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High TSH,High Glucose and low carbon dioxide in blood
I have had an illness for the last two years and no one can figure it out.I have had thyroid disease for years and have been on 50 mg of synthroid to treat it.A neurologist I am seeing thinks I might have a metabolic neuromuscular disease.He ran a genetic test,but the results have not come back yet.The blood tests he recently ran show slightly high TSH,glucose and my carbon dioxide in blood is low.I have trouble walking,swallowing,talking can get slow,extremely dry,painful squinty eyes that can barely be in the sun,weak trunk of the body,legs and arms.My upper arms and thighs are big and inflamed and feels like stinging or burning.No Gag reflex and my muscles in my face don't work properly.Smiling,laughing,crying are not normal because I have lost the strength.Loss of strength in the diaphram/stenum and I can feel myself touching my belly,but have lost most of sensation in my belly.It is like everything dissapeared and I had such a sensetive stomach before all of this came on.I was checked for gastroparesis, but I do not have it. I had mentioned to my Doctor ALS or Myasthenia Gravis,but the doctor told me it is not that.I have had pretty much every test you can imagine including long covid and they are not finding much.I do have a feeling the iron infusion/possibly covid and years of anemia could have contributed to this since my body was probably so tired.I worked in healthcare before this happened and I knew I was extremely tired,but I just cobtributed it to working through the pandemic.My symptoms all stemmed from an iron infusion for heavy periods for years.5 days later I had a reaction and was never the same.I eventually lost all strength in the trunk of my body 6 months after the infusion.I was bedridden for months,but can walk again.It is still not normal because I don't have the strength I'm the trunk of my body,I am just wondering if anyone has seen anything similar to this or knows of a metabolic muscular syndrome that could bring these symptoms on.
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Hello j77, I'm so sorry to hear of all of the challenges you have endured. I have had some similar symptoms as you and was just recently diagnosed with Celiac Disease, though I had no GI symptoms. They test for this first with blood work (auto-antibody testing) and then finally with an endoscopy and biopsy of the small intestine. I had suffered with many muscular and neurological symptoms for the past twelve years (including bouts of paralysis) and seen many neurologists, rheumatologists, etc. Finally during a hospital visit a hospitalist physician threw in a Celiac panel for kicks (and I eventually got to see a GI specialist who confirmed that I have Celiac Disease). CD can act like so many different diseases and has over 200 symptoms. Just throwing that out there in case you have not been tested for that. Again, I'm so sorry for all that you are going through and hope that you find answers soon!
@j77 you certainly have a conundrum of stuff going on. I’m sorry that I’ve got nothing for you but I was wondering since this discussion is appearing in the Diabetes & Endocrine Systems group if you have seen an endocrinologist to rule out those type of conditions?
Thankyou for responding.I just had some blood work done through my neurologist which showed high glucose,low carbondioxide in blood and slightly high TSH.I am going back to the endricinologist.He ordered some more bloodwork before I meet with him.I do have so many symptoms.I just don't know what this is.I asked my neurologist if it could be ALS and he told me no.All my symptoms came on days adter that iron infusion.Maybe it is just a coincidence,but maybe not.I thought there was a possibility covid was involved too,but I tested negative for long covid.Right before I had my reaction and before my symptoms came on I was walking on the biketrail in the heat and sun the day before and the day of my reaction it was hot.The sun and heat must have aggravated or brought on whatever I have full force.
Thankyou so much for responding!I will look into celiac disease more.I know the GI Doctor only saw constipation and sibo,but I would not be surprised if I have celiac disease.I remember before I was diagnosed with Thyroid disease years ago I had leaky gut syndrome and it was horrible.I felt like I was being poisoned every time I ate.My stomach is definitely involved.The intestines are not working properly,tons of gas and loss of sensation.I asked the doctor If I had Gastroparesis because of these issues and he told me no.I wonder if celiac disease can affect the spine.I just feel like my body is dying because the muscles and nerves are not working properly.The connection was lost some how.It is so weird.