Has anyone had a recurrance of endometrial cancer to lung?

Yes!! When I first heard the word "cancer" all I could think about was death. Then I met with my gyn-oncologist at Mayo Clinic and realized that cancer means a treatment plan with confidence in my cancer care team.

May I ask that you send your message out by replies to our members who would benefit from the reminder about Hope?

The difference is incredible. I cannot stop smiling, I know I am going to make it now. I hope it helps others to remember to hang on to that hope, all is not lost!!

@gaylepc Oh, wow. I'm smiling too as I read this. Thank you so much for coming back and announcing this right here.

This is such fantastic news and does provide great, big, Hope. Isn't it wonderful to know that you are on the action path and that you have such a fantastic cancer team to work with? ❤️😀🥳

@gaylepc September 30 (Monday) is only a few days away. I hope for you that the radiation oncologist will be discussing a treatment plan. Like you I am not good at "hurry up and wait". I will share that once treatment plans were recommended and then in place I was far less anxious.

Absolutely!!! It sounds as if you have managed (in spite of the shock and horror) incredibly well and your team sounds excellent. I do not want, in any way, for you to think that my sister's outcome predicts yours. I work to tell myself that for me, too. I am in so much of a better position to care for myself than, unfortunately, she was. I hesitated to write because I did not want to frighten you. I wanted you (and others reading) to know that your experience is not a one-off, though. My experience made me learn that I had to stay vigilant (with, as Helen so brilliantly wrote, a plan, optimism and hope).

The pulmonologist had no new information, just went over my lung function tests which provided nothng new, just confirmed that I have COPD which is manageable.

I see the Radiologist Oncologist on Monday and maybe (hopefully) the beginnings of a treatment plan will happen.

I just want to ring in to say that I am sad and angry that you are having this shocking and frightening experience, @gaylepc. It eerily mirrors that of my sister, who died 6 months prior to my diagnosis with and successful surgery (so far) for Stage I FIGO 1 endometrial adencarcinoma in January 2023. My reading and discussions with my oncology team members have led me to understand that the lungs are a frequent site for metastasis when there has been a recurrence. By that time (also 9 years later and after surveillance was no longer considered standard care), my sister had had a stroke that impacted her ability to advocate for herself, and her daughter had a very difficult time getting her team to consider that her breathing difficulties and coughing of blood had anything to do with her previously treated (stage I, radical hysterectomy, clean sentinel nodes) endometrial adenocarcinoma. But that relationship was finally discovered and she underwent radiation and chemo. Her life was extended for a year and she had time to say beautiful good-byes. For this reason, I have chosen to take any reassurances with appreciation and a tiny grain of salt, and will continue to seek surveillance as long as I am able, while doing what I can to reduce my chances of recurrence.

I'm so very glad that your team recognized that this is what's going on and can offer you a comprehensive treatment plan very soon. I trust and hope that your ability to self-advocate, as you have, will result in a much better outcome for you. I will be very grateful for whatever extent you are able and willing to share what plan you ultimately choose for your care and will be wishing you well with it on every level. Keeping you in my thoughts and cheering you on from here on, @gynosaur