Help with Long Covid Recovery

Posted by annie481 @annie481, Jul 21, 2023

I was diagnosed with Covid last Christmas (Dec 2022) and a few weeks later noticed head tremors/vibrations. More symptoms developed in later weeks but I still didn't think LC even though I was becoming more and more exhausted with little exertion. In May I started physical therapy for my hurting knees and the more I exerted myself with exercises the more exhausted I got - then my symptoms went haywire and I had more tremors, lightheaded, nausea, breathlessness and finally first part of June heart palpatations and chest tightness, full throat feeling, couldn't tolerate the heat, constipation, brain fog, vein problems and more.

My sister in law said I probably had long covid so I started researching everything I could about LC. I was shocked at what I found cause I thought LC only caused tiredness! Went back to my PC doc and to cardiologist but they can find nothing.

I have been reading about the research done and trying to follow the guidelines of Johns Hopkins LC Recovery Program and I do believe it is helping. I would like to have a magic pill to hurry this process along but that just isn't available.

I have listened to probably 75-100 podcasts and presentations delivered via YouTube from researchers, doctors, clinicians around the world. At first I couldn't get out of my recliner so I watched and listened all day. I take notes because I can't remember very well with the brain fog.

Two of the premier researchers into LC in my opinion are Dr David Putrino and his team at Mt Sinai and Akiko Iwasaki from Yale Medical School. They talk about best practices for recovery in many of their presentations on YouTube. Johns Hopkins also has a Recovery program and I have attached their pdf here. I am doing better — I can now walk outdoors about 10 minutes before the heavy breathing and chest tightness starts. I'm able to get up and do things around the house.

I now have hope. Here is a link to the recover program pdf.

Shared files

Johns Hopkins LC Recovery (Johns-Hopkins-LC-Recovery.pdf)

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Thank you so much for sharing. Such helpful information!

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One of the best books I have read, is the Long Covid Solution A holistic, integrative approach to post-viral recovery by Carla Kuon, MD. Dr. Kuon treats patients with chronic fatigue and Long Covid at UCSF. I found it to be extremely helpful on my journey to recovery.

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@lindawentworth

Thank you so much for sharing. Such helpful information!

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You’re welcome! Finally, after one year, I think I have finally recovered from Long Covid! Of course, since the symptoms fluctuate, time will tell before I can be sure of my recovery. 🤞
I have found light at the end of my Long Covid tunnel!

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@lindawentworth and anniea481 - sending you private message.

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