1. < MAC & Bronchiectasis

Having trouble killing pseudomonious.

Posted by duggan @duggan, Nov 29 7:40am

I have bronchiestis and I'm having a hard time with pseudomonious.I cannot get it killed. Treatment is albuterol, Sodium chloride, toby 28
Day cycle on off.

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irenea8 | @irenea8 | Nov 30 7:43am

If you recently aquired Pseudomonas you have a better chance of getting rid of it. If not it often becomes chronic and can only be managed and "knocked back". The 28 days on and off of Toby is a common prescription to knock it back and manage it. You would probably need to also take an oral antibiotic like Cipro or Levo but your Dr would know about that if it was appropriate to your situation. At any rate it is very hard to get rid of once you have had it for some time.

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2 replies
fdixon63 | @fdixon63 | Nov 30 9:56am
In reply to @irenea8 "If you recently aquired Pseudomonas you have a better chance of getting rid of it. If..." + (show)
@irenea8

If you recently aquired Pseudomonas you have a better chance of getting rid of it. If not it often becomes chronic and can only be managed and "knocked back". The 28 days on and off of Toby is a common prescription to knock it back and manage it. You would probably need to also take an oral antibiotic like Cipro or Levo but your Dr would know about that if it was appropriate to your situation. At any rate it is very hard to get rid of once you have had it for some time.

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Well said irenea8. It's been over five years for me. Sorry the news is not what you wanted to hear Duggan. Good news is I've got good quality of life.
Faye

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2 replies
irenea8 | @irenea8 | Nov 30 10:10am
In reply to @fdixon63 "Well said irenea8. It's been over five years for me. Sorry the news is not what..." + (show)
@fdixon63

Well said irenea8. It's been over five years for me. Sorry the news is not what you wanted to hear Duggan. Good news is I've got good quality of life.
Faye

Jump to this post

How do you manage your Pseudo Faye? Mine is not very well managed other than airway clearance.

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1 reply
duggan | @duggan | Nov 30 11:38am
In reply to @irenea8 "If you recently aquired Pseudomonas you have a better chance of getting rid of it. If..." + (show)
@irenea8

If you recently aquired Pseudomonas you have a better chance of getting rid of it. If not it often becomes chronic and can only be managed and "knocked back". The 28 days on and off of Toby is a common prescription to knock it back and manage it. You would probably need to also take an oral antibiotic like Cipro or Levo but your Dr would know about that if it was appropriate to your situation. At any rate it is very hard to get rid of once you have had it for some time.

Jump to this post

I forgot to mention that I have had it for a long time 6 years. My sputum test come back anywhere from few to many.

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duggan | @duggan | Nov 30 11:41am
In reply to @fdixon63 "Well said irenea8. It's been over five years for me. Sorry the news is not what..." + (show)
@fdixon63

Well said irenea8. It's been over five years for me. Sorry the news is not what you wanted to hear Duggan. Good news is I've got good quality of life.
Faye

Jump to this post

My quality
Of life is good considering. So the bad news is once you've had pseudomonious. For such a long time, you're not gonna get rid of it.

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duggan | @duggan | Nov 30 11:49am

I forgot to mention my cat.Scan shows nodules and cavities

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fdixon63 | @fdixon63 | Dec 1 10:56am
In reply to @irenea8 "How do you manage your Pseudo Faye? Mine is not very well managed other than airway..." + (show)
@irenea8

How do you manage your Pseudo Faye? Mine is not very well managed other than airway clearance.

Jump to this post

Right again irenea8. My most recent sputum shows pseudo back up to 4+ (from 2+ in August). Will see what pulm doc says on my appt in a few weeks. I'm having a slight increase in cough but OK otherwise. I probably have my head in the sand somewhat.

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