Has anyone had a spinal fusion that has HEDS and Osteoporosis

Posted by vixenn @vixenn, Dec 3, 2025

I had T4 to S1 spinal fusion 4 months ago, and am having numbness to the touch, feelings like electric shocks, deep throbbing ache and burning pain in the right lumbar area, and the pain is now radiating around to the front where i have a pseudohernia as a result of my spinal fusion. I am taking prescription pain medication, muscle relaxants, using a 4% lidocaine patch and have to periodically use a brace to help with the pain. I do have Hypermobile Ehlers-Danlos Syndrome, and Osteoporosis, and had a previous T11 to S1 fusion, but a screw came loose, my scoliosis has gotten worse so they decided to go a fusion higher up the spine. The day after this last surgery they had to go in a do a revision because a screw came loose again. I did have a recent MRI, but the follow up is not until January 9th, and I am miserable.

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