Connect
How Do You Handle Post-Treatment Anxiety?
Panicky anxiety has been building since completing eighteen months of Orgovyx three weeks ago. I suppose I'm being impatient and unreasonable regarding recovering energy and strength after being suppressed for so long. When issues come up, I tend to try taking frantic immediate action, sometimes not well advised. Today, I rebuilt a toilet that I was certain had started running constantly, only to figure out hours later that the plumbing noise wasn't the toilet but rather a nearby faucet outside running to water the yard manually due to a sprinkler zone failure which hopefully I'll finish repairing tomorrow. Whenever I think of something to do, I try to work on it immediately. My wife said this evening, "You need to calm down! It's as though you think you're running out of time." And of course since I'm still basically out of Testosterone, I tend to get sad and teary over nearly anything. Any fellow sufferers out there? I really don't want to ask for anti-depressants because I'm one of those people who needs megadoses of most anything to be effective. Fortunately, I've been working with a counselor for a few months, but this is getting a bit crazier than usual. The topic of a recent Ancan.org session was "fear of recurrence," and I wonder about getting cancer back but not energy. Thanks for whatever help you can offer.
Like
Helpful
HugInterested in more discussions like this? Go to the Prostate Cancer Support Group.
Connect
Give it a little more time. Although Orgovyx is suppose to be much faster testosterone recovery after stopping you were on it a long time. I think once you start to recover your 'T" you will feel like a new "MAN". Exercise, weight lifting, etc helps. Hang in there and wishing you a fast recovery!!!
-
Like -
Helpful -
Hug
5 ReactionsDid you see the study I posted Showing that it takes 86 days for about half people to get back to 280 testosterone. You really are pushing it.
As you probably know it takes longer for somebody that’s been on it longer, this study was for 48 weeks of treatment.
the HERO study, relugolix demonstrated sustained testosterone suppression superior to that of leuprolide acetate (97% vs 89%; difference 7.9% [95% confidence interval, 4.1–12%; p < 0.001]).
Men (N = 934) were randomized (2:1) to receive relugolix 120 mg orally daily or leuprolide acetate injections every 12 wk for 48 wk.
Overall, 74 of the 137 men in the relugolix cohort recovered to testosterone >280 ng/dl, with a median time to recovery of 86.0 d (95% CI, 65.0–92.0), versus two of the 47 men in the leuprolide cohort, with a median time to recovery of 112.0 d
https://www.sciencedirect.com/science/article/pii/S2588931123002900
Even with your testosterone back, you’re still going to have some of this frustration. My wife commented today about the fact that I am always trying to do things quicker. I figure out the fastest easiest way to do many things. Maybe it’s related to my testosterone reduction. I don’t know. I think I’ve always been that way. I will however think over a repair project, so I have thought of most of the options and don’t rush into it. There’s frequently more than one way to do something.
-
Like -
Helpful -
Hug
6 Reactions@jeffmarc Thanks. Both reassuring and a strong reminder. Hitting 75 in another month, I'm just hoping I'm one of the elderly minority in whom Testosterone actually comes back. I'll keep pushing myself with exercise and daily activities toward that end. I'm frustrated with my urologist. I sent him a video link for a Stanford doctor's presentation, "Penile Rehab," in which he said they prescribe Viagra alongside daily Cialis as standard protocol. He responded with an Rx and "that's common," but never suggested it as part of my treatment. My wife commented that's it's as though they assume you don't care about sex any more.
-
Like -
Helpful -
Hug
2 Reactions@jime51 I can relate! My garden is your plumbing😉.
When my wife asks me why I am frantic to plant as much as I can, as fast as I can, I tell her that I am running out of time.
I’d like to see it ‘finished’ but that never happens if you garden. At age 72, after 2 bouts with this shit I do feel the hourglass is filling up…on the bottom!😳. Hang IN!!
Phil
-
Like -
Helpful -
Hug
6 Reactions@heavyphil I'm trying to remember which auto manufacturer it was, I think Toyota or Lexus, that used the statement, "We.Are.Driven." but that's exactly how I feel. This is my first round of diagnosis/treatments, but I'm a month from 75 so I know I'm playing in the last quarter and acting like I'm using my 2 minute drill while hoping I'm not into sudden death period yet. 🙂 When I retired 7 years ago, my goal was to have home and vehicles in excellent shape so when I passed the load on my wife would be a little lighter, and there's always something else that needs doing. I intend to keep fighting. Blessings to you as we travel this journey together!
-
Like -
Helpful -
Hug
3 Reactions