Grade 3 Malignant Meningioma 2 Tumors
I was recently diagnosed with 2 malignant meningiomas, one in the center of my brain and one at the bottom of my head, top of my neck. My levels are quadrupling, the seizures are so intense, one ends and another starts right away, they’re getting stronger and longer, experiencing loss of vision completely in my right eye, but the vision itself comes and goes. Very irritable, very anxious. I seem to be having definite changes in my moods and mental state. And for the last week, I have been absolutely exhausted, almost to the point of not being able to even function and on top of that, my spouse isn’t supportive in the least, I have no family, no friends, im on my own, (well him, but I don’t count him, hes the worst.) and he quite literally rips me to shreds all day, everyday. Tears down my entire character, tells me how easily replaceable I am, how easy it would be to go be with another woman (which he’s already been doing for at least two years, but won’t admit it, even with physical proof! lol narcissist much? 🤣🤦🏼♀️) long story short, all he does is talk shit, blames me for having these tumors, won’t allow me to go get my next biopsy and won’t let me get the surgery to remove what they can of the tumors. My doctor told me to keep the stress to an absolute minimum and not get myself worked up or raise my blood pressure (it induces the seizures) and for months now, the seizures have been terrible because of my spouse. Anyone else in the same boat? Have advice? I just can’t wrap my head around him knowing I have a rare and extremely aggressive set of tumors and realistically, im going to die, and he can’t do anything but be terrible to me, all while playing the victim and taking no accountability. You’d think he would pull his head out of his ass and let the rest of my life be in as much peace as possible, but no, he wants me to be in a living hell, while he prays I go to hell! Oh and I forgot to mention, this man even puts his hands on me and tells me he doesn’t care that im sick and to “suck it up and be in pain”, (really wish he knew how extremely painful these types of headaches and seizures are!!) I know this illness is already extremely aggressive, but is it possible for “the end” to “come faster” due to the environmental and psychological factors im dealing with?
If there is anyone with the same (grade 3 malignant meningioma) illness, what were your beginning symptoms and your current symptoms? Do you have seizures, loss of ability to speak correctly, severe headaches, loss of consciousness, etc.? Have you even come to terms with our lovely “death sentence”? And finally, what did you do for treatment? I know chemo isn’t an option, but has anyone had surgery or done radiation, natural remedies maybe?
Thanks for sticking in while I had a mini vent session! I apologize, I just want to know if I’m alone in this or if someone understands the hell im in.
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Hi, I am so sorry for for your physical and emotional pain and symptoms overall. I've had a Foramen Magnum Meningioma for a bit over 2 years. The symptoms are worsening and I see Neurosurgery @ Mayo next month. Surgery will soon follow.
First, sounds like your boyfriend is a complete and utter Incompassionate Ass. He is hurting you instead of being a caring loving friend. Get rid of him as fast as you can!!
Too much crap to deal with without him around. I will certainly keep you in my thoughts and prayers.
Take care
Van
KC,MO
Find support somewhere and go live alone somehow. And get surgery at Mayo! They removed my Who grade 2 meningioma in 2007. I had a non supportive husband- now Ex- and it took a few years to get myself back functioning... you likely need radiation too if possible. Good Luck! Not an easy future for sure!
ruarose: Do you have insurance through your spouse or independently? If you do, please, please make an appointment for the next steps that have been recommended to you. A grade 3 meningioma responds better to treatment than a glioblastoma. Also, I think you should think about connecting with a womens' shelter for domestic abuse victims.