Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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I'm 74 and am waiting to start Radiation for Stage 1 Invasive Ductal Carcinoma Estrogen & Progesterone +. After my radiation I'm supposed to start Anastrazole and am concerned about the side effects. My Medical Oncologist eased my anxiety. She told me to try it and if I experience side effects we have two other medications to try. If I can't tolerate any of them I'll have done what I can and just keep up with my follow ups. I figure the stress I was putting on myself is worse for my health than not taking the Anastrazole. I'm trying to keep things in perspective, with each passing year something else could kill me before the Cancer. But I don't want to be in constant pain or end up on so many medications that I can't live my life.

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Profile picture for jennfer72 @jennfer72

What about Rogaine/Minoxidil 5%? Can women on AI's take that?

I'm terrified of thinning hair!

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My oncologist ok'd topical Minoxidil. I am on Exemestane. It is working.

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Profile picture for nanthony723 @nanthony723

I took Anastrozole for 14 months following a lumpectomy and radiation for Stage 1 lobular breast cancer. The side effects didn't really start until 1 year in. At that point, I started to experience depression, weight gain, vaginal dryness, and worst of all, pain in my fingers and hips. After 14 months, I told my oncologist that I had decided to go off of it. She offered to prescribe an anti depressant, but I refused. It's been 8 months since I quit taking it, but I feel soo much better now. I have a friend with the same type of cancer, and she also started to experience unbearable symptoms starting at about one year. She had severe swelling in one of her arms and her vision also suffered from pressure on her eyeballs. She has also quit taking it. I am anxious every time I go in for a follow-up, but I know that I would worry even if I were taking the med as it doesn't guarantee that the cancer won't recurr. It just reduces the risk by about 50%. I hope my experience helps you with your future decisions. Hugs.

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I guess you have to decide quality or quantity. I am 73 and want to feel decent with the years I have left.

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I took Anastrozole for 14 months following a lumpectomy and radiation for Stage 1 lobular breast cancer. The side effects didn't really start until 1 year in. At that point, I started to experience depression, weight gain, vaginal dryness, and worst of all, pain in my fingers and hips. After 14 months, I told my oncologist that I had decided to go off of it. She offered to prescribe an anti depressant, but I refused. It's been 8 months since I quit taking it, but I feel soo much better now. I have a friend with the same type of cancer, and she also started to experience unbearable symptoms starting at about one year. She had severe swelling in one of her arms and her vision also suffered from pressure on her eyeballs. She has also quit taking it. I am anxious every time I go in for a follow-up, but I know that I would worry even if I were taking the med as it doesn't guarantee that the cancer won't recurr. It just reduces the risk by about 50%. I hope my experience helps you with your future decisions. Hugs.

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Sorry meant additions!!!

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Profile picture for tctredwell1 @tctredwell1

Hi. I’ve been on Arimidex for almost 2 years and the list of side effects is growing.

Prior to last month I “only” experienced fatigue. Now my feet, ankles and lower legs are very swollen.

Then there’s the pain. Sometimes I think I’m going crazy. I seem to have pain almost everywhere but the worst is my back, legs and feet.

Standing hurts, sitting hurts and walking hurts.

I’m tired of hurting. Stretching exercise routines help but not for long.

I called my oncologist and left a message requesting an appointment. Hopefully she will have some options for me.

Thanks for listening.

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Sorry to hear this I too am somewhat worried about the ‘addictions’ to my list of Anastrozole ‘issues’. I was hoping for some improvement but things don’t seem to be moving in that direction after 12 months in.

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Profile picture for otas @otas

I have been on Anastrozole for almost a couple of years now and have definitely experienced hair loss even now

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Hi. I’ve been on Arimidex for almost 2 years and the list of side effects is growing.

Prior to last month I “only” experienced fatigue. Now my feet, ankles and lower legs are very swollen.

Then there’s the pain. Sometimes I think I’m going crazy. I seem to have pain almost everywhere but the worst is my back, legs and feet.

Standing hurts, sitting hurts and walking hurts.

I’m tired of hurting. Stretching exercise routines help but not for long.

I called my oncologist and left a message requesting an appointment. Hopefully she will have some options for me.

Thanks for listening.

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Profile picture for otas @otas

I have been on Anastrozole for almost a couple of years now and have definitely experienced hair loss even now

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I am going on 5 years this April. Doc has added on two more years . I haven’t had any hair loss but I do get very constipated. Also get very tired . When I stopped taking in the morning it got better. I still get tired but it is closer to going to sleep.

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What about Rogaine/Minoxidil 5%? Can women on AI's take that?

I'm terrified of thinning hair!

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Profile picture for gramamom @gramamom

I have been taking anastrozole since Sept 2016. I started right after I finished my radiation treatments. At first I was very tired all the time, not sleeping well, and my bones and joints hurt a lot. I was also emotional and depressed. In December, I saw my nurse oncologist and she told me to take 2 tablets of glucosamine/chondroitin (1500 mg) each day and an Aleve PM ( 1or 2 Tabs) each night to sleep better. I have only been using 1 Aleve PM each night and I really sleep good. My bone pain went away immediately and most of my other symptoms also disappeared. It was like a miracle. I could tell the difference in 24 hours. I haven't noticed any hair loss and I also take magnesium 1200 mg a day, a vitamin D, and Calcium. My cancer was ILC , stage 1, and I had a lumpectomy, and radiation. Doing well now except for some fluid build up in breast. Wearing a sports bra helps a lot.

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I'm screen grabbing this response and praying that if I have problems this combo works for me, thank you! I just had a lumpectomy and am about to do radiation soon, then these drugs which are scaring the crap out of me ... reading this was such a relief that you have found ways to avoid most of the symptoms!!

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