Headache and Migraine Group: Let’s connect

@rjdowdell25 - sorry to hear you've had headaches for a long time and they have started occurring daily.

I found an article in Neurology - Clinical Practice about the topic you mentioned:

- Use of Acid-Suppression Therapy and Odds of Migraine and Severe Headache in the National Health and Nutrition Examination Survey https://www.neurology.org/doi/pdf/10.1212/CPJ.0000000000200302

Have you stopped any antacids since yesterday? If so, are you having any stomach acid problems since then?

Hello,
I have been getting headaches for a long time and the past month they are daily. I read a post where Prilosec and other antacids were causing their headaches. I have been taking Prilosec for a couple months. Guess who’s going to stop them for a while? I will try anything.
Rosemarie

@chloeoh Hello I am new to this group. I had covid in 2020 and 2021 which caused me to have long covid still with chronic migraines. Last 2 years my cognitive functioning, memory, feeling spaced out at times has worsened. I would like to chat with you about yours.

Hello I am a long covid hauler with chronic migraines and cognitive functions problems. I would like to connect and chat with others with same issue. Hear what others are doing for helping cognitive issues.

Hi Lisa
Thanks for your response and the other links, I will take a look. I just read an article today about a research paper showing that taking it long term is linked with dementia. I can link it here once I figure out how to do it!
Thanks again.
Babmuse (barb)

Keep in touch Jody

Migraines truly are horrific, and I know how frustrating trying to find a solution can be. I pray you are able to find a solution that can give you some relief, as I also have experienced unrelenting pain for months on end, and know its toll effects every aspect of your life.

Hi, @babmuse, and welcome to Mayo Clinic Connect. I am glad to hear you have a diagnosis, too. Sorry to hear about this 3-month cycle you are having to experience, however.

I took gabapentin personally, but it was for postherpetic neuralgia after having shingles, to deal with lingering pain/tingling after the condition had run its course. I recognize that some individuals report side effects from gabapentin, but I experienced none. It helped me with my pain. My doctor had me trial off of it after about 7 weeks of treatment, and fortunately, my pain and tingling were then gone.

There are numerous discussions on Mayo Clinic Connect in different support groups about gabapentin. Here are a couple that might have some useful information for you, including one from the Neuropathy support group and one from the Chronic Pain support group:

- Has Gabapentin helped anyone out there? https://connect.mayoclinic.org/discussion/has-gabapentin-helped-anyone-out-there/

- Is anyone on Gabapentin? https://connect.mayoclinic.org/discussion/is-anyone-on-gabapentin/

My most successful treatment for my
Migraines is acupuncture andchirocare
My chiro and acupuncture one in the same
Get same day service
Been going for 28 yrs

Well. like most of you I am at my wits end.
Never had migraines in my life until I sustained a concussion in 2019, hitting my head in a fall.
The migraines didn't happen suddenly, took about 10 months when suddenly the right side of my head felt I had "just fallen" it was so sore to the touch. Then a daily migraine for 9 months. Saw neurologists at the best medical centers in the country. Ultimately I ended up sticking with a neurologist at my local medical center. Since I have ischemic heart disease I can not take the triptans for pain control/prevention. I tried every CGRP there is, nothing worked. I have had all kinds of migraines...my eyes and especially disturbing periodic severe spasms in my brain. These only last seconds or else I would have to call 911. I have a severe panic disorder and found the benzos give me rebounds...as well as Tylenol - which seems to be my go to drug. I can not even take any of the NSAID (Aleve, Motrin, etc.) b/c of heart disease. Right take candesartan for prevention and B/P control with minimal results. I have about 7 different kinds of "ice caps" in my freezer.
My MD tells me I have "refractory" migraines...meaning nothing seems to help me.
I have never tried Botox and won't, simply b/c I fear it will be my "luck" to end up with serious side effects.
I fell when I was 64, now 70. The quality of my life changed completely with the onset of migraines.
Most folks think migraines are simply a bad headache. It is a true neurologist disorder with consequences on your overall state of physical, mental and social health...my brain has areas of "hyperintensities" due to repeated horrific migraines. These areas have limited (or none) blood flow in my brain.
That's my migraine story. And who knows what the future will bring.
My deepest understanding and empathy to all who suffer with migraines. Truly debilitating in every way.