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Anyone with Retroperitoneal leiomyosarcoma had a genomic analysis?
I was diagnosed with rLMS in October. A 984 gram tumor was removed and damaged to a crushed small intestine was rejected. The tumor was rated as a stage two due to size. No symptoms until it caused a bowel blockage. No weight gain, no pain. Only bloating that started three days before. I have had a genomic analysis but have yet to speak with oncologist about what it means. Looking for others with LMS
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I'm tagging @poula @amanzhou who also have experience with retroperitoneal leiomyosarcoma (RLMS) and may have experiences to share.
@jeshaw6801, have you in the meantime discussed the genomic analsis with your oncologist? What did you learn?
Not yet. He was on vacation and I am now on a snowbird getaway to the southwest. I did get a NED on my first scan (Dec 23). I have been spending part of my getaway to reflect on life and death. I want to focus on how to deal with the 90 day cycles between scans When I spoke to the oncologist upon his return, it was brief....discussed first scan and setting up for scan two. We get home on the tenth. Would love to connect rLMS patients.