Going for Tulsa Pro

Posted by paulcalif @paulcalif, Dec 29, 2024

I've posted here a few times over the last year and have read most of the posts from others. I was diagnosed in January 2024 through an ultrasound biopsy (it should have been MRI guided), followed by a PSA test CT scan, MRI, and Decipher test. My cancer is not aggressive, but there are three growths in my prostate. My doctors recommended a full ablation, and I’ve decided to go with the Tulsa Procedure at UCLA with Dr. Steven Raman.

I’ve waited until now because I believe Medicare will begin covering the procedure on the 1st. of 2025. Earlier this year, I switched from a Medicare HMO plan (Blue Shield) to Original Medicare with a supplemental plan, where Medicare covers 80% and the supplemental plan pays the remaining 20%. It’s been incredibly difficult to determine whether Medicare will actually cover the procedure, as I’ve received conflicting information. However, I think they will.

I considered going back to an HMO with United Health Plans, which includes UCLA physicians as in-network, but no one could guarantee that they’d cover the procedure either.

Anyway, I thought I’d document this journey. It begins on January 5th, when I’ll check into an Airbnb hotel near the procedure location. This is two days before the procedure. I’ll have to fast those 2 days and completely empty my stomach (I’ll spare you the details). In the best-case scenario, I’ll wake up with a catheter and a “burned out” prostate. I’ll need to wear the catheter for at least two weeks. Hopefully, they'll get it all 🙂

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for bobbygene @bobbygene

Anticipation is the worse part of TULSA.

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Well, it's definitely a bad part, not sure whether it's the worst but I'm hoping that it is LOL.
Thanks fir the reply

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Profile picture for paulcalif @paulcalif

Well, UCLA called yesterday, Jan 3rd. to let me know that my Tulsa Procedure was being postponed from Jan 7th until the 14th. Normally not a big deal, but I had rented an Airbnb for 3 nights with a no refunds policy. Fortunately, the hostess was compassionate and returned my payment. I've since rented another place. I just want to get this behind me.

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Anticipation is the worse part of TULSA.

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Well, UCLA called yesterday, Jan 3rd. to let me know that my Tulsa Procedure was being postponed from Jan 7th until the 14th. Normally not a big deal, but I had rented an Airbnb for 3 nights with a no refunds policy. Fortunately, the hostess was compassionate and returned my payment. I've since rented another place. I just want to get this behind me.

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Profile picture for paulcalif @paulcalif

I considered all of those as well, best of luck to you.

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Good luck to you on January 7th . -- Keep us posted on your results .
HAPP Y NEW YEAR .

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Profile picture for clandeboye1 @clandeboye1

I am considering NanoKnife , TULSA PRO or Mono SBRT ( 5 TREATMENTS )

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I considered all of those as well, best of luck to you.

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No, I'm not inferring that, I'm just saying that for the right person, Dr. Raman might suggest active surveillance. I have no idea what level of the disease would make for a good active surveillance candidate.

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Profile picture for paulcalif @paulcalif

My doctor (Dr. Steven Raman, UCLA) is also very knowledgeable about active surveillance and would probably advise that if it weren't for the Urologist and radiologist that he works with, both suggesting full prostate ablation. So, I'm getting it over with. I've waited a year. It would suck to have it spread knowing I had a chance to catch it before it did.

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Are you inferring that with Gleason 6 in 4 cores and Gleason 3 + 4 = 7 in 2 cores , that Dr. Raman would suggest AS ?

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How was your outcome and recovery?

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Profile picture for clandeboye1 @clandeboye1

How long were you under anaesthetic ? I read one case on these threads where a club member was under for 4 hours . In Toronto the complete procedure takes less than 1/2 that time .

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I was under about 4 hours with my TULSA PRO.

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I am considering NanoKnife , TULSA PRO or Mono SBRT ( 5 TREATMENTS )

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