Trying to recover from a c. diff infection (Clostridium difficile)

Have you investigated Fecal Matter transfer? This is having excellent results in curing C Diff?

What a wonderful list! I pretty much eat the same! Only gluten free. And no beef! I have no Gallbladder lost in 2012. They do make a Soy sauce that is not real Soy. Taste the exact same. I never eat but a tiny amount, maybe 1/4 teaspoon or less. Thyroid issues, cause my Hypothyroid after loosing Part of Thyroid 20+ years ago!
Thank you for the list.

Scott I understand your fear of a Colonoscopy ! I will not survive being flushed out and wiping out all my bowels and having my electrolytes completely wiped out. I suffer from Electrolyte balances far to easy now. I simply cannot eat well enough to keep them correct! My heart goes out to you being fearful brings on Anixiety for me swiftly! Causes all sorts of dangerous issues, I cannot even have blood pressure meds without throwing electrolytes off and having Tachycardia. I passed out from have the Contrast dye when they did the CT scan in December 2018. About 4 hours after my blood sugar dropped to low. After having contrast dye it is highly igly advise-able to have a full IV of Saline solution given..I had a IV line already to use the Ambulance driver inserted, they never gave me any fluids. Nor did they check my sugar levels after EMT drivers explained they gave me a tube of glucose gel as I my blood sugar was low reading of ..45. It was not the best day, but finding out one of my issues was good. I was rushed me out of ER after the Scan looked ok! Which I understood, they needed a bed.
Scott hope you doing better. I pray everyone is! Thank you each for explaining your issues and enlightening all of us here. Your each one highly appreciated. Thank You.
Sorry so many post everyone!

Also, this is my 3rd. Time having C-Difficile. Cannot take much of anything I have Bile reflux after loosing my Gallbladder and Gastritis and having a Hiatal Hetnia. I get the C-Difficile In my Stomach first, terrible pain on left side like a fist punched me in my stomach area, then rumbling comes on full force. Horrid pain! Extreme fatigue, tachycardia when I sleep and awake for even 1 hour. Taking Florastar, #VSL 3, L. Rhaminosus, Bio-K, Natren...nothing is helping. On last ER visits with the C-Difficile they did not believe I had C-Difficile because I do not have Diarrhea. Been severely ill for 2+ years! I also have a Fractured Spine that was finally discovered in September of 2018, original MRI was misdiagnosed as a herniated disk 2+ years ago now! PCP never informed me of a X- Ray that showed my Fractured Spine in August of 2017. Have been misdiagnosed with my Uterine Fibroid for well over a year now with all sorts of other issues...I have had to see over 15+ Physicians and 7 ER visits, 4 CT with No dyes, until the December visit at the hospital they did the CT with contrast dye and it showed 1-large fibroid.

Please leave any information you might have on C-Difficile infections , thank you! I have many issues and C-Difficile seems to be a huge one for me. I get Constipation. I am simply terrified of my outcome on treatment. As I am older. And need Surgery for a Fribroid in my Uterus. I am past menopause age by 15 + years! Have C-Difficile after taking 3 Ceftin Antibiotic pills . Sincerely any information is highly appreciated. I have been ill for month and I am very weak right now.

@pines I hope I have things under control at home. We’re doing everything the nurses said to do. I think I was diagnosed early, hopefully. I have no diarrhea and feel fine and am wondering about going out in public. I’ve been looking online and did find that kids can go to daycare 24 hours after diarrhea has stopped. And it also said that the daycare doesn’t have to be informed the child has it. That part surprised me. I’m assuming if a child can go out, an adult should be able to. I’m glad to hear your family members didn’t get sick! Thanks for replying to my post.

@sandyrb Sounds like you will have control of things at home. Hand washing and using bleach or Clorox wipes is the key. In 2018, I went through 4 bouts of Cdiff. The first med they gave me, Flagyl, did nothing to kill the Cdiff spores. The second relapse, I was given Vancomycin for 10 days. The third relapse, I did the Vanco taper and I was great for 3 weeks before my 4th relapse. I was then given Dificid for 10 days. Deficid only kills the Cdiff spores and does not affect the good bacteria. I think part of my problem was Cdiff really took over my body with the first episode. I had never even heard of Cdiff and I thought I had the flu. Then I thought I had Ecoli because the romaine lettuce outbreak was at the same time. So I went for almost two weeks before seeking medical attention. It wasn't until I got on line and read some of the side affects from the Clindaymicin I had taken for a sinus infection, did I put two and two together. My husband and family members were around me during all four episodes and they never got sick. The key is hand washing and keeping things clean. I even wiped down the light switches, spray cans, toilets... you name it. And remember hand sanitizer does not kill Cdiff spores. It's a difficult infection and they told me the percentage of relapses went higher with each episode. I finished Dificid on Oct. 26th and I wish I would have taken it earlier. i realize the cost is so high that they want to try other meds first. I pray the Vanco works for you. My GI also has me taking Florastor daily. Take care.

I just joined and am not sure this is how I post something or not. Anyway, Monday early morning I started having very watery diarrhea. I have an ileostomy (for 36 years). It continued all day and I called my gastro Dr and was told to go to the ER. I was dehydrated and started IV fluids. After one bag they decided to admit me. When I got to my room the dr there wanted a stool sample to test for many things (27 actually). My C.diff test came back positive. I had been on amoxicillin for a week (ear infections, bronchitis, sinus infection all at the same time), didn’t get better and was put on another antibiotic which didn’t get rid of everything and then was on augmentin for two weeks. When I got the diarrhea I’d been off antibiotics for one week. I didn’t have any pain or fever with C.diff, just diarrhea. I was started in vancomycin liquid orally and given a regular dinner. The diarrhea had started to decrease during the day and was gone by the middle of the night, I had breakfast this morning and was dismissed from the hospital with a prescription for vancomycin capsules. I feel fine, just very tired from lack of sleep in the hospital. From what I’ve been to,d by nurses I’m at an advantage by having the ileostomy because I didn’t have to keep running to the bathroom. Just had to empty the bag more frequently. It also contains the spores to some extent. I’m so hoping the vancomycin continues to work for me. My biggest concern now is passing C.diff on to someone, but my husband cleaned with bleach wipes before bringing me home and we’re very diligent about washing hands with soap and water. I see my gastro Dr when I finish round of vancomycin and they will do a repeat test.

@ngarriso You are so welcome. And please give us an update after your appointment. Take care.

.I agree with you ...I think its back, I am anxious for the specialist appointment. Ill look into the medicine mention you Thank you for your kind words.. Happy Holiday