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I am wondering if I have sarcoma

Posted by sicklysusan @sicklysusan, Dec 29, 2024

I am wondering if I have sarcoma or an autoimmune disorder with a connective tissue disorder. Part of both ears are hard, I have nodules on both index fingers, my fingernails on both 5th digits are white, I have fatigue. I was just diagnosed with Diabetes. I have a history of Er/PR and HER2+ breast cancer. I stopped taking Anastrozole 6 months ago. My PCP won't listen to my symptoms.

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bobbydoshier | @bobbydoshier | Dec 30, 2024

With your doctor not listening and you thinking you may have sarcoma, you will only know after seeing a cancer specialist. If they suspect a sarcoma, a MRI and or CT will normally be ordered of the suspected area. If test results are positive, a biopsy will be ordered. Then you will know. Sarcomas are usually located in area of soft tissues like arms, legs, abdomens, lungs, etc. Lots of information can be found on Mayo Clinic website.
I am a 3 cancer survivor. All different, all bad. Latest was undifferentiated pleomorphic sarcoma (UPS) of the front right thigh removed at Mayo, Rochester 04/2020. The best thing you can do is have and maintain a good attitude. Attitude will get you through the diagnosis, possible treatment and any recovery from whatever lies ahead of you. And know that Mayo, in my opinion, is the place to go. Best wishes to you

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sicklysusan | @sicklysusan | Dec 30, 2024
In reply to @bobbydoshier "With your doctor not listening and you thinking you may have sarcoma, you will only know..." + (show)
@bobbydoshier

With your doctor not listening and you thinking you may have sarcoma, you will only know after seeing a cancer specialist. If they suspect a sarcoma, a MRI and or CT will normally be ordered of the suspected area. If test results are positive, a biopsy will be ordered. Then you will know. Sarcomas are usually located in area of soft tissues like arms, legs, abdomens, lungs, etc. Lots of information can be found on Mayo Clinic website.
I am a 3 cancer survivor. All different, all bad. Latest was undifferentiated pleomorphic sarcoma (UPS) of the front right thigh removed at Mayo, Rochester 04/2020. The best thing you can do is have and maintain a good attitude. Attitude will get you through the diagnosis, possible treatment and any recovery from whatever lies ahead of you. And know that Mayo, in my opinion, is the place to go. Best wishes to you

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Thank you. I called my Oncologist's office to see if he would see me but I was told I need a referral from my PCP. I'll have to try again to get him to listen to my symptoms.

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bobbydoshier | @bobbydoshier | Dec 31, 2024

It may be time for you to change PCP to another that will listen. Good medical care always involves a patient who shares symptoms and a Dr that will listen to the patient. Without both, good care is not possible. Best wishes on your journey.

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