Has anyone taken Lynparza?
I am so confused . Diagnosed April 22 . Double mastectomy in September 22 reconstructive Nov 22. I just started taking lynparza. Anyone familiar. I have the Barca 2 gene. My file show diagnosis as Malignant Neoplasty. Anything would be helpful
Interested in more discussions like this? Go to the Breast Cancer Support Group.
I have regularly been on breastcancer.org, as a friend suggested I join after my diagnosis, As my active treatment ended, I was looking up Ovarian cancer as my sister was diagnosed in July. I was finding many studies put out by the Mayo Clinic that were interesting. I saw I could join and decided to do it. A friend of mine is being treated at MD Anderson in Texas, another sister at Roswell Park in NY and Cleveland Clinic.
I am being treated at the City of Hope in Duarte.
I have found in Mayo connect an interesting mix of info. I do not have to be treated at Mayo to get a benefit from hearing from others and sharing with others as time allows.
Hi @katgob, your experiences are helpful. How did you find Mayo Clinic Connect?
I am new here; I have been on a different side for a while. Simply, I ended up with Pancytopenia after 13 rounds of chemo and it continued with a version of the Olaparib pill that i was told was a cousin of Lynparza. This was December of 2021. In Feb i had surgery. I must add I was diagnosed with BRCA2+ in August of 2021. Come June of 2022, I was on Lynparza for 1 year. I was only stage 2, but I was Brca2 and Her2+. Er+/Pr-. My MO doctor felt this was a good choice. 200mg am and pm. 1/3 less than the 29 day pill i had in ecember. All in all, I was on Herceptin/Perjeta infusions for 18 rounds during this time. After each end side effects lessened. Joint aches, and neuropathy. Lynparza is a chemo pill, but no more hair loss. In all, my white cells remain low and platelets too. One great thing, the metal taste is gone.
@elizabethboie - thank you for your response - what was your dx and what was your dosage? As mentioned I'm TNBC BRCA 2+ and have completed my chemo, surgery and radiation.
I was on Lynparza for three years. I did not have many side effects.
@2opinion - how are you doing on Lynparza? I know you started in April and its been a couple months. I'm still trying to get everything in place so I can start on the medicine. I saw you dx - mine is different - I'm TNBC & BRCA2+. How long will you take this medicine?
I'd be interested in your side effects and what is your dosage. Mine will be 100mg 2 tablets/twice a day (so total 400 mg/day).
Brca 2 genetic gene.
No I do not.
My first week on it was ok but since then I feel like I have the worse flue ever. My bones hurt, not happy
Do you know what the lowest dose is?