Head pressure is ruining my life

I do have this as well mris ct scans all clear as well of course.. I think mine is from being pre diabetic and my BP runs low meaning a lot of lightheadedness every day. I need advice as well. Just know you’re not alone and we’ll figure it out together !!!

I have that, but also a diagnosis of intracranial hypertension.

Thank you for the welcome! It was such a relief to relieve that pressure. Of course, I exchanged that problem for another one... navigating a million appointments and cancer treatments and the knowledge that it's not "curable", although I'm not taking that to heart because there's always a first time.

I've been enjoying reading others' stories. It always helps to not feel alone in a thing.

Hello @holdinghope, welcome to Connect. Thank goodness you were able to have emergency surgery and remove the tumor. I can't imagine what a blessing that was for you to relieve the pressure. It's great of you to share your experience in hopes of helping others troubleshoot.

How have you been navigating so far? Are you finding helpful conversations surrounding brain cancers?

Not to scare you, but just to share my own head pressure/ache story. I had this issue for months last year. It affected every day and made many activities difficult. Nothing I tried worked, unfortunately (massage, physio, accupuncture) but eventually one day I couldn't be woken up by my family and they took me to Emergency. I got scanned and it turned out I had a brain tumour and they did emergency surgery to remove it, and then I fell into the world of brain cancer. To note: the brain surgery / tumour removal stopped the head pressure, because the tumour had literally been putting pressure on the rest of my brain.

I sincerely hope this is not the case for you. But it is worth a scan.

This sounds similar to me!

I had this happening for years. For me, it was part of a migraine condition. When I got treatment for migraine, for me Nortriptyline, I pretty much ceased to experience this sensation.

All the best with the tests.

@joanihm I am gonna have to do more research on small nerve fiber. Getting input with people here on Mayo is good. My skin biopsy came back positive in May 2021. I have been lucky up till now with just pin pricks. So out of the blue I now have other things. So I have other signs now. I already know what questions I will have for neurology. I am going to do some more reading on neuropathy also. I went to my regular Dr. for something else and I told him what was happening. He immediately offered me about four different meds. I said no. I am not opposed to meds but I want to have tests first. I am waiting for further testing to see what they think. Thank you for your reply. I wish you well.

I have pressure pain on the right side of my face impacting ear and eye. MRIs and CT scans indicate normal. I have seen a neurologist to no avail. Gabapentin had too many side effects. I switched to Lyrica( Pregabalin) and have some relief, but it never goes away completely and is slow to take effect. The pressure is like Novacaine that never wore off. I am freer of the pain if I am asleep or working alone. Diagnosis from my GP is Trigeminal neuralgia. Perhaps Pregabalin will work for you. I hope you get some relief.