1. < Lymphedema

Has anyone had lymph node transplant surgery?

Posted by janiebill @janiebill, Oct 20, 2024

I would love to hear from someone who has suffered with lymphedema and was able to have corrective surgery. I know it isn’t very common but my hope is I will soon qualify.
2023 I was diagnosed with cutaneous squamous cell carcinoma stage IV with metastasis to the Axilla. Surgery, radiation with concurrent chemo. About 6 months after treatment finished, my arm ballooned. I have been in OT for lymphedema since Feb…. Bandages, message etc. No real change. I would love to move forward with something that has had positive results like transplant. Has anyone gone through this surgery?

Interested in more discussions like this? Go to the Lymphedema Support Group.

sandy8043 | @sandy8043 | Oct 21, 2024

I have lymphedema in my mouth, throat and neck following tongue cancer surgery. I use a lymphedema pump made by Tactile Medical. It uses a mask and vest and air pressure to massage the skin. My treatments take 33 min.once a day. My surgeon prescribed it and my insurance paid for it. See their info here. https://tactilemedical.com/
Good luck to you. I see Amazon has other options similar to mine for much less $$.

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1 reply
janiebill | @janiebill | Oct 21, 2024
In reply to @sandy8043 "I have lymphedema in my mouth, throat and neck following tongue cancer surgery. I use a..." + (show)
@sandy8043

I have lymphedema in my mouth, throat and neck following tongue cancer surgery. I use a lymphedema pump made by Tactile Medical. It uses a mask and vest and air pressure to massage the skin. My treatments take 33 min.once a day. My surgeon prescribed it and my insurance paid for it. See their info here. https://tactilemedical.com/
Good luck to you. I see Amazon has other options similar to mine for much less $$.

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Thanks Sandy….I’ll look into it.

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