Anyone used anything that helps with chemo hair loss?

Posted by drummergirl @drummergirl, Nov 17, 2022

Has anyone used anything that has been effective for chemo hair loss? Mine is coming back, but slowly. It is patchy and frizzy and right now seems like it will be years before it is presentable.

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Did your insurance cover this procedure? I lost mine to chemo, grew back slowly but in a year I at least had a full head of hair. Had cancer again 9 years later, no chemo just radiation but then got alopecia. Ugh. Now I’m completely bald again. Sick of beanies, hate wigs.

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@cmdw2600

Unfortunately it does take awhile to come back. You can investigate vitamins and supplements but in addition to those, my integrative medicine doctor recommends rosemary essential oil. You must mix it with a carrier oil (like jojoba oil or any that you like) because it is too strong on its own. Just mix about a half teaspoon of carrier oil and five or six drops of rosemary oil in your hand and apply it to your scalp.

Patience is required! Best wishes to you, Cindy

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Yes on the Rosemary essential oil and the carrier oil. I also put a few drops of the Rosemary in my Plant Based Shampoo and Conditioner. Cosmetic companies haven’t been regulated by the FDA since the 1970’s and can put anything in their products. Stay away from items with fragrance and parabens (the parabans act as estrogen).

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Unfortunately it does take awhile to come back. You can investigate vitamins and supplements but in addition to those, my integrative medicine doctor recommends rosemary essential oil. You must mix it with a carrier oil (like jojoba oil or any that you like) because it is too strong on its own. Just mix about a half teaspoon of carrier oil and five or six drops of rosemary oil in your hand and apply it to your scalp.

Patience is required! Best wishes to you, Cindy

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@dlmdinia

I researched cold caps before I started chemo almost 3 years ago. My oncologist was dismissive and wouldn't discuss it. They've been used extensively in Europe for over 10 years, but here I think they're still experimental and most insurance won't cover. Perhaps that is changing. The cap is used before, during and after chemo to limit the drugs making their way to the scalp. I had a variety of wigs, but I lived in my ball cap that had hair attached. Easy to flip on, it was not hot like a wig.

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I was aware of the cold cap, but my center did not have it. However, we did order cold gloves, socks and a hat online, although the hat was not as effective as the bigger, colder one you are talking about. All were pre-frozen for the treatments. The socks and gloves helped, but the cold cap was not effective enough. I am now on the other side of the chemo treatments trying to encourage my hair growth. The quality of the hair I do have is really terrible.

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@discojanet

Have you looked into cold cap therapies? There are a few different companies that sell cold caps that cool down your scalp after chemo and reduces hair loss. Not sure how it compares to the other treatments.

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I researched cold caps before I started chemo almost 3 years ago. My oncologist was dismissive and wouldn't discuss it. They've been used extensively in Europe for over 10 years, but here I think they're still experimental and most insurance won't cover. Perhaps that is changing. The cap is used before, during and after chemo to limit the drugs making their way to the scalp. I had a variety of wigs, but I lived in my ball cap that had hair attached. Easy to flip on, it was not hot like a wig.

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@drummergirl

I bout Nioxin and will give it a try. Thanks

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Just a follow up to my original post about hair growth products that work. I am using nioxin and I think it is helping, but in the meantime, I have purchased several wigs. Some of my friends like the wigs better than my old real hair. I have matched my own color perfectly and taken the wigs to my hair stylist and most people would just think I had cut my hair shorter. I am getting by for now until I have my natural hair back. Will be a long process I think.

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Talika Lipocels is working great for me for eyelashes and eyebrows. I started using a month before treatment.
Talika Lipocils Expert 10ml -... https://www.amazon.com/dp/B003H67R96?ref=ppx_pop_mob_ap_share

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Have you looked into cold cap therapies? There are a few different companies that sell cold caps that cool down your scalp after chemo and reduces hair loss. Not sure how it compares to the other treatments.

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@dlmdinia

After chemo my hair came back slower than I would have thought. It was almost a year before I was comfortable going out without a hat or wig. (I was so traumatized by hair loss that I covered my mirrors and wouldn'tlet anyone see me without a hat or wig). On the recommendation of a hair dresser with many cancer customers, I started using Nioxin shampoo and conditioner. My hair did grow back unevenly, but after two years it is all shoulder length (the back grew faster and has already had several inches trimmed). You will have chemo hair for at least a year, curly and mostly white. I'm now seeing a lot of my natural color coming in, but I'm 68 and had been coloring my hair prior to chemo so I've no idea of how much gray I had before. My hair is now very healthy, but thinner than it was which I contribute to the natural aging process but also to AI's. I'm on Letrozole. I had been on Anastrozole for the 1st year after chemo. My hairdresser carries Nioxin, but I've also purchased it on Amazon. Hope this helps.

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I bout Nioxin and will give it a try. Thanks

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@brawleyite

I agree with corcoranjf. Anyway, most people do not like their hair in the first place (until they lose it!!!). Just go out and do the things you love and can physically handle. Be happy! Don't worry about your hair - it will catch up with you at some point! Concentrate on your well-being and focus more on your nutrition and exercise. Just keep up your hair appointments to trim off the fuzzy stuff and have a cut that your hair can grow "into". Anyway, that is my two cents from having chemo related hair loss...and finding that it was worth my ongoing 22-years of breast cancer-free survival = to ignore the hair-loss and get on with living which is why I went through my heady medical treatment in the first place! Onward!

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I love your comments. I think hair loss is a huge fear for women. My esophageal cancer has recurred after a short remission and I'll find out tomorrow what treatment options are. If it means chemo, I'll do it again even though I don't want to. But I know already I can tough it out.

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