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How to Prepare for Life without an Ileocecal Valve
My SB NET is next to the ileocecal Valve that is between the small and large intestine. They plan to remove it (and adjoining intestine, mesentery, nodes) in Sept.
I understand that living without that valve presents its own challenges. Also, I will probably not be living close to home for some weeks after surgery, nor will I have a continuous helper around after the first few days. So I'm trying to prepare in advance.
Can anyone give me an idea of what the experience is like, what issues you've come up against and solutions you found helpful?
Many thanks!
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My major tumor that was surgically removed in May of 2025 included short sections of both the small and large intestines and the valve. The surgeon explained that without the valve, it was possible for the small intestine to dump its contents into the large intestine without notice. That has not happened in the 15 months following surgery, and bowel movements have been better than ever in my adult life. The urologist I had, a man never given to compliments, watched the entire operation and said it was the most artful procedure he'd ever seen and a spectacular success. I loudly applaud the 32-year-old surgeon for his skills and talents.
I realize I am still a newcomer in the NET medical journey and that the situation can change rapidly, but 15 months of not only trouble-free, but applaudable performance is appreciated. Good news should be shared as often as possible.
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