Glioblastoma grade 4 thalmic tumor unresectable

Posted by loriaward @loriaward, Feb 19 10:00am

Jan 12th, we thought my 62 y.o husband had a mikd stroke with left side hemiparesis. After scans showing a basal ganglia tumor, he was transported to Barnes Jewish hospital in St Louis, Missouri where he had more tests. They performed a stereotactic biopsy bc it was determined the risk of removing the tumor had a 90% chance of paralyzing him. After the biopsy, he has all function of his left arm, leg and it also affected his speech. We transported him back home to begin acute inpatient rehab while waiting for the pathology reports. He was diagnosed with grade 4 glioblastoma wild card? He begins radiation this week, along with temodar. Does anyone have experience with thalanic tumors or hemiparesis? His tumor is 2.5 cm. I prefer to be as prepared with the what to expect as we start this. He is diabetic, stage 3 renal failure and we're now at home as insurance wouldn't allow him to stay in acute rehab while doing soc. We've got our legal affairs in order, appropriate poa papers are signed and modified our home for his care. We are just trying to process the diagnosis while searching for what to expect,especially regarding symptoms, what to watch for, how to balance quality of life with quantity of life, finances, being a full time caregiver, how to help improve his mindset and stay upbeat. He is determined to fight and we will support him in anything he chooses. Any advice, experiences, help will be greatly appreciated. Thank you.

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I am very sorry to read about your husband. My husband passed away two years ago. He had two GBM tumors. The doctor did not remove them because he said they would just grow back. My husband did some brain radiation and Temodar. He was on Keppra also. The brain radiation killed him quicker I think. I’m sorry I don’t have more encouraging words. All I can say is just try to enjoy every day with him. Be supportive. Don’t get upset with him. Tell him you love him every day. I wish you the best.

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Sorry, typo, he lost all use of his left arm and leg after the biopsy. He is also on steroids and Keppra still.

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