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How to get appointment
I have caspr2 antibodies, and tried to get an appointment and was turned down.
Do you need a referral?
I know that the Dr that identified the Caspr2 is in Jacksonville. It is a rare condition according to my Dr in Mississippi, and few know how to treat it.
Anyone have an idea of what I need to try?
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@diane694,
It can be frustrating when receive a denial letter, no matter what reason. It sounds like you self-referred yourself. You can also ask your provider in Mississippi to do a referral and provide medical records.
See: https://www.mayoclinic.org/medical-professionals/provider-relations/refer-patient
I see you also asked about suggestions for providers in Autoimmune group. Hopefully you will get additional recommendations there.
If you are not successful getting an appointment at Mayo, have you considered an university medical center near you?
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2 ReactionsMy daughter has been denied also, Urologists. My insurance care manager suggested anyone can go to the Mayo Clinic ER. Although an appt would be great. Sadly the appt process requires patient to go to one discipline. This has been her problem. The symptoms are urological but urology refuses to do anything about it. This is why we are going to Mayo Clinic because we don't know what is wrong. We have suggestions from urologists what they suspect this might be but we keep getting kicked back. We need the Mayo whole-body approach to help determine what is wrong, maybe this is infectious disease or auto immune or nephrology and results in urological symptoms. Therefore we are going to the Mayo ER and ask them for help. I did not know you could go to the ER. Maybe this will help you also.
@bonbon2006
Welcome to Mayo Connect. I am sorry for situation you are in with daughter, but I do not agree with your insurance carrier about just going to Mayo's ER for help. At ER, you will be triaged briefly to determine urgency in seeing a provider in ER. If ER is busy, and you're not an emergency, you will wait. Showing up at ER is not a guarantee of getting an appointment at Mayo, you may be told to follow up with your own provider.
In addition, you are taking resources away from emergency's (heart attacks, stokes, trauma, etc...) .
Is your daughter a minor or adult?
Did your providers do a referral to Mayo or did you request appointment on your own?
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1 Reaction@diane694 and @bonbon2006, it sounds like you have taken the right steps to request an appointment at Mayo Clinic. Mayo Clinic has more requests for appointments than available openings,. Some steps you may consider:
Ask your doctor to submit a physician referral on your behalf.
Request an appointment at another Mayo Clinic location.
Another option is to consider seeing a doctor within the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network.
"The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. Carefully vetted and selected for their commitment to high-quality patient experience, care network members share Mayo Clinic's goal of providing patients the care they need, close to home, at no additional cost to the patient."
Find a health system in the Mayo Clinic Care Network near you: https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members