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Has any one developed Peyronie's condition? (curving of the penis)
I've posted several changes in my penis and scrotum sizes, please don't think I'm obsessing, hmm, maybe I am, to a man the way his penis and scrotum looks is extremely important to his self confidence, and pride in body image, which was once a good looking penis and scrotum, now , has changed to a smaller ,some much wider others thinner, ,extra shaft skin, loosing your glans inside the fleshy shaft, scrotum hanging much longer loose and empty, tiny testicles not to mention the difficulty urinating past the hidden tip, urine running down your scrotum and anus, I think we all need to embrace the changes, enjoy the look, don't be ashamed, show it off when possible and allowable, ( gym shower, nude beach, pool ) ,etc., you've been touched with a horrible disease, with medical intervention the only trusted solution to changing the look and feel, penis and scrotum changes can be addressed with surgery, but that's another surgery experience , which I know I don't want to endure, having PTSD, from 10 different surgery's only the one for the cancer, a prostatectomy, so my way thru the changes and self acceptance ,is to be proud of the look, like a badge of courage.
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curious if any group members have developed Peyronie's condition what does it cause, is it someting to be able to work thru
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1 Reaction@postprostatectomy77
Not a highly talked about condition.
I had this later on in life and was worried so talked to my PCP about it. He said it usually is caused by scar tissue and not something to be concerned about unless it affects your ability to enjoy sex or brings you pain.
I had some type of check done (can't remember as so long ago) where they went up my uretha and looked at something. I can remember when I first went to pee tremendous burning pain inside my penis. I was told probably the result of the catheter and scope.
I was told would heal but would have scar tissue there. Nothing until later on in life and some curving. You asked what does it cause. If minor, nothing other than worry. If drastic can affect enjoyment. Just have your urologist or if your PCP is experienced check it or discuss it with them.
Mine never got worse and for me has come the norm for decades now.
About a year after surgery I developed a 15-30 degree curve. My doctor said it was not enough to worry about, but it very much worried me and brought me great stress about the current curvature and thinking about how worse it might get. I used a vacuum pump 3X a week for 20-30 minutes and it fixed itself. My Dr. did not think it would help, but he was wrong.
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4 ReactionsI think its a unique look, and if no pain is involved then enjoy the feel and look, I've seen several like it at gym showers and on nude beaches and pools, brings many questions to mind, its not a condition that's a definite side affect, but a random occurrence, I hope for those that have it can work thru the look and feel, and don't let it add to the list of the so many other cancer items we all suffer from. lets all stay strong both mentally and physically accepting our body image changes
did the condition change size ? length or width , or cause daily pain
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1 Reaction@postprostatectomy77
Slight change in length as had a curve where was before straight. Size, width same.
I did not have any pain with the curvature. It was more of a psychological issue with me as "Oh boy what is this." It was kind of embarrassing, but I talked to two different primary care doctors. They both explained this is common and gave me the most likely causes. They stressed if not causing me pain, discomfort, functional issues, not to worry about it.
I then remembered and advised them of me having a procedure years before where urologist went up my urethra with a catheter type instrument to check something. The first time I urinated after that procedure pain brought me to my knees. The pain was inside penis about middle way up.
I was told the catheter caused what they called a stricture scar and that led to the curvature later on. It is the scar tissue and changes to penis organ that develops later on that caused this.
When I was undergoing prostate radiation treatment during simulation my R/O wanted to put some type of solution up my urethra so he could see the area behind prostate when undergoing CT.
He did this by another catheter procedure. After that procedure and first time I urinated I got pain inside penis again but right toward the end. I was told by R/O that the catheter caused it and would probably develop a stricture and let them know if affected urination.
It did not but I did have discomfort (burning). Then the burning went away but can still feel the area of the stricture when I urinate.
sorry to hear about the pain, all of us on here have suffered in so many ways, and have penis and scrotum changes, if I developed a curve , I'd just feel it as a unique looking penis, and consider it a change that I think looks good
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1 ReactionI've seen pictures of curved penis's and some are really curved almost like a long loop either up or facing down, ,more pronounced when erect
@postprostatectomy77
I had a substantial curvature and it was quite painful. I always thought my curve was caused from falling asleep in tight Levi’s sleeping in a chair. my nocturnal erection basically had nowhere to go ended up proving at least that's what I believe happened. I never did go to the doctor about it. When I get an erection, I would just push it as straight as I could and hold it for a while. I did that every time I got a erection which back in those good ole days was frequently. I always had a certain amount of curvature which I didn't mind.
I believe that Mayo Clinic developed a device to hep straighten it. Mayo Clinic developed adevice called
RestoreX | Penile Traction Therapy Device.
Here is a link,
https://www.pathrightmedical.com/shop/
Take care,
Jake