds percentages of recurrence versus the side effects of anastrozole. I hope and pray that I make the right decision.!

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You can always stop … or change… it’s a daily pill not a multi month infusion. I feel safer taking the meds. Best to you 🌸

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@anjalima

On Anastrozole I have mild and manageable joint stiffness (mostly in hips) that I could mitigate with walking and yoga stretching. I also have mild night sweats sometimes and mild insomnia sometimes. After one year these symptoms increased dramatically… after two months I decided to check everything I was taking in such as food and supplements etc. it turned out my pharmacy changed the manufacturer for anastrazole and my newly dramatic side effects coincided with this change. I found a pharmacy that could order the original manufacturer, and began looking into the brand name. Now that I’m back on the original my side effects receded back to mild/manageable.

So… when there is a change in your response to a med check any changes in generic manufacturing. Generic us not regulated in the same way as brand meds and they can fluctuate in main ingredient as much as 20% ( I’m told by a company rep) in either direction. Also they have different fillers. It would be nice if this were more tightly regulated.

Brand is always better but OMG $1700.00/mo vs $25.00/mo at CVS!

Jump to this post

Thank you, very helpful! I am looking at the odds percentages of recurrence versus the side effects of anastrozole. I hope and pray that I make the right decision.!

REPLY
@tullynut

I have been taking anastrazole for almost 5 years. I think my hair is thinner, but I’m not sure if that was the result of the hair loss from chemo, the fact that I have thin hair to begin with, and I’m older, or the Anastrozole. The bigger issue I’m having with the anastrozole is an almost total inability to lose weight. I don’t think I’ve gained any or if I have, I haven’t gained much, but any attempt to lose weight almost always fails. When I talked to the chemo doctor about it and explained that I was getting , for a 71-year-old woman, an extremely high amount of consistent exercise, was following a sensible diet, and still could not lose anything. His response was it is the Anastrozole. For some reason it causes fat cells to settle in adipose tissue rather than be burned off by activity.

Jump to this post

Yes, I have heard the difficulty losing weight about anastrozole. Also, I have thin hair to begin with and I am 72 years old and have heard about the thinning hair but my bigger issue is osteoporosis. since I already have osteopenia.

REPLY

On Anastrozole I have mild and manageable joint stiffness (mostly in hips) that I could mitigate with walking and yoga stretching. I also have mild night sweats sometimes and mild insomnia sometimes. After one year these symptoms increased dramatically… after two months I decided to check everything I was taking in such as food and supplements etc. it turned out my pharmacy changed the manufacturer for anastrazole and my newly dramatic side effects coincided with this change. I found a pharmacy that could order the original manufacturer, and began looking into the brand name. Now that I’m back on the original my side effects receded back to mild/manageable.

So… when there is a change in your response to a med check any changes in generic manufacturing. Generic us not regulated in the same way as brand meds and they can fluctuate in main ingredient as much as 20% ( I’m told by a company rep) in either direction. Also they have different fillers. It would be nice if this were more tightly regulated.

Brand is always better but OMG $1700.00/mo vs $25.00/mo at CVS!

REPLY
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