Trying to recover from a c. diff infection (Clostridium difficile)
I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc...Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea..... My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well..... I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep...... Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5'7")... I am thinking it might be sibo, or candida but cannot find a dr. to test for these....I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle.....
Thank you, Scott
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@pines YIKES! If it works - I would feel better - I would for sure pay the money...Waiting to hear from the Dr. is killing me.
@femalegolfer Yes, Vanco is also expensive. Dificid was over $4,000 for 20 pills. My co-pay was $900. I was shocked.
@pines .. i am taking the probiotic like you had suggested. I actually do feel better and not as bloated and not nearly as many trips to the bathroom. My results just came in this morning, i can view them online and i haven't heard from my Dr. yet..
So I'm not sure what their suggestion will be. The vanco cost my insurance $850... I thought that was ridiculous! I wanted to hear from you and research before the Dr calls. Thank you!
@femalegolfer I would ask to see a GI right now. The vancomycin didn't work for me either. I did the 10 days first and then I also did the vanco pulse & tapper for 6 weeks. I was good for 3 weeks after that. But then I had my 4th relapse and that's when I asked for Dificid (fidaxamicin). I had a friend who had taken the Dificid after her second Cdiff and it worked for her also. It's pricey and I'm sure that's why they wait and try other meds first. You also should be taking S. Boulardii. It's a probiotic that goes straight to the colon and it's not dissolved by the acid in your stomach. If you just tested positive again, what's the plan your doctor wants you on?
@pines. Took my 10 day on vanco, retested and still positive! Haven't heard from Dr yet to see what next round might be.. when should i ask to be referred to a specialist??
Hi Tammy,
My 4 year old daughter just tested positive for C Diff......We are a little over 1 week past her first 14 day flagyl regimen and the diarrhea has returned. I am getting very concerned. I am from North Alabama too, so Huntsville is just right down the road for me, does the doctor you mentioned accept patients as young as 4? Additionally, does anyone else have any experience/advice for someone with a 4 year old kid with C Diff?
Why the fungle meds
@femalegolfer During my last Cdiff episode, which was last October, I lost 10 pounds in two weeks. After taking Deficid, it cleared up the Cdiff however, I gained the 10 pounds back during the holidays.
Am I the only that has gained weight during my 8 month or so bout of C-diff, it did not get diagnosed until this week, but I've been battling diarrhea every day but I feel like my stomach has this hole in it and I'm just starving all the time. I'm currently on Vanco - 2 days in and my bloating is better, but still not great and I'm still starving!
Had c diff, after taking clindamycin, was treated with flagyl which cleared up the c diff, however still had intestinal & bowel problems. Everything returned to normal after taking prescription anti fungal diflucan twice, one week apart. Doing great.
Note: bowels had not been quite right for about three months prior to taking clindamycin.