Has anyone tried therapy prior to RARP to prepare for incontinence

Posted by someoneelse @someoneelse, 18 hours ago

I read somewhere where some guys have gone to therapy to prepare for post surgical continence issues with kegel exercises etc.

My surgery will be in mid October and I want to be ready. I talked to my surgeon about it and he wasn't a big supporter of that but said it might be worth trying.

I'm in the DFW area and open to any recommendations.

Thanks

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Very good idea.
My urologist booked me in urgently for physio training 6 weeks pre-op.

Unfortunately, they over-estimated by ability & 6 months of one-on-one physio instruction didn't work.
I may be one of the exceptions, though.
But yes... Kegels before surgery, if you can work it out, are very good.

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I agree with @peterj116; that's a very good idea. I was 70 last year when I had RP. In a pre-RP meeting the surgeon's resident urged me to start Kegals before surgery. I just went ahead and read some instructions on the hospital site and watched some (Michelle Kenway) youtube videos on how to do Kegals. That worked for me, but it did take some effort and re-watching the videos several times before I felt I was doing them correctly. I do believe seeing a good physical therapist would probably have been best, but I was just a bit reluctant to go so I decided to try them myself first. Then if I felt I wasn't doing them right I would have made the effort to go to a physical therapist. I also stepped up my exercise at the gym and dropped 9 lbs before surgery. I was continent immediately after the catheter came out (although it still took several months to figure out the new normal). I personally believe most of the credit goes to the surgeon, but I do think the exercise and Kegals helped. Although I consider myself fully recovered from surgery now at 15 months, my surgeon advised me to continue the Kegals indefinitely for maintaining pelvic floor strength, so I still do 2 sets a day. I also still take daily 5 mg tadalafil for penile rehab and 100 mg sildenafil before sex and I really believe that's helped as well. But I'm not a medical professional, so this is just my layman opinion. Best wishes.

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I did a lot of walking for about 6 or 7 weeks before surgery. Also, I would do plenty of kegels every other day. I would hit them very very hard then give it a days rest to let the muscles recover. I would also do them during my walks and everyday activities. I was dry from the time the catheter came out. My surgeon credited me but honestly I feel it was, God, and my surgeon's skill and the technique he used.

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I am also in DFW and going to have RARP in late October. Incontinence and sexual function are my biggest fears/concerns after the biggest one (cancer spread). Thank you for the post and for all that reply that may have advice to help you and help with my recovery as well.

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I think the kegels are important. Whether or not you get training is not as important. You should make sure your doing the kegels correctly. I did the kegels for about a month prior and was NOT continent. I then spent 5 years doing nothing. I am now back at Mayo for PT exercises. I also have ED. I just received my first Trimix injection. This is after 5 years of no stimulation. It worked. The pills and vacuum tube did not work.

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I am posting in support of the prior comments recommending pre surgery pelvic floor conditioning, ideally ensuring that you are using the proper technique.

In my case, I was advised by my medical team to condition my pelvic floor muscle as a logical step for the muscle to perform its new role as the sole urethra sphincter post surgery.

However, every patient is different and any pre-surgical incontinence typically becomes worse after a RP.

Surgeons are not experts in pelvic floor muscle conditioning and the impact on post surgery continence.

Your surgeon should be an expert on how to minimize trauma to your pelvic floor muscle during the surgery and be able to discuss his/her statistics on post surgical continence results. It is a skill and the best measure their results and learn how to continuously improve.

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Before my RARP I asked my Surgeon about Kegels before surgery and he told me flatly to not do them. After surgery I completed 8 sessions of Pelvic Floor PT along with Kegels at home for the month I was doing PT. I followed up with home Kegels till my first post op PSA review 3 months after my RARP. I asked my surgeon if I should stop and he said yes. But he also advised me that If I started dribbling again to start doing them again on my own. Some Surgeons will ask you to do them before surgery some won't but as noted, if you do them too hard they can mess up your Pelvic Floor.
My PT told me that "in Theory" you should be able to hold a Kegel for between 15 and 20 seconds. That made all of us laugh.

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100% recommend 1 or more professional PT appts pre-op

Because of time, I could only manage 1 session pre-op and I thought that it was amazingly helpful to me.

You do NOT do kegels with the catheter in place, but I felt like it helped me rise up and sit down with the catheter.

And I followed up with 3 or 4 sessions post catheter.

Best wishes.

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The teo things that I would do differently is starting physical therapy long before the surgery and also make an appointment with an ED specialist.

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