Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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Profile picture for jeannie53 @jeannie53

After being on it since October 1 I didn't take my pill last night and will not until I see my oncologist next week. The leg pain is awful and I am having trouble walking it is an effort to do anything. I'm 65 and to think that I'm going to be this way for 5 years is just overwhelming. Quality of life? I was in pretty good health until breast cancer I was active and fit. I am considering stopping it for good and if I don't get some relief I will because I'm not living I'm existing. Has anyone found a balance on dealing with the pain from this drug.

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I had to stop after 3 months due to quality of my life . Also no pain for me till
The anastrozole. After being off for 3 months I am still having joint muscle and bone pain . Other symptoms subsided. Good luck I could not function . I have joined a fitness program at the ymca to get my strengths back

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Elizm, it's so nice to hear somebody seems to have a grip on this. I'm so hoping I can be more positive and not have the fear always ready to spring. I'm starting telephone counselling next week so I hope this will help/teach me how to be more positive. Thank you again for replying.

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Profile picture for karendb @karendb

@elizm, thank you for your reply. Since my diagnosis of breast cancer in May, 2018, I've been non stop afraid and depressed. My gp has put me on anti anxiety pills once a day but doesn't seem to be working. Well, maybe a little. The panic attacks have lessened. I guess I thought once everything was done with. I'd be back to my old self. Not the case at all and I miss my old self :(. I will be starting telephone counselling next Wednesday so will see how that goes.

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@karendb
I'm so sorry that you struggling with this new journey. I was diagnosed a year earlier than you, and also thought that, once the surgery and chemo, etc. were done, I could return to my old life. It didn't work out that way for me. I've had more time than you to get philosophical about it all. My current mantra is "Whatever happens, love that." Sounds crazy, I know... but it allows me to make friends with the changes, although sometimes I attempt to go around them or affect them... but it's no longer a battle. Just sayin'....

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Hi Sparklegram, it is hard to know if it's the drugs or the whole episode of bc. Are you currently on AI? I've been on arimidez for about a month now and the only real change I've noticed is a bit of insomnia, mild aches but the depression is all consuming.

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Profile picture for karendb @karendb

Good morning everyone. I had a lumpectomy, Chemo, radiation and am 1 month into taking arimidez. I feel a wee bit of aches but the depression is the worst. I cannot seem to get out of this slump. It's all consuming. Has anyone else suffered from depression while taking arimidez?

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@karendb - Hi Karen, yes, depression is one of the many side effects I have. It's always difficult to determine what is a side effect and what is life happening!

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Profile picture for francine6829 @francine6829

First time I heard about someone taking an AI prior to surgery

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AI prior to breast surgery was part of a research study, can read more at
https://clinicaltrials.gov/ct2/show/NCT01953588
Based on biopsies done prior to AI and again 3 months after start of AI, the tumor was responding to AI.

Laurie

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I didn't take it before surgery either. But I'm thinking that the depression I have started long before the arimidez. It started the day I found out I had bc.

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First time I heard about someone taking an AI prior to surgery

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Profile picture for karendb @karendb

Good morning everyone. I had a lumpectomy, Chemo, radiation and am 1 month into taking arimidez. I feel a wee bit of aches but the depression is the worst. I cannot seem to get out of this slump. It's all consuming. Has anyone else suffered from depression while taking arimidez?

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I was on arimidez for a study after breast cancer diagnoses and prior to surgery. The depression was terrible, but stayed on for 6 months. I stopped taking right before lumpectomy surgery and depression improved within days. After surgery had chemo and currently doing radiation. My oncologist wants me to take arimidez again when radiation is done and I will probably give it another try, but very concern about depression side effects.

Laurie

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@elizm, thank you for your reply. Since my diagnosis of breast cancer in May, 2018, I've been non stop afraid and depressed. My gp has put me on anti anxiety pills once a day but doesn't seem to be working. Well, maybe a little. The panic attacks have lessened. I guess I thought once everything was done with. I'd be back to my old self. Not the case at all and I miss my old self :(. I will be starting telephone counselling next Wednesday so will see how that goes.

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