Hyperparathyroid - questions about surgery

Posted by ivytrail @ivytrail, Wed, Oct 16 3:06pm

Are there surgeons at Mayo who do the minimally invasive surgery that looks at all 4 parathyroid glands? I'm specifically wondering about whether they test the hormone output of each individual gland during surgery, or do they just remove one and check the blood level of pth to see if it's gone down? Has anyone that has had Dr. Leyden as their surgeon like to share what their experience was like?

Hi @ivytrail and welcome to Connect. If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://mayocl.in/1mtmR63

Appointment schedulers will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

@hopeful33250 has experience with hyperparathyroid and may be able to share her experience and offer you support.

Back to you @ivytrail how are your symptoms at this time?

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Hello @ivytrail. I would like to join Ethan, @ethanmcconkey, in welcoming you to Mayo Connect. While I have not had parathyroid surgery yet, I do have hyper parathyroid problems including bone pain, osteopenia, fatigue, low levels of Vitamin D, etc. As Ethan mentioned, would you care to share what your symptoms are?

We have some existing discussions on Connect regarding this topic. Here you can meet others who have this disorder, many of whom have had the surgery,
https://connect.mayoclinic.org/discussion/elevated-parathyroid-hormone-pth/. I would like to invite @sennertd, to post with you about her experiences with this surgery.

Here is some general information regarding hyperparathyroidism from Mayo's website, https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194.

As you are interested in minimally invasive surgery, I thought you might find this interesting as it talks about this focused parathyroidectomy at Mayo,
https://www.mayoclinic.org/medical-professionals/endocrinology/news/role-of-focused-parathyroidectomy/mac-20431037

Do you currently have an appointment with Dr. Leyden at Mayo?

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Thanks so much for your posts and helpful info. I have the classic elevated Calcium and pth, but no symptoms except for osteoporosis. Primary Dr. was willing to hold off on bone meds for the last 4 years, my worst T- score was -2.6 at the right femoral head. I started resistance training/weight lifting 4 years ago and Dexa was holding steady. However, most recent Dexa a week ago: lumbar T- score went up to -1.1, right femoral down to -2.8, left femoral held steady at – 2.5. For the first time, my forearms were checked and were -3.7 & -3.8. Calcium has been 10.2- 10.9 over the last 5 years but now is 11. Pth was 62 in 2017, now is 75.
From what I'm reading, this sounds like primary hyperparathyroidism.
My primary Dr said to get an Endo consult, which of course I want. But I'm also researching surgical methods and medical centers that do high volume parathyroid surgeries in case I need it. I would be interested in hearing from people who have had this surgery at Mayo.
I don't have any appointments yet, this developed last week.
Thanks in advance for sharing!

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Have you posted with @sennertd (I mentioned her in my post above)? She has had surgery. Perhaps you read her posts already. If not, just click on her name (with the @sign) and then read her posts.
Let me know if you have any more questions. I know surgery is a major decision to make and I hope you are able to be confident that this is right for you.

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@hopeful33250

Have you posted with @sennertd (I mentioned her in my post above)? She has had surgery. Perhaps you read her posts already. If not, just click on her name (with the @sign) and then read her posts.
Let me know if you have any more questions. I know surgery is a major decision to make and I hope you are able to be confident that this is right for you.

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Yes I have messaged @sennertd seperately.

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Sorry I am so delayed in responding, I haven't been on here for a while. Dr. Leyden is an excellent surgeon, one of the best. I had Dr. Dy and was very happy but I wouldn't hesitate to use any of the Mayo Endocrine surgeons. They do only check one gland, not all 4, because of scar tissue. If they get in there and there is hyperplasia or the PTH doesn't drop, then they will continue checking. That was an initial concern of mine also, that they wouldn't check all of them, but they have research behind why they do what they do. They have the team approach at Mayo, not only consulting with other surgeons but also the endo's and any other physician if they find other problems. It is nice because the best physicians in the world are under one roof. With your DEXA scores, I would get something scheduled asap. I felt better as soon as I woke up from surgery. The pain was gone, the brain fog, the constant urination. It was unreal how fast the body recovers. I only had osteopenia and I will have a bone scan in March to see if it's gone. Fingers crossed!

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@sennertd

Sorry I am so delayed in responding, I haven't been on here for a while. Dr. Leyden is an excellent surgeon, one of the best. I had Dr. Dy and was very happy but I wouldn't hesitate to use any of the Mayo Endocrine surgeons. They do only check one gland, not all 4, because of scar tissue. If they get in there and there is hyperplasia or the PTH doesn't drop, then they will continue checking. That was an initial concern of mine also, that they wouldn't check all of them, but they have research behind why they do what they do. They have the team approach at Mayo, not only consulting with other surgeons but also the endo's and any other physician if they find other problems. It is nice because the best physicians in the world are under one roof. With your DEXA scores, I would get something scheduled asap. I felt better as soon as I woke up from surgery. The pain was gone, the brain fog, the constant urination. It was unreal how fast the body recovers. I only had osteopenia and I will have a bone scan in March to see if it's gone. Fingers crossed!

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Hello @sennertd, thank you for responding to @ivytrail. I'm glad to hear that your surgery was so successful! You must be relieved.

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