Who else is HER2 positive?
Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.
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I have HER2 Positive Breast Cancer. Nipple-pagets disease, 2 ductal growths and 2 axillary nodes tested HER2+. No other lesions in body. Im 1/2 way through 6 rounds of chemo every 3 weeks- perjetta, transtuzumab,taxotere and carboplatin. The carboplatin has a national shortage so that was skipped the last round. I follow each round with an injection of neulesta to boost wbc. Preparing for double mastectomy in fall. Started OT ahead. Good luck to you and everybody on this journey. It's tough but I have good days too.
I was diagnosed stage 2b HER2+ ER/Pr- in May 2011. Had a double mastectomy. Had chemo with taxol and some others then herceptin for a year. Still cancer free. I have Side effects from the chemo of neuropathy and balance issues but overall doing great.
I add walnuts in smoothie daily hope walnut will at least help. Lots of hugs!
I had Her2 + hr- stage 2. I only needed a lumpectomy. I was on Anastrazole for 5 yrs It’s been 7 yrs now I feel fine except my memory is shot. I’m 68 worried about dementia I may have now due memory loss. Though I read others alike having memory problems blame Anastrazole. Any other thoughts on the memory loss??
Lots of hugs!
I’m the same condition. Triple Positive. Mastectomy and chemo (one drug chemo) and now on tamoxifen. Thanks for the encouraging news!
My best friend had Her 2 Nu when she was in her 50's. She was seen at Stanford Medical and went through Chemo and Mastectomy, and Tamoxifin. She is now 93 and doing extremely well. Her only limitation is she no longer Drives.
Gina5009
I have a team established with the breast clinic, Rochester, Mayo Clinic.
Through my treatment plan I have the following:
Oncology surgeon
Dr of radiology
Plastics surgeon
Primary breast oncologist DR
All working under one roof communicating together.
Which Doctor would you be looking for?
May I ask who you see at Mayo?
Hello,
I am following many of treatment plans with HER2+ stage 3 grade 3 9/28.
Chemo prior to 3/22/22 dual mastectomy- and sentinel dissection 23 lymph nodes removed 2 affected.
Cancer free - 25 rounds of radiation, delayed reconstruction, (ok)
2 rounds of herceptin (handled easy) switched to T-DM1 and I am handling this very well.
I work, love my “new normal” and excited for the next 30 years! Doing the work and treatments are worth it! Stay positive and find your “new normal”
friends and Family and my kids treat me back to myself before cancer, I thrive off of that! Look ahead and gain strength from what we went through!!
No issues ever with depression, anxiety I am fortunate.
Reconstruction is January 2023.
I have a great team of Mayo Doctors.
Loving my life everyday!