Have to share this, ADT

Interesting that you should be the next message that I read. The last one was from somebody that was on ADT and thought that that was causing anxiety, even after being off it.

I also Had a lot of anxiety when I was first diagnosed. My cancer was not nearly as aggressive as what you have, But over Time the anxiety has gone away, Even though the cancer has become more aggressive.

I also have BRCA2, Just found out a couple years ago, That explains why it has come back four times. The thing is, I am Still alive after 15 years, Had my one metastasis zapped with SBRT and my PSA has stayed undetectable for 13 months since then, while I am on Nubeqa.

One person who has attended the Ancan.org Weekly advanced prostate cancer meetings has had PC for 26 years and is still alive, with BRCA2. He was on a PARP inhibitor for a long time, Kept his cancer from getting worse. This has given me a lot of hope for my future, since I have not needed to start a PARP inhibitor yet.

BRCA2 is not a death sentence, you have many years of treatments that work available to you. They keep coming out with new treatments every couple of years. For you a PARP inhibitor can give you more time than you thought, and you don’t need to take it yet.

Thank you for sharing and this certainly helps me feel more positive!

"However, the emotional side is very strange as I am either overly happy and joking, or super emotional and crying about nothing."

I had this same thing happen initially, over time, (I was on orgovyx for two years) it subsided to where it was much less of a problem. Hopefully that'll be the same thing you find.

Best of Luck to you!

I'm 22 months into stage 4, in the bones. I take firmagon shot, xgeva quarterly, zytiga and prednisone. It's certainly an emotional ride for us all. Feels like I've gotten old too fast. I try to make the best of it. I've recently retired and looking forward to feeling better, less stress. The side effects are what they are. It's so encouraging to read on here how if and when one med stops working, we have other meds that can take over. The people on this site let us know we are not alone on our journey, that means more to me than I can put in words. We all have to do the best we can and carry on, Best to all, and Thank you.

"I am maintaining my muscles and strength with weights"

Good job! I just finished a one-year vacation from ADT (after 3 years of it) and have just started my 4th year of those injections. This time I'm vigorously lifting weights 3x per week. My vacation from ADT allowed me to regain strength, but this time I don't want to go back to being weak and pot-bellied, so I plan to lift till I ..... (what rhymes with "lift"?)

Thank you for sharing your experience. I’ve been weight liftIng since high school, so hitting the gym 3 or 4 days a week is my normal schedule. I was worried about losing strength due to ADT, but so far my strength is the same. I look forward to my workouts because I feel “normal” when I am working out.
What rhymes with lift: Muscles are not a gift?

with the rhymes you are swift

Well, neither of you are “miffed” which is super important when taking ADT.
I do not consider myself a weightlifter like you , johnernest, but I do use weights for exercise and tone and have found no loss in strength or reps.
Listening to guys on the forum prompted me to start being more regular with them before starting ADT and it’s made a huge difference. Best to you!

Journey begins. None of us want PC Stage 4. How many times have we heard "It can't be cured but can be treated?" ADT enters our life. It can be a dramatic game changer, for me it was. I am 5 years in on this journey that can't be cured but can be treated. Wellness becomes a blessing. Walking, Resistance/Weights Training, Nutrition, and Mindfulness become vital to the PC Stage 4 life. I've added two more: (1) Buddies, and (2) Writing.
I've discovered building a large group of buddies really helps our own healing. We can't be cured, but we can heal ourselves in multiple ways. I find Buddy smiles, conversations, acknowledgements, greetings, eye contact, epically helpful. I am happily 70+ years old mostly because of the gifts that friendship gives us.
My Palliative Physiologist gave me the idea of PC Stage 4 gives us a new chapter to write about in our life journey. The more we write about it and share that writing with other PC Stage survivors the better we all become because even in our fragile state of being sincerity helps makes us whole agin. Much joy.

I think you can learn more about ADT here on MCC that consulting all the leading experts around...as the old Ricky Nelson song goes, "But wise men never fall in love. So how are they to know?"