Who else is HER2 positive?

Posted by zeerj @zeerj, Oct 9, 2022

Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.

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@colleenyoung

Hi @turbomom (love the username!), how are you doing? Have you started treatment in the meantime?

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Just saw my oncologist this morning and got the plan. Should start with Taxol and Herceptin in a couple weeks, after port placement, echo, and education lecture.
(Turbo is our tuxedo cat - moves very fast and has a loud engine!)

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@turbomom

Your experience fills me with hope. I am 81 and may start on the Taxol/Herceptin part of the treatment, but am waiting for definitive HER2 diagnosis from Mayo (a second opinion). I'm assuming it will confirm the HER2+, but have a smidgen of hope that it might not. Had a lumpectomy 3 weeks ago. I am otherwise healthy, but had DCIS - lumpectomy/radiation/Tamoxifen - in 2010.

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Hi @turbomom (love the username!), how are you doing? Have you started treatment in the meantime?

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My friend is diagnosed with Her2 positive size of a grape and was going to start with chemo then do surgery but during the contrast MRI they noticed another abnormal area and biopsied it. She also has DCIS in the same breast- lime size.
So she had to have a mastectomy which was Thursday. The plan is to start chemo when she’s healed enough. She’s 54. They did say the stage of cancer could change with the pathology. So praying it stays just the HER2 Positive and DCIS.

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I was HER2 positive at 79. I had a lumpectomy, chemo with Taxol and Herceptin, plus 6 weeks of radiation.
I'm now 82 and recently had my 6 mos. check up with the oncologist. He looked at my blood work and said he didn't expect my cancer to come back.
I had a horrible first 2 weeks with the chemo, but after the Taxol was reduced by 20 percent, I pretty much sailed through it.
I read of an an oncologist who said if she had breast cancer she would want it to be HER2 positive because with Herceptin (made from vinca) it is the easiest type to put in remission.

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I am HER2 positive and on round 5 of chemo; plan is lumpectomy after chemo, radiation after surgery, oral chemo for a few months. I'm in hell with the chemo side effects; those HER2 targeted drugs have awful side effects. I can hardly walk up the stairs now; but on a positive note, the 9 cm mass in my breast is shrinking -- doctor could feel the difference just with her hand. Good luck.

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@regina59

P.S. I am eighty-five and thriving

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Your experience fills me with hope. I am 81 and may start on the Taxol/Herceptin part of the treatment, but am waiting for definitive HER2 diagnosis from Mayo (a second opinion). I'm assuming it will confirm the HER2+, but have a smidgen of hope that it might not. Had a lumpectomy 3 weeks ago. I am otherwise healthy, but had DCIS - lumpectomy/radiation/Tamoxifen - in 2010.

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@resort

So sorry to hear. Reconstruction causes problems I heard. I opted out reconstructions. All the best for you and hope from now on every “cure” will works for you! Lots of hugs…

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I've also gotten more belly fat; top ribs seems to be sticking out more.
5/17 last of 5 surgeries since 12/1. left side still not healed. Chemo doctor wants an echo, but still painful. Anyone else?

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I was triple positive in 2014. Today, I am fine, no mastectomy. For the Her2+ aspect, I got infusions of Herceptin and Perjeta for a year; I forget the interval. I consider these two medicines miracle drugs. The Ken Burns documentary Cancer has segment on how Hercepton changed everything about Her2+ breast cancer. I didn't have any side effects that I would attribute to this treatment.

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@cathybrown98

I have Her2. Diagnosed in September. bi lateral early December w/ reconstruction. All kinds of problems causing 5 more surgeries. Chemo every 3 weeks and oral chemo pill daily. I was told no radiation, Reconstruction removed 3 times. and the left side still isn't healed, My 'cures' were far worse than the disease.

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So sorry to hear. Reconstruction causes problems I heard. I opted out reconstructions. All the best for you and hope from now on every “cure” will works for you! Lots of hugs…

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I have Her2. Diagnosed in September. bi lateral early December w/ reconstruction. All kinds of problems causing 5 more surgeries. Chemo every 3 weeks and oral chemo pill daily. I was told no radiation, Reconstruction removed 3 times. and the left side still isn't healed, My 'cures' were far worse than the disease.

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