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Grey Results after 5 cycles of Kisqali

Posted by ampeltekian @ampeltekian, Mar 30, 2023

After 5 cycles of Kisqali and two pet scans I have mixed results
There are improvements in bones
There's stability in others
Progression in spine

New Mets in Liver and other areas of the bones.

Doctors are at a loss!

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Mar 30, 2023

@ampeltekian this is perplexing indeed. Nothing like test results that are as clear as mud, huh?💔
I understand you had two pet scans. Did they give you two different results? One saying improvement and one saying progression?
Any chance you can get to a large teaching hospital or cancer center?

REPLY
ampeltekian | @ampeltekian | Mar 30, 2023

Two pet scans one at the 2.5 month interval when my CA 15-3 was gradually increasing and the second one was at the 5 month interval (2.5 months after the first one) when my CA 15-3 decided to be stubborn and not budge neither up nor down.

My Oncologist wants to move to Ribociclib Fulvestrant brew. Instead of Ribociclib-Letrozole. New studies show effectiveness apparently.

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 11, 2023
In reply to @ampeltekian "Two pet scans one at the 2.5 month interval when my CA 15-3 was gradually increasing..." + (show)
@ampeltekian

Two pet scans one at the 2.5 month interval when my CA 15-3 was gradually increasing and the second one was at the 5 month interval (2.5 months after the first one) when my CA 15-3 decided to be stubborn and not budge neither up nor down.

My Oncologist wants to move to Ribociclib Fulvestrant brew. Instead of Ribociclib-Letrozole. New studies show effectiveness apparently.

Jump to this post

@ampeltekian, mixed results are confusing. I believe that @susane1121 is also taking Ribociclib and Fulvestrant for metastatic breast cancer. You might also wish to see this discussion:

- Breast cancer spread to liver, skull, spine, ribs, hips etc. https://connect.mayoclinic.org/discussion/moms-breast-cancer-spread-to-liver-skull-spine-ribs-hips-etc/

REPLY
1 reply
ampeltekian | @ampeltekian | Apr 13, 2023
In reply to @colleenyoung "@ampeltekian, mixed results are confusing. I believe that @susane1121 is also taking Ribociclib and Fulvestrant for..." + (show)
@colleenyoung

@ampeltekian, mixed results are confusing. I believe that @susane1121 is also taking Ribociclib and Fulvestrant for metastatic breast cancer. You might also wish to see this discussion:

- Breast cancer spread to liver, skull, spine, ribs, hips etc. https://connect.mayoclinic.org/discussion/moms-breast-cancer-spread-to-liver-skull-spine-ribs-hips-etc/

Jump to this post

Today I got the results of my latest biopsy. Pathology shows Triple Negative. Six months ago it was ER/PR+ HER -ve.

How can this be possible is beyond me. Kisqali was never fully effective even on day one. So was it TNBC even back then? How reliable are biopsies? I am devastated!

REPLY
nadejda | @nadejda | Apr 14, 2023

I think, the pathology result depends on the pathologist qualification to a great extend..

REPLY
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