Have you ever had hiccups with or after chemotherapy?

He is very unhappy. He feels this is not him anymore. He is 6,4”, use to weigh 240 lbs with maybe 8-10% body fat, look Lee like Superman, ate the perfect diet, no fast food, very rarely anything fried. 34 “ waist. Now he’s under 200 lbs. very weak, Balance is so bad he can’t talk to u standing up as he needs all his strength to concentrate standing. He has all the bad side effects from the radiation, cisplatin, and now Keytruda. He was told he needs to finish out his treatment which in September in one more year. I can tell you right now, I don’t see him making it. You can’t have diarrhea for 5 months.
Again, when someone is basically this bad your going to tell me there’s a light at the end of the tunnel?
You doctors that act like he’s the first person they’ve dealt with with such bad balance.
I grew up in MN, Mayo in Rochester is fabulous. My dad had cancer, the doctors were straight up honest with us. My aunt had a rare blood disease and in the long run ended up with another.The doctors again were honest with us. Same with my mom.
The one thing I’m not afraid of is dying. What I am angry about is them not being honest with his cancer condition. He could be spending his days doing whatever and spending quality time with those he would like to see. Instead he’s on this pretend ride. I guess it’s about the money, cause his quality of life sucks. Truth sets you free. And if by a miracle from God you get more time, well I call that a Blessing. I’ve read his chances of survival rate. They know and they should tell him. Many people don’t get their ducks in order cause they think they are cured in 2 yrs after their ofc of Keytruda. Well, I’m pretty sure with the thousands and things of patients.. they know the answer. Cause I do. Giving him a choice now, is better than finding out you went through all this misery for nothing.. but you helped their case study. That’s just not cool to me.
And for docs when a patient and family want to know, your job is not to brush them off and give them false hope. Can again Miracles can happen, but getting the truth of your outcome changes us a priority.
He could be one of the 20-30% to survive. But that should come from his doctor. They know what stage he’s in. When they do a pet scan and there’s a lil flicker… it’s not attached to a limp nodes. Is that cancer trying to break thru? Then it goes dark.. it’s still there and showing as something but now it’s dark. What is that? Why didnt it dissolve? They know. They know exactly. That’s why I’m frustrated. A great doctor doesn’t use the excuse and everyone is different. Because they know the studies, they have the answers. So who’s benefitting in the long run when your quality life is getting worse and worse? Their case studies?
I grew up with many many cousins. Many died of accidents etc. I know all about death and taking care of family members and a friend. He can’t make a decision cause they aren’t being real so he can. He’s miserable. I’m not a happy camper as I see exactly what’s happening.
One day these doctors that don’t tell the patients the truth and they already know will be facing God one day. That I know. Sorry I went on and on, but I am beside myself, and I think this is absolutely ridiculous and so not right in any way, shape, or form.

So………….. back to the “I don’t know”. His quest continues.

Yah all that has been ruled out more than once with different docs in different States including Mayo

Unfortunately, “I don’t know” is never a popular answer to give or to receive. I did just read an Article about a guy who had hiccups continuously for 3 years and after essentially no answers and searching for 3 years. A doctor in Japan found a small benign tumor in his brain stem that was not found on CT scan in the US. The nuerosurgeon who did his surgery in London said that if it is continuous it is in the stomach or in the brain. If it isn’t in the stomach, get the MRI. I have hiccups a LOT. But not continuously, I have had this for years, many times a day and night but it rarely goes on and on for days.

Honestly, the hiccups have been devastating. However, the cancer with the Keytruda is life debilitating. The side effects and quality of life has changed him forever. He told me if he would have known this, he would not have taken Keytruda. The side effect I doubt will ever go away. That’s if he is cancer free after 2 yrs of Keytruda. That’s as long as he can be on it. No one tells him anything. No one answers his questions. The only answer he gets is everyone is different. That’s a ridiculous answer when Mayo is basically a research hospital

He has been treated by Mayo for hiccups. He was told the doctor that rested patients with hiccups no longer does. As none of the outcomes of these patients turned out well. He takes magnesium everyday along with his other Multi’s.
We have been to many clinics fir the hiccups. I try to avoid anything with citric acid too.
He was a deep sea driver for 10 years. And that most likely is the cause of his hiccups.

My bf started to hiccup in 2009. As the years have pasted they have gotten worse. Now they can last up to 13 hours a day. He has had a fundoplication, followed by 2 additional tightening. He use to foam at the mouth. He was diagnosis with Barrett’s. But kept it under control. We have been everywhere Mayo, went to OR, Banner. I know Mayo has given him shots of Botox, numerous things. Nothing worked. He goes to nee with the hiccups every single day. Once in a great while he gets a day off.
He has been taking XYrems so he has have a good nights sleep. This is what I’ve been told. People with intractable hiccups, there is no cure. Most people die of a heart attack or commit suicide. If he drinks to much or to little, he’s to much or no at all he gets the hiccups.
He came down with cancer last March. Head and neck squamous cell carcinoma, hpv 16. Mothership was back of his throat on his tongue and went to left side of his neck.
He took cisplatin and proton radiation for 6 weeks. Was told 98%cure rate. 3 months later had pet scan, should up in a lymph node at end of his windpipe. Inoperable. He started Keytruda last September. He was told he can only have Keytruda for 2 yrs.
So what then? Is he cured? Is that all they can do? They don’t tell him a thing. He has all the worst side effects and top it off with intractable hiccups.
When they say you’ll be around for 2 more years. What does that mean? He thought it meant he’d be cured. To me it’s saying he’s on a timeline.
That frustrates me, cause he can make better decisions with if quality of life he has left. He has no balance, chemo brain, drops things, shortness of breath, diarrhea going on 4 months, the list is long er than that. The anxiety is terrible for him.
He just had another pet scan an there was a little flicker on hos neck but not attached to a lymph node. So they will be checking him again.
To me tell it like it is, as I would want to know. You could be traveling or seeing family more often, you’d take that time to get your ducks in order. And if a different out comes along praise the lord. But to say we don’t know everyone is different. Well we know studies are done, they know. I guess I’m frustrated for him.

dax, check into a deficiency of magnesium as a cause of hiccups. The chemotherapy possibly is causing a magnesium deficiency as does stress..

Hi @anacreon, did you have R-CHOP chemotherapy for a type of non-Hodgkin lymphoma (NHL)?

type of chemo