Who else is HER2 positive?

Posted by zeerj @zeerj, Oct 9, 2022

Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.

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Profile picture for regina59 @regina59

It was in the middle of chemo of all those as well as chemo treatment for the hormone positive cancer in the left breast. I began chemo in July 2015, had bi-lateral breast surgery in December 2015 and finished with the chemo in August 2016. To repeat, I have had no recurrence of the HER2. However, the chemo never completely cleared away the cancer in the left breast which metastasized to the liver. The lesions have been removed by microwave ablation and I am in a really good place.

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P.S. I am eighty-five and thriving

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It was in the middle of chemo of all those as well as chemo treatment for the hormone positive cancer in the left breast. I began chemo in July 2015, had bi-lateral breast surgery in December 2015 and finished with the chemo in August 2016. To repeat, I have had no recurrence of the HER2. However, the chemo never completely cleared away the cancer in the left breast which metastasized to the liver. The lesions have been removed by microwave ablation and I am in a really good place.

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Profile picture for regina59 @regina59

I had HER2 positive in the right breast, twelve cancerous lymph nodes and hormone positive in the left breast concurrently, in 2015-2016. The hormone positive is still giving me trouble by metastasizing to the liver. The HER2 was treated with the miracle drugs by chemo. I had NO RADIATION and did not take cancer drugs after that until reoccurrance of the hormone positive in the left side. So far so good.

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For the Her2 positive breast did you have taxol, Herceptin and perjeta followed by a lumpectomy but no radiation or Herceptin after surgery?

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I had HER2 positive in the right breast, twelve cancerous lymph nodes and hormone positive in the left breast concurrently, in 2015-2016. The hormone positive is still giving me trouble by metastasizing to the liver. The HER2 was treated with the miracle drugs by chemo. I had NO RADIATION and did not take cancer drugs after that until reoccurrance of the hormone positive in the left side. So far so good.

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Wishing you well in your treatment

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Profile picture for maggieb892 @maggieb892

I was diagnosed with HER 2 in June of 2021, stage 2. I was treated with Pacitaxol and Herceptin and Perjeta for 12 weeks followed by a mastectomy and 19 radiation sessions. Because there was a small amount of cancer left in the removed breast tissue, I had 14 infusions of Kadcyla (every 3 weeks). I'm finished with treatment, my port is out and C T scan showed no cancer present. I know that my positive attitude and support from friends and family got me through the dark times. I tried to laugh every day even through the treatments. I was able to continue eating well (extra protein) and walk. Walking was my mental therapy. I have met many wonderful strong women in my support group. We can do this!

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Thank you! Your journey seems similar to mine with same treatment. I wish you and all to continue be cancer free. I had positive lymph nodes left when they removed them thus will be doing 14 cycles of TDM1. I meet with radiation dr next week to go over treatment plan.

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I end chemo and radiation a year ago. I had a lumpectomy and 2 lymph nodes removed.. I'm 81 and doing well. I have to get a mammogram soon, but my surgeon said I don't need to come in for a visit until a year from now. I see the oncologist every 4months. I read an oncologist said that if she got breast cancer HERpositive would be the "best" kind to have because it can be targeted with Herceptin.

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I was diagnosed with HER 2 in June of 2021, stage 2. I was treated with Pacitaxol and Herceptin and Perjeta for 12 weeks followed by a mastectomy and 19 radiation sessions. Because there was a small amount of cancer left in the removed breast tissue, I had 14 infusions of Kadcyla (every 3 weeks). I'm finished with treatment, my port is out and C T scan showed no cancer present. I know that my positive attitude and support from friends and family got me through the dark times. I tried to laugh every day even through the treatments. I was able to continue eating well (extra protein) and walk. Walking was my mental therapy. I have met many wonderful strong women in my support group. We can do this!

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I was diagnosed as HER2+ at first, then two other hospitals got equivocal then negative by further FISH testing. I was troubled and saw another doc who tested more cells (60 instead of 20) and got a negative but it was close to the line for positive. My tumor was mixed and ductal part was HER2+, lobular part was negative. I still worry!

During that time, I was also told that Herceptin and Perjeta were miracle drugs and that people with HER2+ were doing well. The treatment isn't easy but is hopefully reassuring. Good luck!

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I was diagnosed almost four years ago with triple positive breast cancer.

I had chemo, H/P, lumpectomy, radiation and now on Arimidex I’m doing very well three years later.

Having Her2+ is not the diagnosis it once was. Herceptin and Perjeta are miracle drugs. ♥️🙏♥️

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