1. < Breast Cancer

Who else is HER2 positive?

Posted by zeerj @zeerj, Oct 9, 2022

Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

resort | @resort | Jun 15, 2023
In reply to @cathybrown98 "I have Her2. Diagnosed in September. bi lateral early December w/ reconstruction. All kinds of problems..." + (show)
@cathybrown98

I have Her2. Diagnosed in September. bi lateral early December w/ reconstruction. All kinds of problems causing 5 more surgeries. Chemo every 3 weeks and oral chemo pill daily. I was told no radiation, Reconstruction removed 3 times. and the left side still isn't healed, My 'cures' were far worse than the disease.

Jump to this post

So sorry to hear. Reconstruction causes problems I heard. I opted out reconstructions. All the best for you and hope from now on every “cure” will works for you! Lots of hugs…

REPLY
1 reply
cathybrown98 | @cathybrown98 | Jun 15, 2023

I have Her2. Diagnosed in September. bi lateral early December w/ reconstruction. All kinds of problems causing 5 more surgeries. Chemo every 3 weeks and oral chemo pill daily. I was told no radiation, Reconstruction removed 3 times. and the left side still isn't healed, My 'cures' were far worse than the disease.

REPLY
1 reply
sequoiatree | @sequoiatree | Jun 14, 2023

I have HER2 Positive Breast Cancer. Nipple-pagets disease, 2 ductal growths and 2 axillary nodes tested HER2+. No other lesions in body. Im 1/2 way through 6 rounds of chemo every 3 weeks- perjetta, transtuzumab,taxotere and carboplatin. The carboplatin has a national shortage so that was skipped the last round. I follow each round with an injection of neulesta to boost wbc. Preparing for double mastectomy in fall. Started OT ahead. Good luck to you and everybody on this journey. It's tough but I have good days too.

REPLY
mbhamel | @mbhamel | Jun 10, 2023

I was diagnosed stage 2b HER2+ ER/Pr- in May 2011. Had a double mastectomy. Had chemo with taxol and some others then herceptin for a year. Still cancer free. I have Side effects from the chemo of neuropathy and balance issues but overall doing great.

REPLY
resort | @resort | Jun 8, 2023
In reply to @rosy54 "I had Her2 + hr- stage 2. I only needed a lumpectomy. I was on Anastrazole..." + (show)
@rosy54

I had Her2 + hr- stage 2. I only needed a lumpectomy. I was on Anastrazole for 5 yrs It’s been 7 yrs now I feel fine except my memory is shot. I’m 68 worried about dementia I may have now due memory loss. Though I read others alike having memory problems blame Anastrazole. Any other thoughts on the memory loss??

Jump to this post

I add walnuts in smoothie daily hope walnut will at least help. Lots of hugs!

REPLY
rosy54 | @rosy54 | Jun 7, 2023

I had Her2 + hr- stage 2. I only needed a lumpectomy. I was on Anastrazole for 5 yrs It’s been 7 yrs now I feel fine except my memory is shot. I’m 68 worried about dementia I may have now due memory loss. Though I read others alike having memory problems blame Anastrazole. Any other thoughts on the memory loss??

REPLY
1 reply
resort | @resort | Jun 7, 2023
In reply to @chrisoula "I was diagnosed with stage 3B HER2 positive breast cancer last year these days. I did..." + (show)
@chrisoula

I was diagnosed with stage 3B HER2 positive breast cancer last year these days. I did mastectomy and found a 4cm tumor and removed 21 lymph nodes (9 of them were affected), I was very lucky and I kept the nipple. Then I did chemotherapy weekly (for 22 weeks), alongside I did immunotherapy with trastuzumab+pertuzumab. After all of these I had radiation therapy every day for 25 sessions and now continuing with immunotherapy (every 3 weeks) till is a full year since I begun. I've been doing every 3 months examinations (mostly mammograms, ultra sounds in the abdoment and breasts and chest), every 6 months we add a brain MRI and CT scans of the abdomen and a bone density measurement. So far my examinations are cancer free!!! I've been struggling with anxiety, depression and insomnia since last February. But with a little help from my friend Chemistry I'm better (antidepressants and other)! I realised that my case was serious and that I had to fight with all my heart and brain! I can say now that I am very optimistic and believe that I will be a positive case and cancer free for the years to come! I have a lot of things to do in life and I will do all of them!!! Hope I helped you and cheered you up! I wish you well and be healthy for the years coming!!! 😊🤞

Jump to this post

Lots of hugs!

REPLY
resort | @resort | Jun 7, 2023
In reply to @gina5009 "My best friend had Her 2 Nu when she was in her 50's. She was seen..." + (show)
@gina5009

My best friend had Her 2 Nu when she was in her 50's. She was seen at Stanford Medical and went through Chemo and Mastectomy, and Tamoxifin. She is now 93 and doing extremely well. Her only limitation is she no longer Drives.
Gina5009

Jump to this post

I’m the same condition. Triple Positive. Mastectomy and chemo (one drug chemo) and now on tamoxifen. Thanks for the encouraging news!

REPLY
gina5009 | @gina5009 | Jun 6, 2023

My best friend had Her 2 Nu when she was in her 50's. She was seen at Stanford Medical and went through Chemo and Mastectomy, and Tamoxifin. She is now 93 and doing extremely well. Her only limitation is she no longer Drives.
Gina5009

REPLY
1 reply
boathouse | @boathouse | Oct 26, 2022
In reply to @janisbrede "May I ask who you see at Mayo?" + (show)
@janisbrede

May I ask who you see at Mayo?

Jump to this post

I have a team established with the breast clinic, Rochester, Mayo Clinic.
Through my treatment plan I have the following:
Oncology surgeon
Dr of radiology
Plastics surgeon
Primary breast oncologist DR
All working under one roof communicating together.
Which Doctor would you be looking for?

REPLY
View MoreView Less
Please sign in or register to post a reply.