1. < Liver Cancer

Has anyone out there tried Histotripsy for tumors in the liver?

Posted by ssf @ssf, Aug 27 12:09pm

Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance pay for it, or did you have to come out of pocket for the procedure?

Interested in more discussions like this? Go to the Liver Cancer Support Group.

kim1965 | @kim1965 | Sep 1 7:53am
In reply to @ssf "Thank you both for the feedback, wouldn't you know it I have 5 tumors. Yes, my..." + (show)
@ssf

Thank you both for the feedback, wouldn't you know it I have 5 tumors. Yes, my local Net specialist here in Dallas has recommended I look into it. While it's a new treatment he suggested I speak with another Net specialist in Denver as this Dr is now performing Histotripsy. I am scheduled for an MRI and ultrasound in Denver the third week of September and based on those findings I will find out if I am a good candidate.

Jump to this post

Highly recommend Dr.Lui in at Rocky Mountain Cancer as he o ly works on NET.

REPLY
ssf | @ssf | Aug 31 4:02pm
In reply to @hopeful33250 "@ssf I'm glad to hear that you will having another consult for this procedure. Will you..." + (show)
@hopeful33250

@ssf

I'm glad to hear that you will having another consult for this procedure. Will you be seeing Dr. Liu?

I look forward to hearing from you again. Will you post with any questions and especially after your appointment? I'd be interested in hearing if you are a candidate for Histotripsy.

Jump to this post

Yes, I will be meeting with Dr. Liu and will update you when I know more.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 31 10:38am
In reply to @ssf "Thank you both for the feedback, wouldn't you know it I have 5 tumors. Yes, my..." + (show)
@ssf

Thank you both for the feedback, wouldn't you know it I have 5 tumors. Yes, my local Net specialist here in Dallas has recommended I look into it. While it's a new treatment he suggested I speak with another Net specialist in Denver as this Dr is now performing Histotripsy. I am scheduled for an MRI and ultrasound in Denver the third week of September and based on those findings I will find out if I am a good candidate.

Jump to this post

@ssf

I'm glad to hear that you will having another consult for this procedure. Will you be seeing Dr. Liu?

I look forward to hearing from you again. Will you post with any questions and especially after your appointment? I'd be interested in hearing if you are a candidate for Histotripsy.

REPLY
1 reply
ssf | @ssf | Aug 31 9:50am
In reply to @hopeful33250 "Hello @ssf I see that you are interested in learning more about Histotripsy. On Connect, there..." + (show)
@hopeful33250

Hello @ssf

I see that you are interested in learning more about Histotripsy.
On Connect, there is a discussion group about this treatment. Here is a link to that discussion,

--Histotripsy
https://connect.mayoclinic.org/discussion/histotripsy/
In this discussion, you will meet @retiredinkazoo who has discussed this with his medical team at University of Michigan.

The first Thursday of each month, there is a NETs support group that meets online via Zoom. It originates from Mayo Clinic in Jacksonville, FL. I would encourage you to look for the meeting notice and join. There is a time for members to discuss their treatment and ask questions. This might be a good way to get some more information. Here is a link with information about registering for the meeting on Thursday, September 5.
https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-16/
What does your oncologist say about trying this treatment?

Jump to this post

Thank you both for the feedback, wouldn't you know it I have 5 tumors. Yes, my local Net specialist here in Dallas has recommended I look into it. While it's a new treatment he suggested I speak with another Net specialist in Denver as this Dr is now performing Histotripsy. I am scheduled for an MRI and ultrasound in Denver the third week of September and based on those findings I will find out if I am a good candidate.

REPLY
2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 30 3:01pm

Hello @ssf

I see that you are interested in learning more about Histotripsy.
On Connect, there is a discussion group about this treatment. Here is a link to that discussion,

--Histotripsy
https://connect.mayoclinic.org/discussion/histotripsy/
In this discussion, you will meet @retiredinkazoo who has discussed this with his medical team at University of Michigan.

The first Thursday of each month, there is a NETs support group that meets online via Zoom. It originates from Mayo Clinic in Jacksonville, FL. I would encourage you to look for the meeting notice and join. There is a time for members to discuss their treatment and ask questions. This might be a good way to get some more information. Here is a link with information about registering for the meeting on Thursday, September 5.
https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-16/
What does your oncologist say about trying this treatment?

REPLY
1 reply
kim1965 | @kim1965 | Aug 29 6:44am

It is also approved for 4 tumors or less. My wife has around 10-12 so we didn’t consider it for that reason also. There are some trials going on with it for more than 4 tumors currently. TBD

REPLY
kim1965 | @kim1965 | Aug 28 12:43pm

We looked into for my wife, but our medical team is not comfortable trying it as there is little history on its success being just approved by FDA in November 2023.

REPLY
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