Has anyone taken Lynparza?
I am so confused . Diagnosed April 22 . Double mastectomy in September 22 reconstructive Nov 22. I just started taking lynparza. Anyone familiar. I have the Barca 2 gene. My file show diagnosis as Malignant Neoplasty. Anything would be helpful
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I was on Lynparza from June of 2022 and June of 2023. I had the same dosage as BPknitter.
Side effects? I was also given 18 infusions of Herceptin/Perjeta during this same time from March-March. I had the genetic test and had Brca2. My tumor was HER+. My Medical oncologist and the team at City of Hope gave me Lynparza as my 16 rounds of chemo were shortened to 13 rounds due to side effects.
So, for side effects I had an ongoing slight metal taste in my mouth till a few weeks after my last Lynparza pill. Neuropathy in my fingers continued. Honestly though, I had breast surgery in Feb and Dec of 2022 and I know those as well as the meds combined for the joint, shoulder and trigger finger. Most of those side effects are negligible now. How did the drug help me? Time will tell.
I have regularly been on breastcancer.org, as a friend suggested I join after my diagnosis, As my active treatment ended, I was looking up Ovarian cancer as my sister was diagnosed in July. I was finding many studies put out by the Mayo Clinic that were interesting. I saw I could join and decided to do it. A friend of mine is being treated at MD Anderson in Texas, another sister at Roswell Park in NY and Cleveland Clinic.
I am being treated at the City of Hope in Duarte.
I have found in Mayo connect an interesting mix of info. I do not have to be treated at Mayo to get a benefit from hearing from others and sharing with others as time allows.
Hi @katgob, your experiences are helpful. How did you find Mayo Clinic Connect?
I am new here; I have been on a different side for a while. Simply, I ended up with Pancytopenia after 13 rounds of chemo and it continued with a version of the Olaparib pill that i was told was a cousin of Lynparza. This was December of 2021. In Feb i had surgery. I must add I was diagnosed with BRCA2+ in August of 2021. Come June of 2022, I was on Lynparza for 1 year. I was only stage 2, but I was Brca2 and Her2+. Er+/Pr-. My MO doctor felt this was a good choice. 200mg am and pm. 1/3 less than the 29 day pill i had in ecember. All in all, I was on Herceptin/Perjeta infusions for 18 rounds during this time. After each end side effects lessened. Joint aches, and neuropathy. Lynparza is a chemo pill, but no more hair loss. In all, my white cells remain low and platelets too. One great thing, the metal taste is gone.
@elizabethboie - thank you for your response - what was your dx and what was your dosage? As mentioned I'm TNBC BRCA 2+ and have completed my chemo, surgery and radiation.
I was on Lynparza for three years. I did not have many side effects.
@2opinion - how are you doing on Lynparza? I know you started in April and its been a couple months. I'm still trying to get everything in place so I can start on the medicine. I saw you dx - mine is different - I'm TNBC & BRCA2+. How long will you take this medicine?
I'd be interested in your side effects and what is your dosage. Mine will be 100mg 2 tablets/twice a day (so total 400 mg/day).
Brca 2 genetic gene.
No I do not.
My first week on it was ok but since then I feel like I have the worse flue ever. My bones hurt, not happy