How do I request a VA referral to Mayo Clinic, Jacksonville?

Posted by sooner65 @sooner65, 2 days ago

I'm a 59-year-old Army veteran recently diagnosed with prostate cancer at the VA hospital in Augusta, GA. My PSA levels rose rapidly from 3.72 to 5.76 (a 55% increase) over six months, which led to a biopsy. Five of eleven cores were positive for cancer, and focal perineural invasion (PNI) was present.
When I went to get my biopsy results, I only spoke with a Physician's Assistant (PA) – no attending urologist was available. I asked about getting additional imaging, like an MRI and/or PSMA PET scan, to get a better understanding of how far the cancer might have spread, but my request was denied. I also asked for a second opinion on the pathology report to confirm the Gleason score and staging, and that was also denied.
The PA only mentioned radiation and surgery as treatment options, and all they gave me was a website link to do my own research. They recommended a radical prostatectomy but couldn't answer any of my questions. I have another appointment coming up soon where I'm supposed to tell the VA urology clinic which treatment I want to pursue. I still haven't been able to talk to an actual urologist about my diagnosis.
Honestly, I'm not happy with the care I've received so far. I'm not comfortable making a huge decision like this based just on a PSA score from August and a biopsy report. Because of this, I want to get a second opinion and explore other treatment options at the Mayo Clinic - Jacksonville through the VA Community Care Network Program. The problem is, I don't know anything about the VA/Community Care referral process. I'm hoping someone on this forum can give me some information about how it works. Any advice or tips you've learned would be really helpful.
Thanks

Psalm 27:1

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

If you don’t get the Answer here I know you can get it from the following source.

Go to Ancan.org They have multiple different meetings for prostate cancer. Patients can talk about their issues.. They have an Under 60s group and a group for veterans that can really help with getting medical support.

Colonel Jim Marshall runs the veterans group and loves to help people get the medical treatment they want and get it paid for. The next schedule veterans group is the 18th at 8 PM Eastern.

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@sooner65, here some information more about the VA Community Care Network: https://www.va.gov/COMMUNITYCARE/index.asp

Mayo Clinic expanded its commitment to serving veterans by participating in VA Community Care Network in August 1, 2020. Read more here: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-expands-commitment-to-serving-veterans-by-participating-in-va-community-care-network-beginning-august-1-2020/

I recommend contacting Mayo Clinic in Jacksonville, Florida to ask about the process for VA referrals. You can submit a request online for a coordinator to call you or simply call directly when it is convenient for you. See the online form and phone number on this page http://mayocl.in/1mtmR63

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@colleenyoung

@sooner65, here some information more about the VA Community Care Network: https://www.va.gov/COMMUNITYCARE/index.asp

Mayo Clinic expanded its commitment to serving veterans by participating in VA Community Care Network in August 1, 2020. Read more here: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-expands-commitment-to-serving-veterans-by-participating-in-va-community-care-network-beginning-august-1-2020/

I recommend contacting Mayo Clinic in Jacksonville, Florida to ask about the process for VA referrals. You can submit a request online for a coordinator to call you or simply call directly when it is convenient for you. See the online form and phone number on this page http://mayocl.in/1mtmR63

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Colleen…thank you for the information. Much appreciated

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I’m a Vietnam veteran and was exposed to Agent Orange. My PSA doubled in one year. It went from 2.1 to 4.2. My VA PA told me not to worry because it was still in the acceptable range of 4 - 10. However, I sill was quite concerned! Fortunately, I have Medicare insurance and a civilian doctor too. My civilian doctor was concerned because my PSA doubled in one year. I had a biopsy test and 6 of 12 tests had Gleason scores of 3+4. Ugh Long story short, I contacted the Phoenix Mayo Clinic and had surgery. My surgery went smoothly; but, my surgeon had to cut wide to remove my cancer.
Good luck getting into the Mayo Clinic. They have excellent doctors.

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Excellent Question. I am a 70+ Vet with Advanced Prostate Cancer Stage 4. VA Community Care has been very helpful.

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I am an US Army Veteran, but I am not part of the VA Hospital system. I have no idea how you can get a referral, but I can tell you about my experience with my radical prostatectomy. When I turned 40, thirty years ago, they just started offering PSA testing. I had numerous prostate infections over the years that started when I served in the US Army. My wife said I should get a PSA test because of my family history of prostate cancer. My grandfather at 80, my father at 65, and one of my uncle’s died in his 60’s from prostate cancer. My PSA results were 4.6 and my urologist recommended a biopsy. Three of the five cores came back positive for prostate cancer with a Gleason score of 6. I was happy that not all of them came back positive. I chose to get a radical prostatectomy over cryosurgery or radiation. I wanted a skilled surgeon to go in and see what was going on and he was skilled in doing a nerve spare operation. They didn’t have laparoscopic surgery when I had my radical prostatectomy. After the surgery my surgeon said all my cancer was contained within my prostate. Six months after surgery I regained my full sexual function, but I had constant leakage. With age my leakage got worse and 16 months ago, I had ProACT surgery and now I have no leakage. I discussed that surgery under the heading of ProACT in this form. I hope this is helpful.

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@garyretiredstatecop

I am an US Army Veteran, but I am not part of the VA Hospital system. I have no idea how you can get a referral, but I can tell you about my experience with my radical prostatectomy. When I turned 40, thirty years ago, they just started offering PSA testing. I had numerous prostate infections over the years that started when I served in the US Army. My wife said I should get a PSA test because of my family history of prostate cancer. My grandfather at 80, my father at 65, and one of my uncle’s died in his 60’s from prostate cancer. My PSA results were 4.6 and my urologist recommended a biopsy. Three of the five cores came back positive for prostate cancer with a Gleason score of 6. I was happy that not all of them came back positive. I chose to get a radical prostatectomy over cryosurgery or radiation. I wanted a skilled surgeon to go in and see what was going on and he was skilled in doing a nerve spare operation. They didn’t have laparoscopic surgery when I had my radical prostatectomy. After the surgery my surgeon said all my cancer was contained within my prostate. Six months after surgery I regained my full sexual function, but I had constant leakage. With age my leakage got worse and 16 months ago, I had ProACT surgery and now I have no leakage. I discussed that surgery under the heading of ProACT in this form. I hope this is helpful.

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Thanks for sharing your experience. It is helpful to hear others stories as we navigate through this diagnosis.

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@proftom2

Excellent Question. I am a 70+ Vet with Advanced Prostate Cancer Stage 4. VA Community Care has been very helpful.

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I am always concerned when you have to deal with Govt bureaucracy. Hopefully they agree to send a referral, or I will likely self refer.

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@jerryegge

I’m a Vietnam veteran and was exposed to Agent Orange. My PSA doubled in one year. It went from 2.1 to 4.2. My VA PA told me not to worry because it was still in the acceptable range of 4 - 10. However, I sill was quite concerned! Fortunately, I have Medicare insurance and a civilian doctor too. My civilian doctor was concerned because my PSA doubled in one year. I had a biopsy test and 6 of 12 tests had Gleason scores of 3+4. Ugh Long story short, I contacted the Phoenix Mayo Clinic and had surgery. My surgery went smoothly; but, my surgeon had to cut wide to remove my cancer.
Good luck getting into the Mayo Clinic. They have excellent doctors.

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I had six PSA tests from Feb - Aug 2024 starting at 3.72 and rising to 5.76 over 6 months. These tests weren’t because they were looking for signs of prostate cancer. They were actually checking my low platelet levels. It was the hematologist who told me about my rising PSA levels and advised that I see a urologist. Once I was able to see a P.A. they finally conducted a biopsy in Jan 2025. And here we are. Just not happy with the level of care I have received thru the VA so far. 😕

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I understand completely. The VA handles all kinds of health issues. After my surgery at the Mayo Clinic, the VA wanted my medical records. They setup an appointment with private healthcare office to assess my after surgery condition.
The VA presumptively said my cancer was caused by exposer to Agent Orange when I served in Vietnam. They recommended I filed for disability; now get a check every month. I’m grateful to the VA for helping me out.

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