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Anyone with bladder mets (colon cancer) passed stones/tumor in urine?
I have stage IV colorectal cancer which spread to bladder in 2019. It was small and removed twice with turbt procedure. Now bladder is full of tumor and Dr couldn't even do a cystoscopy. Since on erbitux/lonsurf I started passing what the oncologist and urologist thinks are "coral type stones/tumor tissue in my urine. Has anyone else ever passed these, not kidney stones as they are coming from my bladder. Very painful to pass and no real solution as surgical removal of bladder was denied to me. Urologist suggests nephrostomy but I don't know how diverting urine will stop the "stones/tumor from shedding in urine. Any advice is welcome
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@tspitzley63, I added your question to the bladder cancer forum too in case others have had this issue with bladder cancer as the primary cancer rather than mets. I can imagine that this is very painful.
I think you mentioned that you might wish to get a second opinion at Mayo Clinic. If this is an option for you, here's how to get started: http://mayocl.in/1mtmR63
Did your doctor, in the meantime, explain how a nephrostomy might help? Might it be a way to avoid the pain of passing the stones?
Hello @tspitzley63. My husband was diagnosed with stones in his kidney and neobladder 2 years ago. A nephrostomy was done to ensure the flow of urine as these stones could block a ureter. He had that for almost 2 weeks until the neobladder was cleared of stones.
If you have no stones in the kidney then they must be forming when urine sits in the bladder. Draining urine via nephrostomy would decrease your painful passage of stones and decrease your chance of actual blockage of your urethra from stones. It also allows the doctor access to the kidney to remove any potential stones that could form. Why is bladder removal denied? Have you had a second opinion?
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1 ReactionThank you for sharing. My bladder is full of cancer. I was denied due to the fact that the cancer is also in the pelvis area. So they wouldn't be able to get clear margins. And I have a tumor in my lung that has collapsed my lung and been debunking 4 times in a year. I was looking at going to Mayo for a second opinion, but I'm on Medicare and it will only cover 80% according to Mayo. The estimated cost of going there and the travel expenses are more than I can afford. I wish I could find someone willing to remove the bladder and provide a ureostomy at this point but the two urologist I've seen think it's to high a risk I guess. The stones are only in the bladder and they believe they are dead calcified tumor. So I wasn't sure the nephrostomy would stop them from passing but only divert the urine and make it more painful. I'm still looking for answers. I wish someone would send the fragments for biopsy/pathology. Some of the fragments are very large. Photo attached.
The stones aren't as painful passing as the irritation from them causing burning pain and some pain before they pass. Yes the doctor said a nephrostomy may help with the urine but not sure the stones won't still try to pass as some urine might still flow there. I'm just worried that then I'll have to things to deal with and worry about taking care of as I'm alone in this. My scan shows a pile of stones/tumor calcification or whatever they are. It just seems there should be better options to eliminate the stones. But I'm now considering the nephrostomy to see if it helps. It just something else to care for and to possibly get infected, and limit what I can do. But I'm not sure what else I can do. Thank you for replying.