Who else is HER2 positive?

I do, but I have endometrial cancer. I'm on Enhertu, which is given to breast cancer patients. My treatment is under the preview of a clinical testing the success of Enhertu on endometrial cancer. For me, it has been 100% successful. I'm NED. Previously I received 6 rounds of carboplatin/paclitaxel, but developed nee tumors and the ca levels rose.

I had HER2+ high and HR+ at 16% Breast Cancer , neg lymph nodes and neg margins I did a lumpectomy and Herceptin for 1 year and am on Tamoxifen 5mg every day as I weigh 90 pounds only . I refused Chemo as I have very low neutrophils to begin with and no radiation as it’s my left breast right over my sternum and the radiation would be hitting my heart and lungs for sure . Hopefully this will work as the tumor that was removed was extremely painful I could not stand it in any longer than it had to be . I had surgery in 2023 . It’s now 2026 hopefully no cancer will return. For all the women who have done Chemo and radiation I respect them as it’s really hard to do those treatments.
Hope and strength is everything and hoping all of you do well 😊

@chrisoula hi there. I was diagnosed today with category 5 …stage 3. 4cm in size in breast. Thankyou for sharing your journey. I have 7 grandchildren, two live in NSW and I am in Victoria Australia. My saddest thoughts is wondering if I will be well enough to travel. Jest a rough road you had travelled but I like to know what I am on for so I can mentally prepare. So sounds like a year of hell coming
Did you have dizziness before diagnosis. …I have also not felt like food for last couple of weeks prior to even going for scans etc. oh and the last few months I have felt completely drained and napped on the couch most days midd arvo…maybe that a Grammy thing at 55 hahahaha. Thanks again

My cancer was invasive lobular HER2 also. My margins were .8 mm post surgery. I started with 12 Paclotaxel infusions with 4 phesgo injections. Then surgery Then radiation followed by kadcyla over 42 weeks

Hi there

Were you HER2 positive? I was. I had TCHP first, then surgery, then kadcyla b/c of 6 mm of residual. My smallest margin was 1 mm which MAYO said was a clear margin. I pushed to have radiation but was declined by both the surgeon and radiation oncologist. They said I had clear margins. Would you mind sharing what your margins were? I had a SMX, no radiation b/c of the SMX and stage 1 - 18 mm. ER 95% and PR 10-20%.

THank you so much.

Just saw my oncologist this morning and got the plan. Should start with Taxol and Herceptin in a couple weeks, after port placement, echo, and education lecture.
(Turbo is our tuxedo cat - moves very fast and has a loud engine!)

Hi @turbomom (love the username!), how are you doing? Have you started treatment in the meantime?

My friend is diagnosed with Her2 positive size of a grape and was going to start with chemo then do surgery but during the contrast MRI they noticed another abnormal area and biopsied it. She also has DCIS in the same breast- lime size.
So she had to have a mastectomy which was Thursday. The plan is to start chemo when she’s healed enough. She’s 54. They did say the stage of cancer could change with the pathology. So praying it stays just the HER2 Positive and DCIS.

I was HER2 positive at 79. I had a lumpectomy, chemo with Taxol and Herceptin, plus 6 weeks of radiation.
I'm now 82 and recently had my 6 mos. check up with the oncologist. He looked at my blood work and said he didn't expect my cancer to come back.
I had a horrible first 2 weeks with the chemo, but after the Taxol was reduced by 20 percent, I pretty much sailed through it.
I read of an an oncologist who said if she had breast cancer she would want it to be HER2 positive because with Herceptin (made from vinca) it is the easiest type to put in remission.

I am HER2 positive and on round 5 of chemo; plan is lumpectomy after chemo, radiation after surgery, oral chemo for a few months. I'm in hell with the chemo side effects; those HER2 targeted drugs have awful side effects. I can hardly walk up the stairs now; but on a positive note, the 9 cm mass in my breast is shrinking -- doctor could feel the difference just with her hand. Good luck.